130 episodes
Rare Care Podcast Rare Care Podcast
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- Health & Fitness
Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.
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An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome
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An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD
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An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.
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An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.
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An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.