Ep 33: SMA & Advocacy

Living With SMA

Welcome to a deeply moving and enlightening episode of our podcast, where we shine a spotlight on "The Importance of Spinal Muscular Atrophy Advocacy" and the transformative power of social media in advocacy efforts. In this remarkable conversation, we are joined by four extraordinary individuals - Portia, Eden, Hamany, and Maxwell - who are helping to drive change in the world of Spinal Muscular Atrophy (SMA) advocacy.
Our guests share their heartfelt stories and reveal why they are so passionately dedicated to this vital advocacy cause. Through their voices, we explore the profound impact SMA has on the lives of individuals and their families, igniting the flames of their advocacy journey.
But this episode is not just about the challenges they face; it's a celebration of their resilience and their unwavering commitment to making a difference. We dive into the diverse mediums they utilize, from heartfelt messages to the simple act of sharing posts, and how these seemingly small actions have a ripple effect that reaches far and wide.
Join us as we uncover the inspiring goals they're striving to achieve within the SMA community and beyond. It's a testament to the fact that you don't need to be a loud and proud voice on the front lines to contribute to a cause. Every message, every share, every act of support matters.
This episode is a call to action, an invitation to be part of something bigger than ourselves, and a reminder that even the quietest voices can make the most significant impact. Tune in now and be inspired by these remarkable advocates who are changing lives through their dedication and the power of social media.

#Advocacy #QuietHeroes #InspiringStories #livingWithSMA

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you would like to participate in any of our podcasts please email luis.castro@smauk.org.uk
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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