Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein Dr. Linda Bluestein
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- 健康/フィットネス
Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone with symptomatic joint hypermobility (EDS, HSD, Marfan's). Learn to optimize your hypermobile health!
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96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner
In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.
Takeaways
The way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.Shifting the mindset from seeing an injury as a disaster to viewing it as a challenge can help dancers overcome the emotional and psychological challenges of injury.Social support plays a crucial role in the recovery process for dancers.Dancers should define success in ways that are within their control, rather than relying solely on external validation.Transitions between different forms of dance or giving up dancing altogether can be challenging, and it's important for dancers to have a strong sense of identity beyond being a dancer. Consider your values and what truly matters to you in life when transitioning out of dance.Reflect on who you admire and what you admire about them to identify your own values.Acknowledge and process the grief and loss that comes with leaving a dance career.The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete.Developing mental skills and self-awareness is crucial for dancers and beneficial for everyone.
Chapters ➡
00:00 Introduction
00:54 Introducing Dr. Chelsea Pierotti
01:13 Coping with Injuries
03:38 Coping Mechanisms
06:34 The Influence of Childhood Experiences
08:29 Developing Resilience
09:48 Transitioning from Dance
12:11 The Role of Pain
13:09 Challenges Faced by Hypermobile Dancers
13:23 Supporting Dancers through Challenges
17:49 The Importance of Social Support
18:43 Grief and Loss of a Dance Career
20:34 Developing Resilience and Coping Strategies
24:57 The Importance of Values
27:52 Shifting the Dance Culture
29:25 Coping with Career Shifts
33:22 Positive Coaching Approach
35:55 Developing Mental Skills
36:51 Applying Mental Skills to Life
37:24 The Importance of Self-Awareness in Dance
38:25 Mindset: Controlling the Controllables
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Learn about Dr. Pierotti:
https://chelseapierotti.com
https://instagram.com/dr.chelsea.pierotti
#Dancers #Dance #Injuries #Transitions #Grief #MentalSkills
#Hypermobility #Podcast #B -
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.
Takeaways
Integrative medicine takes a holistic approach to health, focusing on achieving overall well-being rather than just managing symptoms.Pain management should involve a comprehensive care plan that includes movement, education, nutrition, sleep, psychosocial support, modalities, medications, and supplements.Understanding pain neuroscience can help patients reframe their perception of pain and explore non-pharmacological strategies for pain relief.Nutrition plays a crucial role in reducing chronic pain and inflammation, and a whole-food, plant-based diet is recommended.Modalities such as acupuncture and manual therapies can provide effective pain relief and should be considered as part of a comprehensive pain management plan. Developing healthy movement habits is crucial for optimal movement.Heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi can provide pain relief.Managing diet and reducing mast cell activation can help alleviate stress response.Laser therapy, ozone injections, and shockwave therapy may be effective for pain management.Caution is needed when considering the use of medications and supplements.Interventional pain management should be approached with strict criteria and careful consideration.Regenerative medicine shows promise but requires further research and careful selection of providers.
Chapters ➡
00:00 Introduction to Dr. Heather Tick
02:05 Understanding Integrative Medicine
07:41 Redefining Pain Management
10:31 The Importance of Education in Pain Care
12:58 The Role of Nutrition in Pain Relief
21:53 Exploring Different Modalities for Pain Relief
53:56 Impact of Habits on Movement
55:11 Benefits of Tai Chi
56:34 Connective Tissue and Movement
57:37 Role of Mast Cells in Stress Response
58:10 Effectiveness of Laser Therapy
01:00:35 Usefulness of Ozone Injections
01:02:03 Effectiveness of Shockwave Therapy
01:03:13 Overprescribed and Underutilized Medications
01:03:44 Importance of Stopping Medications
01:04:32 Impact of Proton Pump Inhibitors
01:05:37 Role of Gut in Producing Neurotransmitters
01:06:34 Importance of B Vitamins and Coenzyme Q10
01:17:26 Evaluation of Interventional Pain Management
01:19:16 Risks of Steroid Injections
01:21:26 Appropriate Use of Regenerative Medicine
01:25:30 Determining the Expertise of Medical Professionals
01:31:28 Differentiating Flares from New Problems
01:33:48 Challenges of IV Infusions and Regenerative Medicine
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this -
94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used.
Takeaways
Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.Chapters ➡
00:00 Introduction
01:22 Background and Interest in Hypermobility
11:56 Neurological Interest and Stroke Recovery
16:23 Traditional Physical Therapy Approaches
25:24 Importance of Bracing and Supports
39:18 Feet and Ankle Support
40:28 Pelvis Support
43:32 Neck Braces
51:46 Dispensing DME and Bracing
56:56 Carrying Products in the Clinic
01:02:59 Final Thoughts and Resources
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability
Bendy Bodies's Amazon Page
Eclipse Cervical Collar - Thuasne USA
https://www.ehlers-danlos.com/echo/
Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge
https://www.tamingthezebra.org/
Hypermobility/Ehlers-Danlos Syndrome Educational Handouts
#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind -
93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more.
Takeaways
The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.
Chapters ➡
00:00 Introduction and Background
01:58 Motivation for Writing the Book
03:28 Challenges in Managing EDS and HSD
06:08 Different Types of Hypermobility and Connective Tissue Disorders
07:35 Approaching Physical Therapy for EDS and HSD
09:21 Primary Treatment Approach and Identifying Key Issues
21:04 Approaching Physical Therapy with Overlapping Problems
22:48 Non-Linear Path of Physical Therapy
31:01 Modifying Movement for Gentle Exercise
31:21 Addressing Deconditioning and Weakness
35:13 Neural Rehabilitation and Muscle Firing
36:09 Steps to Successful Strengthening
40:18 Expanding the Toolkit for Physical Therapy
43:13 Approaching Stabilization and Alignment
56:32 Hypermobility Hacks
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Virtual book event sign up
https://www.tamingthezebra.org
http://www.elevationwellness.co/
www.goodhealthphysicaltherapy.com/clinic-staff/
www.medbridge.com/heather-purdin-physical-therapy
https://www.olagrimsby.com/courses-page/
https://www.naiomt.com
https://feldenkrais.com
https://counterstrain.com
https://frequencyspecific.com
https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/
#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD -
92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.
Takeaways
Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.Open communication with the physical therapist and realistic expectations are essential for success.
Chapters ➡
00:00 Introduction to Dr. Lillian Holm
01:15 What can physical therapy do for people with symptomatic joint hypermobility?
04:19 Reasons why physical therapy may not lead to expected outcomes
09:09 How to find the best possible physical therapist for EDS and HSD
11:58 Misconceptions about physical therapy for joint hypermobility
21:25 Approach for people who don't like to exercise
25:41 Resetting the boom and bust cycle
35:23 Metrics for measuring success in physical therapy
50:18 Progress and Setbacks
52:47 Balancing Stretching with Strengthening
56:22 Starting to Walk Again
58:12 Physical Therapy for Scoliosis
01:01:04 Resources and Information
01:02:23 Hypermobility Hacks
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Learn more about guest, Dr. Lilian Holm:
https://www.lilianholm.com/
https://www.instagram.com/hypermobilitydoctor/
https://www.facebook.com/HypermobilityD
Read her guest blog post for the Hypermobility MD website:
https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you
#RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD -
91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much more.
Takeaways
Hand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands. Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.
YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.
Chapters
00:00 Introduction and Overview
01:38 Difference between Occupational and Physical Therapy
04:44 Common Reasons for Hand Pain in Connective Tissue Disorders
09:53 Approach to Hypermobility in Hands
12:46 Strengthening Hands with TheraPutty
20:55 Strengthening Hands without Overdoing It
21:27 Reasons Traditional Therapies May Not Work for Hand Pain
24:08 Low Profile Hand Support Options
28:23 Ring Splints and Insurance Coverage
38:34 Ring Splints and Plastic Splints
40:33 Hand Exercises for Different Age Groups
42:33 Avoiding Strain and Hyperextension
45:21 Tips for Traveling with Hand Problems
47:51 Challenges of the Medical System for Chronic Pain
51:22 Hand Pain with Writing
53:52 Hand Pain and Numbness in Sleep
56:16 Thumb Pain and De Quervain's Tendonitis
59:17 Cubital Tunnel Syndrome
01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)
01:06:14 Decuervain's Tendonitis
01:09:17 TFCC Tear
01:13:32 Trigger Finger
01:17:31 Differentiating Trigger Finger from Subluxation
01:18:38 Pulley Injuries in Rock Climbers
01:19:25 Hypermobility Misdiagnosis
01:20:46 Hypermobility Hacks
Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority! 🧬🔬🦓
Resources:
Learn more about guest, Corinne McLees here:
https://www.handcoachcorinne.com/
Check out the items mentioned in episode 91 here:
https://amzn.to/49FkaGY
Check out the Bendy Bodies Amazon Shop here:
https://www.amazon.com/shop/hypermobilitymd
Links to other products:
https://www.silverringsplint.com/
https://www.evabellejewelry.com/
https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne
#HandPain #HandProblems #HandWeakness #WristPain
#BendyBodiesPodcast #BendyBuddy #HypermobilityMD