Living with Long covid Julie

On this episode, I have a lovely guest, Shannon is a secondary school teacher from Perth, Western Australia. Shannon was working in an Australian university when she fell under the government vaccine mandate during the pandemic. Subsequently Shannon had an adverse reaction to the vaccine, and for the last 14 months has been living with vaccine injury induced Long Covid. 
Shannon has had to give up her dream job, losing her work contracts and permanent job role. 
Shannon has a two year old daughter and has struggled to maintain some normality in her family life, for her young daughter, Shannon has a very supportive husband but misses the life she once knew. 
Shannon has researched and searched to find treatments, therapeutics and/or support to help improve her health. Finding solitude within support groups and my podcast. 
Shannon speaks openly abut the vaccine mandate and how this made her feel, the medical gaslighting she has experienced since her vaccine injury and the lack of empathy following the acute phase of illness. Shannon wanted to be a guest on the podcast to raise awareness of vaccine injury and be a voice for those who feel silenced. I thank Shannon, and hope this episode is impactful and helpful, as always please take care. 
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website

On this episode I am fortunate to have a guest; David Osborn is a health and safety consultant. David specialist area is hazardous substances, he became involved with health and safety concerned with the pandemic in January 2021, in the middle of the second wave, David is involved with the covid public inquiry through being a member of the Covid airborne transmission alliance (CATA).
David and I talk about PPE (personal protective equipment) what this is and what it is not, the difference between FFP3 mask and alternatives versus a basic surgical mask, which David explains is not PPE.
We discuss the lack of RIDDOR (Reporting of injuries, diseases and dangerous occurrences regulations) completed in the work place for frontline workers being infected by the virus. David has completed a blog which includes a form that can be completed and sent to your employer to request a RIDDOR is completed, David explains this is not time limited and therefore this can still be done and would help those living with Long Covid for any future support, David likens this to the armed forces compensation scheme. You can find the link to this below and is worth completing.
We discuss CATA involvement with the covid and inquiry and much more.
I hope this is a useful podcast, as always please take care.

This blog contains the documents David discussed which can be completed to raise a RIDDOR and also send to your local MP:

Forgotten héros - the sequel:a blog and resources from David Osborn
https://www.pslhub.org/learn/coronavirus-covid19/questions-around-goverment-governance-on/forgotten-heros-%E2%80%93-the-sequel-a-blog-and-resources-from-david-osborn-r9277/
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website

It is a privilege to have a  guest join me on the podcast; Oonagh Cousins is a professional athlete living with Long Covid. Oonagh made the difficult decision during Christmas 2022 to retire from her rowing career and from her place on the British rowing team. 
Oonagh talks openly with me about her journey with Long Covid, the impact of her symptoms and trying to rehab with her old club ULBC before rejoining the British rowing team in September 2020.
We talk about the sterotypes of Long Covid and the difference in Oonagh's experience, due to her being an athlete. Oonagh talks openly about her Long Covid journey, and her loss and the experience of loss everyone has in different ways with Long Covid. 
Oonagh talks about her return to exercise following a year and a half of rest and recovery, Oonagh explained her return to exercise was not graded exercise and she worked with a physiologist to workout what was possible. Unfortunately Oonagh was then diagnosed with Dysautonomia and eventually she experienced a relapse. 
We talk about Oonagh's decision to leave her rowing career and her thoughts for the future among much more. I thank Oonagh for joining me on the podcast and hope you enjoy this episode, as always take care. 
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website

On this episode of the podcast I discuss the term "brain fog" and if this is appropriate when talking about neurological impairment in Long Covid. I discuss research and two papers which explain neurological complications with Long Covid and other post viral conditions. Cognitive dysfunction is scary, experiencing the loss of words, forgetting full conversations, moments in your life. Cognitive dysfunction effects many of our systems and evokes a multitude of associated symptoms.
I also discuss how cognitive impairment is often suggested by medical professionals, as being a mental health condition, anxiety/depression rather than being acknowledged as cognitive dysfunction. This is detrimental to any treatment or therapies required for either/or cognitive dysfunction or mental health. It is imperative that further research is undertaken, and medical professionals have extended training, on the multi complex condition Long Covid is and how to appropriately address and treat the associated symptoms that effect the person, physically, cognitively, emotionally and mentally. I hope you enjoy this podcast and always please take care.

Nature reviews microbiology - Hannah. E. Davies et el
https://www.nature.com/articles/s41579-022-00846-2
National Library of medicine - Brain fog as a long-term sequela of covid 19
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9685075/
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website

This episode of the podcast was difficult to record. I worked so hard to achieve my nursing qualification with the aim to work and look after patients within the NHS. I had aspirations, aims to continuously develop my nursing knowledge and experience. To deliver optimum care and support to patients and their families.
Facing a pandemic may have been unprecedented times however this does not excuse the ill prepared approach that was undertaken from the onset. The risk placed upon so many frontline workers, people lost their lives and millions now live with a long term disability/condition.
That is only one part of the journey, as subsequently those very frontline workers including myself are losing their jobs. This is not being reported freely, the treatment of NHS staff, carers and other frontline workers is underhand and inexcusable.
I am aware while under contract workers are muted, however I have lost my job, I no longer have a contract (or an income) so I am no longer muted. I speak openly about my journey to losing my job, the lack of support or empathy.
I repeat several times because it is relevant, I was made redundant, we are 50k nurses short in the UK and I lost my job, without good reason. The irony is also in my job title, Nursing recruitment project lead, it is incomprehensible. I hope you find this episode useful, please share far and wide so we can highlight what is going on within the workforce. Even if it saves one person from losing their job and educates employers that is worthwhile.
As always, thank you for listening and take care.

https://amp.thegaurdian.com/society/2023/mar/26/nhs-england-staff-shortages-could-exceed-570000-by-2036-study-finds
https://www.nursingtimes.net/news/global-nursing/nurse-shortage-branded-a-global-health-emergency-23-03-2023/
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website

On this episode of the podcast, I had the pleasure of talking with the founder and CEO of The Visible App, Harry Leeming.
If you haven’t downloaded the app the link is below, after listening to the podcast I am sure you will want to have this useful tool. Harry explains the app, how it monitors the HRV (heart rate variability) and HR (heart rate) along with self reported information. The app can then provide information and a pattern which can support you to understand when the body is at baseline, under stress or at risk of being under stress, which is a great tool for identifying potential crashes/relapse. Allowing the user to adapt, pace and try to avoid crashes/relapse.
Harry explains the app is constantly being improved and added to and gives an insight into the future of Visible. Which is exciting, you will definitely want to hear the future plans.
Harry also shares his own journey with long covid and how this led to the development of the App.
I hope you enjoy this episode and as always take care. See you on the next podcast. 
Harry’s links:
https://www.instagram.com/visible.health/
https://twitter.com/visible_health
https://twitter.com/HarryLeeming
http://makevisible.com/blog
My Links:
https://linktr.ee/joulest
https://twitter.com/julieTa58407536
https://www.facebook.com/livingwithlongcovid/
https://www.instasgram.com/julietaylor9545
https://amzn.eu/d/9v9MP4v
https://amzn.eu/d/1QVK8zn - Return to work planner
https://amzn.eu/d/a1Safxc - well-being planner
https://www.julie-t.com/ - Julie Taylor life coaching website