HAE Speaks

US HAEA
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  • EVERY TWO MONTHS
HAE Speaks

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

  1. 31 OCT

    Episode 50: Innovations in HAE with KalVista

    This month's episode of the HAE Speaks podcast spotlights the innovative strides KalVista is making to improve care for people within the HAE community. ​It will offer insights into KalVista’s dedication to the HAE community by addressing unmet needs in HAE management and an overview of their clinical development program. Join hosts Nicole Sweeny, Chief Commercial Officer and Michael Smith, Senior Vice President of Development as they are interviewed by Linda, a Person Living with HAE. Thank you to KalVista for sponsoring this episode!

    23 min

  2. 20 AUG

    Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop Attacks

    As a rare condition, understanding the root cause of Hereditary Angioedema (HAE) is crucial for improving patient management and care. On this episode of the HAE Speaks podcast, doctors Raffi Tachdjian, MD, MPH and Jay Kashkin, MD, dive deep into the critical role of factor XIIa on the HAE pathway. For more information, please visit www.haea.org. We would like to thank CSL Behring for sponsoring this episode!

    28 min

  3. 5 AUG

    Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders

    In this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our regional leaders. These individuals play a crucial role in advancing our advocacy efforts, ensuring that every voice is heard and that access to care remains a top priority. Join us for this inspiring episode as we highlight the remarkable work of our regional leaders, Cedrick, Pamela, and Kate, and the profound impact of advocacy within the HAEA community! For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

    21 min

  4. 29 MAY

    Episode 47: US HAEA National Summit Ask the Experts Q&A

    Did you miss it? Tune in to our latest podcast episode as we bring you highlights from the Ask the Experts Q&A session at the 2023 US HAEA National Summit in Orlando, Florida. In this episode, members of the US HAEA Medical Advisory Board address pressing questions and provide invaluable insights into the challenges and advancements in the field of Hereditary Angioedema (HAE). Listen in on this informative and enlightening discussion! For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

    48 min

  5. 1 APR

    Episode 46: My Cross-Country Trip Across the United States to Raise HAE Awareness

    This month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics and heartfelt efforts while traveling through twenty states, fundraising, and spreading awareness for HAE. For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

    20 min

  6. 5 FEB

    Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk

    In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake Nation, Minnesota!  For more information, please visit www.haea.org. A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

    11 min

  7. 19/12/2023

    HAE, the holidays and you. Navigating the holiday season with HAE

    Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE. For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠ This episode is brought to you by our sponsor: ⁠BioCryst Pharmaceuticals, Inc.

    7 min

  8. 30/11/2023

    Episode 44: A word from the HAE Community

    2023 was a busy year for the HAE community.  Listen in as community members share their highlights of 2023. For more information about Hereditary Angioedema please visit ⁠⁠⁠HAEA.org⁠⁠⁠ Thank you to our sponsors: ⁠⁠⁠BioCryst Pharmaceuticals⁠⁠⁠ ⁠⁠⁠Kalvista Pharmaceuticals⁠⁠⁠ ⁠⁠⁠Takeda⁠

    11 min
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About

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

Information

  • Creator
    US HAEA
  • Years Active
    2020 - 2024
  • Episodes
    54
  • Rating
    Clean
  • Copyright
    © 095617
  • Show Website
    HAE Speaks

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