NGPODCAST NGPOD GLOBAL

On today's episode Marcus speaks to Caitlin Clark, a Registered Dietitian about supporting the care of her Dad, about their experience before, during and following a RIG (Radiologically Inserted Gastrostomy) placement.

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We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement. 

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Website: www.ngpodglobal.com 

Twitter: https://twitter.com/NGPODGLOBAL 

Facebook: https://www.facebook.com/NGPodGlobal

Linkedin: https://uk.linkedin.com/company/ngpod-global-limited

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Marcus’ Social Links: 

Twitter: https://twitter.com/MarcusNGPOD1

Linkedin: https://www.linkedin.com/in/marcusineson/

The Nil By Mouth Foodie was founded in 2020 by passionate chef Loretta and professional photographer Amy who teamed up to create a unique platform combining plant based gluten free recipes, sharing Loretta's life story and educating on living with multiple chronic illnesses.

On this week's episode of the NGPODCAST we welcome our first celebrity guest, Loretta Harmes AKA the Nil by Mouth Foodie. Loretta is no longer able to eat or drink and is fed through a nasogastric/nasojejunal tube and a Pickman line through her heart. Despite this she has not let it come between her love and passion for cooking that she developed from a young age.

Loretta's story to diagnosis went viral and in April the BBC wrote a story on the Nil By Mouth Foodie's relentless journey. You can read the full story here https://www.bbc.co.uk/news/stories-56688582

Links

BBC New's Story - Nil by Mouth Foodie: the Chef that will never eat again

https://www.bbc.co.uk/news/stories-56688582

Website http://www.thenilbymouthfoodie.com 

Overnight oats that Marcus tried to recreate http://www.thenilbymouthfoodie.com/tiramisu-overnight-oats/

The Nil By Mouth Social Links

Instagram https://www.instagram.com/the.nil.by.mouth.foodie/

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About NGPod Global

We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.

Website: www.ngpodglobal.com

Twitter: https://twitter.com/NGPODGLOBAL 

Facebook: https://www.facebook.com/NGPodGlobal/ 

Linkedin: https://www.linkedin.com/company/ngpo... 

Marcus’s Social Links:

Twitter: https://twitter.com/MarcusNGPOD1 

Linkedin: https://www.linkedin.com/in/marcusine...

About Georgie
Georgie Adams joins us from Royal Devon & Exeter NHS Trust to discuss this from a nutriional perspective as her trust has recently migrated to EPIC, a fully digital electronic patient record system.

Georgie Is currently Lead Clinical Nurse Specialist - Nutrition Support & intestinal Failure Service at Royal Devon & Exeter NHS Trust and is also Media and Communications Officer for the National Nurse Nutrition Group (NNNG).

Time Stamps
01:46 You have recent experience of implementing EPIC, how did you feel when the decision was made to transition to EPIC in your Trust?

03:50 Was it relatively straightforward for you to transition over to a fully digital patient record system?

11:35 With hindsight, do you have any tips for other people or Trusts that are about to go through the implementation?

16:15 You've been through all of that preparation and what it was like on 'Go Live' day, what was it like in the period immediately after starting the new system and again is there anything you would say to prepare people for Day 1 and beyond?

22:14 Now you are using the system what are the benefits you are seeing as a multi-disciplinary nutrition support team?

24:01 Is there anything else that has changed from a multi-disciplinary team perspective?

25:52 Putting your NNNG hat on, what do you think the opportunity for Electronic patient record systems are for Nutrition support teams to support and enable more uniform delivery of care nationally?

29:26 As a leader in a Trust have you been able to customise EPIC dashboards so far and how is it working for you so far? Georgie explains what the EPIC system dashboard is like from here device and the wealth of information provided about a patient

33:35 You mentioned a virtual conference for the NNNG, what are the plans for this year and how can people get involved?

36:50 If someone listening isnt a member of the NNNG, why should they join and HOW do they join?

Links
Georgie Adams's Social Links

Linkedin https://www.linkedin.com/in/georgie-georgina-adams-716148105/

Twitter https://twitter.com/georgieadams47

Royal Devon and Exeter Social Links

Website https://www.rdehospital.nhs.uk

Twitter https://twitter.com/RDEhospitals

NNNG (NATIONAL NURSE NUTRITION GROUP) Links

Their new shiny website https://nnng.org.uk

Membership registration info https://nnng.org.uk/join-us/

Twitter https://twitter.com/NNNGUK

Linkedin https://www.linkedin.com/company/national-nurses-nutrition-group/

More information can be found on the EPIC system here: https://www.epic.com/software

This weeks episode is part of the NGPODCAST® partnership with PINNT to support their #LetsTalkAboutHAN campaign, by talking to people that use Artificial Nutrition  This week we are joined by Leanne Goodlad who is 22 years old and from the Shetland Islands. She is a university student studying for a law degree at Dundee University   Leanne has been using enteral feeding through a nasogastric tube and then a nasojejunal tube since 2019.

Time Stamps  

01:40 Can you tell us how you came to be on enteral feeding?   

03:55 You've been using NG/NJ tubes now for 18 months is it the plan to use tubes long term?  

05:40 whats it like using an NJ all the time? Are there any issues?   

09:38 It must be a shock when you woke up and was told during sedation you kicked him in the face!?  

10:52 When you were placing tubes on yourself did you do the pH test to determine placement?   

11:34 You mentioned about other issues with your feeding tube with people quick to judge you on what your feeding tube is for?   

13:49 You said you are trying to move to overnight feeds, are you hoping that you will feel less encumbered with that arrangement?  

15:49 Leanne talks about her jobs at university and the issues she had not being able to go back to work in her old job at a supermarket due to the timing of her feed   

21:25 Leanne and Marcus talk about how the majority of celebrations and university events are centred around food and drink and how difficult it is not being able to take part  

25:48 are you going back to university to finish your final year?   

27:14 How has PINNT helped you since you have been a member?

This weeks episode is part of the NGPODCAST® partnership with PINNT to support their #LetsTalkAboutHAN campaign, by talking to people that use Artificial Nutrition  We are joined by Don Colley, a PINNT member who uses enteral  nutrition via a gastrostomy to deal with his nutrition and hydration needs.   Don has been treated for GI problems since he was 14, which for him means before the NHS even existing, as he is 90 years old. Despite this, Don has had a very interesting and varied life and he has always been a problem solver, he continues this with his enteral feeding by designing and 3D printing solutions to the problems he is facing.

Nichola Crust is a National Investigator at the Healthcare Safety Investigation Branch, Registered General Nurse in the NHS 28 years and also a GenerationQ fellow.   



Nichola has worked at a strategic level in a variety of healthcare settings spanning primary and secondary care.  Her roles have included professional nurse leadership and mentoring of nursing teams, mobilisation of new services including service and workforce redesign, and training and education in incident investigation. Nichola has developed clinical governance systems in both primary and secondary care, established systems for identifying risks and has worked collaboratively with national bodies relating to healthcare. Nichola has extensive teaching experience and specialist understanding of supporting patients and families through the investigation process. Her key qualities are empathy, ability to build rapport and ability to influence. Before joining HSIB, Nichola was a Head of Nursing, Quality and Safety for the NHS Leicester, Leicestershire and Rutland Alliance.   



Nichola joined the Healthcare Safety Investigation Branch (HSIB) in March 2017 as a National Investigator. She works closely with patients and their families and carers, healthcare staff, trusts, hospitals and other healthcare providers. Nichola was the HSIB representative on the CQC Never Events Thematic Review expert advisory group. The National Safety Investigator role interested her because it has a focus on leadership and quality improvement and Nichola has a real desire and enthusiasm for leading and influencing improvement work which will directly impact on patient safety. Nichola has completed the Health Foundation’s GenerationQ leadership and quality improvement programme and holds an MSc in Leadership (Quality Improvement). Nichola continues to meet with her Action Learning Set following completion of the GenerationQ programme. Nichola reflects on the benefits of Action Learning Sets as a way of reflecting and learning from real life problems and our actions from what happens to us, and around us. They are an opportunity to ask difficult questions, discuss sensitive issues and allow time to question, understand and reflect, to gain insights and consider how to act in the future, sharing learning in a supportive environment.



LINKS   

Link to HSIB report on the Placement of nasogastric tubes  https://www.hsib.org.uk/documents/268/HSIB_Placement_of_nasogastric_tubes_Report_V07.pdf Link to HSIB website  https://www.hsib.org.uk/investigations-cases/placement-nasogastric-tubes/final-report/ 

HSIB Social Links 

Linkedin: HSIB https://www.linkedin.com/company/healthcare-safety-investigation-branch/

Nichola Crust https://www.linkedin.com/in/nichola-crust-1164a121/  

About NGPod Global 

We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.  ------------------------- 

 Website: www.ngpodglobal.com  

Twitter: https://twitter.com/NGPODGLOBAL  

Facebook: https://www.facebook.com/NGPodGlobal/  

Linkedin: https://www.linkedin.com/company/ngpo...  

SUBSCRIBE to our YouTube Channel: https://youtube.com/channel/UC7SARs_5...​

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Marcus’s Social Links:  

Twitter: https://twitter.com/MarcusNGPOD1 

yLinkedin: https://www.linkedin.com/in/marcusine...