The One in a Million Baby

Tessa Prebble
  • 5.0 (8)
  • KIDS & FAMILY
The One in a Million Baby

This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.

  1. Education: Ep07 with Denise Astill

    23/04/2018

    Education: Ep07 with Denise Astill

    Denise Astill is the founder of FACS, an organisation set up to support and raise awareness for Foetal Anti-Convulsant Syndrome. Her twin daughters were born with the funding and qualify for ACC funding. But she knows that many families miss out on this vital funding.

    28 min
  2. Education: Ep 06 with Carla McNeil

    08/03/2018

    Education: Ep 06 with Carla McNeil

    Carla McNeil comes to this conversation as a mother, an educator and now a professional advocate for children with dyslexia in her role at Learning Matters. In this episode she talks about what she sees as the key issues in the classroom for teachers and learners when there is a learning difference present.

    54 min
  3. Education: Ep 05 with Kerry Hodge

    01/03/2018

    Education: Ep 05 with Kerry Hodge

    Kerry Hodge and her family were dreading the new school year without the necessary supports for her son, Felix. In this episode she talks about the struggle to get new supports and how she feels lucky, but really it shouldn't be about luck, these kinds of supports should come standard.

    24 min

  4. 26/02/2018

    Episode 30: Paula Tesoriero - New Zealand's Disability Rights Commissioner

    Paula Tesoriero is New Zealand's Disability Rights Commissioner. In this episode she talks about what she intends to do in the role and how she came to terms with her own disability caused by amniotic band syndrome before she was born.

    34 min
  5. Education: Ep04 with Tansy Sayers

    16/02/2018

    Education: Ep04 with Tansy Sayers

    People buy houses in specific zones for the schools they offer their children, but when you have a child with learning disabilities and complex needs in New Zealand, you may have to move entire cities just to get your child an equitable education. This is the story of Tansy Sayers, her son Charlie, and their move from the Wairarapa to Wellington to get Charlie the education he deserved and needed.

    24 min
  6. Education: Ep 03 with Beth Armstrong

    05/02/2018

    Education: Ep 03 with Beth Armstrong

    Beth Armstrong struggled to find equitable education for her daughter Molly. They tried one school after another, and despite some valiant efforts on the part of the schools and teachers, it wasn't until she reached high school, where there was a dedicated unit for students with disabilities and complex needs that Molly started to flourish.  In this episode Beth tells her journey of trying to find equity for Molly in a system which doesn't give many options.

    32 min
  7. Education: Ep 02 with Rebekah Corlett

    26/01/2018

    Education: Ep 02 with Rebekah Corlett

    Rebekah Corlett is a fierce advocate for disability rights and equity in education. She does this on behalf of her daughter Sophia, but also on behalf of other children and teens in New Zealand who aren't getting a fair shot in the education system.

    18 min

  8. 23/01/2018

    Episode 29: Pierce and Nicole - life with Moebius Syndrome

    At 20 weeks pregnant, doctors told Nicole and her husband Ben that something was wrong with their child's brain. When Pierce was born he struggled to breath, and at six weeks he had a tracheostomy. But it wasn't until Nicole googled facial paralysis when Pierce was 6 months old that they discovered he had Moebius Syndrome. This episode, released for the 24th of January, Moebius Syndrome Awareness Day, tells their story.

    56 min
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5
out of 5
8 Ratings

About

This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.

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