20 episodes

When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong.

What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey.

We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living with CF to help to paint a well-rounded vision of what living with Cystic Fibrosis.

WTCF! A Cystic Fibrosis Podcast What The CF! A Cystic Fibrosis Podcast

    • Health & Fitness
    • 5.0 • 1 Rating

When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong.

What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey.

We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living with CF to help to paint a well-rounded vision of what living with Cystic Fibrosis.

    Episode 18: CFNZ Lisa Burns

    Episode 18: CFNZ Lisa Burns

    Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know that they are there for everyone. Listen to end to hear an exclusive fundraiser coming up from Lisa for Sweatember!




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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 33 min
    Episode 17: Wrestler

    Episode 17: Wrestler

    Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold’ Steve Austin’s Broken Skull. It’s an inspiring conversation and he’s a very unique and ambitious person. We’re proud to have spent time learning more about his amazing life story so far.


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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 29 min
    Episode 16: Hospital

    Episode 16: Hospital

    Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure

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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 28 min
    Episode 15: Bella Powell

    Episode 15: Bella Powell

    Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her.

    Following on from our last episode with Patrick Gower who broke the Trikafta story here in NZ, Bella shares her side of the story – her childhood in hospital, facing declining health in her teens and then becoming the face of the CF awareness and Trikafta campaign in New Zealand, to her journey working in some of the biggest and best theatrical productions in Australia.

    I can not thank Bella enough for her honesty in what is an often difficult conversation that brings back lots of memories, both good and bad. What comes through loud and clear is her love and admiration for Sir Bob and all that he has given her. She articulates it all with poise, authenticity and positivity. Thank you Bella xx

    Love the podcast? Support us through buymeacoffee.com/wtcfpod

    ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes the UK) so visit zoono.com today for this fantastic offer!


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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 1 hr 10 min
    Episode 14: Journalist, Patrick Gower

    Episode 14: Journalist, Patrick Gower

    Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living with Cystic Fibrosis.

    This is a highly emotive interview and Paddy was very generous with his time. He shares how his experience getting to know the NZ CF community has changed his life and what it was like to finally be able to announce that Trikafta had been proposed to be funded in NZ from April 2023. We acknowledge that not all people with CF can take or will be eligible for Trikafta. Please ensure you go to CFNZ for all official announcements and details. Tissues at the ready for this one. Enjoy!

    ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes the UK) so visit zoono.com today for this fantastic offer!

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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 54 min
    Episode 13: Back to School

    Episode 13: Back to School

    Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well as managing trips to camp and hopes for the future.

    ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes UK) so visit zoono.com today for this fantastic offer!


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    Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

    • 44 min

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