MyeConversations by Myeloma Australia

Myeloma Australia
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MyeConversations by Myeloma Australia

Welcome to MyeConversations. Myeloma Australia’s podcast series. Hosted by our expert Myeloma Support Nurses, in MyeConversations, we chat to people living with myeloma, interview experts in the field and deliver educational material on elements of this specialty area. This podcast aims to support, inform and empower those living with myeloma, their family, friends and health care professionals. If you have a question or would like to suggest a topic to be discussed please email nurses@myeloma.org.au

  1. 12/31/2023

    S04 E22 -.Bispecific T Cell Engagers- A US Experience

    We are joined by special international guest, Dr Adam Cohen. In this episode Dr Cohen talks about the new kids on the block, Bispecific T Cell Engagers.

    15 min

  2. 11/30/2023

    S04 E21 - A memoir with a difference- recovery, rediscovery and rebuilding

    EJ Furphy sits down with Sandra Russell, author of The Feeling of Cancer. This memoir gives a deeply personal and honest account of her diagnosis of myeloma and the coping mechanisms she has adopted over the years. Sandra has drawn on her professional role as a psychotherapist to explore the different feelings she had and how to make sense of her experiences. Disclosure:In this episode Sandra guides us through her emotional response to treatment including some complications she experienced du...

    35 min

  3. 10/31/2023

    S04 E20 - How myeloma impacts different body systems and strategies to keep people well on and off therapy

    In this episode Hayley Beer sits down with Donna Catamero, Nurse Practioner and Director of Myeloma Translational Research at The Mount Sinai in New York and member of the International Myeloma Foiundation Nurse Leadership Board. Hayley and Donna discuss how myeloma impacts different body systems and strategies keep people people well on and off therapy. Topics discussed include, bone, pain, kidneys, blood clots, peripheral neuropathy, GI, exercise, steriods, infections and travelling.

    32 min

  4. 10/02/2023

    S04 E19 - Treatment approvals process explained

    In this episode Sandy Roberts sits down with Ann Single from The Patient Voice Initiative.The Patient Voice Initiative (PVI) is a collaboration between patients (or health consumers), researchers and industry working towards improving the patient voice in the Australian health system. Ann is the coordinator for and a member of its management committee and advisory committee. Ann has over 20 years’ experience in this space. Sandy Roberts, Myeloma Australia’s Ambassador, has received many ...

    42 min

  5. 05/31/2023

    S03 E18: CAR-T cell therapy- A US experience

    Hayley Beer, Manager Programs and Services chats to Dr Tom Martin and Professor Simon Harrison at the Blood Conference. In this episode we hear about Dr Martins experiences in using CAR-T cell therapies in patients living with myeloma and the new and emerging therapies that are avaliable.

    27 min

  6. 04/30/2023

    S03 E17: Understanding MGUS, Smouldering Myeloma and Myeloma

    In this episode of MyeConversations we talk to international guest Dr Shaji Kumar. Dr Kumar is an expert in plasma cell dyscrasia. We will learn more about the differences between MGUS, Smouldering Myeloma and Myeloma.

    19 min

  7. 03/31/2023

    S03 E16: Younger Persons Pt2

    Part 2, Geoff chats further to Louise about his advocay roles, networking with his community, funding a research trial, advocating for himself and finding the services that he needs and finally self refection after his diagnosis of myeloma as a younger person.

    33 min

  8. 02/28/2023

    S03 E15: Younger Persons Pt1

    Part 1, In this episode we hear from Geoff Nyseen about his diagnosis of myeloma when he was 40 years old. Geoff talks to Louise Darmody about navigating the diagnosis, his children and family, work and dealing with relapse.

    27 min
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About

Welcome to MyeConversations. Myeloma Australia’s podcast series. Hosted by our expert Myeloma Support Nurses, in MyeConversations, we chat to people living with myeloma, interview experts in the field and deliver educational material on elements of this specialty area. This podcast aims to support, inform and empower those living with myeloma, their family, friends and health care professionals. If you have a question or would like to suggest a topic to be discussed please email nurses@myeloma.org.au

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