Special Ed Rising; No Parent Left Behind

Mark Ingrassia
Special Ed Rising; No Parent Left Behind

This former Special Ed classroom teacher is on his own with a microphone, to share some of the magic he's learned in his 36+ years in the field. Stories, strategies, and a true grasp for what life can be like for parents and caregivers of Disabled children are waiting here! Witnessing, first hand, your challenges in the home has invigorated my desire to share what I know and to be a cheerleader for your lives and the lives of your child using mindfulness as a fulcrum to success. You are not alone and your life matters. Join me as we let go and grow together!

  1. APR 8

    "For Brady and Beyond: Gaile Valcho’s Journey of Hope, Guardianship, and Community"

    summary In this conversation, Gaile Valcho discusses the evolution of the Holly Springs Autism Acceptance Day, highlighting the importance of community engagement, police involvement, and the establishment of a nonprofit organization to support families with autistic children. She shares insights on training first responders, the significance of family dynamics, and the challenges of parenting a teenager with autism. The conversation emphasizes the need for awareness, support systems, and self-care strategies for parents. In this conversation, Gaile Valcho discusses the importance of guardianship for her son Brady, who has autism, and the steps they are taking to ensure his independence and well-being as he approaches adulthood. She emphasizes the need for families to understand the legal and medical implications of guardianship. Gaile also shares her role at the Hand Center for Autism, where she supports families and builds community partnerships to provide resources for children with autism. The conversation touches on the challenges of living with chronic illness while parenting, the significance of the spoon theory in understanding energy levels, and the need for better education and awareness in schools regarding autism. Gaile highlights the importance of community engagement and acceptance for individuals with autism and their families. takeaways The Holly Springs Autism Acceptance Day has grown significantly over the years.Police involvement is crucial for building community trust and understanding.Training first responders on autism can prevent misunderstandings in crisis situations.Establishing a nonprofit allows for more structured support and fundraising efforts.Family dynamics play a vital role in managing the challenges of autism.Self-care is essential for parents to maintain their well-being.Involving children in decision-making fosters independence and confidence.ABA therapy can be beneficial for older children with autism.Community events can enhance awareness and support for families.Creative solutions are necessary for finding time for self-care. Guardianship is crucial for individuals with disabilities as they transition to adulthood.Families should actively pursue guardianship to ensure their loved ones' rights and needs are met.Community resources and partnerships are essential for supporting families with autistic children.Events like Autism Acceptance Day foster community engagement and awareness.Living with chronic illness can complicate parenting responsibilities.The spoon theory helps in understanding energy management for those with chronic conditions.Education systems often lack the necessary awareness about autism, leading to punitive measures.Invisible disabilities are often misunderstood by the public, leading to stigma.Building relationships with community organizations can enhance support for families.Open conversations about disabilities can lead to greater understanding and acceptance. Sound Bites "You look great and I'm joking the switch""They really embraced the idea""It's one thing to have police involvement""We became a nonprofit during COVID""We need some help""You need an outlet, a healthy one""We find it really beneficial again for us""That's the promised land.""It's an amazingly fun day.""I got diagnosed with lupus over COVID.""I use the spoon theory.""There's invisible handicaps, sir.""We're in a very judgy world." Chapters 00:00 Introduction to Autism Acceptance Day 03:01 Police Involvement and Community Engagement 05:59 Training First...

    54 min
  2. MAR 31

    Fatherhood and Fragile X: David Tillman on Raising Miles and Embracing the Journey

    Show Notes In this conversation, Mark interviews David Tillman, a dedicated father of a son with Fragile X syndrome. David shares his journey as a parent, the challenges and joys of raising Miles, and the importance of community support. They discuss the impact of Fragile X syndrome on Miles' life, the significance of music and arts in education, and the need for advocacy in the disability community. David emphasizes the value of patience, understanding, and connection in navigating the complexities of raising a child with special needs. takeaways David Tillman emphasizes the importance of dad representation in discussions about parenting children with special needs.Fragile X syndrome presents unique challenges, but also opportunities for connection and joy.Community support is crucial for families navigating disabilities.Music and arts can play a significant role in the development of children with special needs.Patience and understanding are key in helping children with disabilities thrive in social situations.The Fragile X community provides invaluable resources and connections for families.Social media can help families connect with others facing similar challenges.Advocacy is essential for ensuring that the needs of children with disabilities are met.Preparing for the future involves teaching independence and life skills from an early age.Every family’s journey is unique, and it’s important to celebrate the small victories. Sound Bites "I love talking about Miles.""We can do this, Miles.""It's a beautiful vision." Chapters 00:00 Introduction to David Tillman and His Journey 02:18 Understanding Fragile X Syndrome and Its Impact 08:19 Navigating Family Dynamics and Support Systems 11:00 The Importance of Community and Connection 13:20 Music as a Bonding Tool 17:48 The Need for Arts Programs in Disability Advocacy 21:43 Advocacy and Raising Awareness 25:07 Finding Balance and Celebrating Moments 27:20 Navigating Crisis Moments 31:24 Understanding Diagnosis and Support 41:04 Building Community Connections 46:24 Advocacy and Future Planning Instagram: @xtraordinarymiles https://www.linkedin.com/in/david-tillman-phd/

    58 min
  3. MAR 24

    Managing finances and planning for the future, including special needs trusts

    Podcast Show Notes: Impact of Policy Changes on Special Needs Families Episode Overview: Welcome to today’s episode where we explore the impact of policy changes on families of individuals with disabilities. With potential cuts to Medicaid and the Department of Education, many families worry about losing access to essential services. In this episode, I break down what these changes could mean and share actionable steps you can take to protect your child's future. Please note that this information is for educational purposes and not legal advice. Key Topics Covered: Understanding how Medicaid and Medicare cuts could affect individuals with disabilitiesPotential impacts of reduced federal oversight on special educationSpecial Needs Trusts (SNTs) and how they safeguard government benefit eligibilityABLE Accounts for flexible, tax-advantaged savingsChoosing the right trustee for your child’s Special Needs Trust Special Needs Trusts (SNTs): First-Party SNTs: Funded with the beneficiary’s assets, often from settlements or inheritances. Includes a Medicaid payback provision.Third-Party SNTs: Created by family members or friends, with no Medicaid payback requirement.Benefits: Maintain eligibility for Medicaid and Supplemental Security Income (SSI) while providing supplemental support.Resources:CHOP: Special Needs Trusts OverviewNYS Bar Association: Improved Trust AdministrationMcAndrews Law Firm: Establishing a TrustInternational Bipolar Foundation: Management Models ABLE Accounts: Annual contribution limit of $18,000, with additional contributions for working individuals.Tax-free growth for qualified expenses like education, housing, and assistive technology.SSI protection for accounts under $100,000.Complements SNTs for managing day-to-day expenses.Learn more at the ABLE National Resource Center. Choosing the Right Trustee: Family Member Trustee: Offers personal insight and familiarity but may lack financial and legal expertise.Professional Trustee: Provides expertise in financial management but may have higher fees.Co-Trustees: Combines the strengths of a family member and a professional.Pooled Trusts: Managed by nonprofit organizations for cost-effective management.Evaluate factors like financial knowledge, understanding of benefit rules, and long-term commitment. Next Steps: Consult a Special Needs Attorney: Find one through NAELA or the Special Needs Alliance.Open an ABLE Account: Compare programs using the ABLE National Resource Center.Develop a Letter of Intent: Document your child’s care preferences and essential information.Consider Life Insurance: Fund a third-party SNT to provide ongoing support.Review Your Plan: Regularly revisit your financial plan to accommodate changes...

    17 min
  4. MAR 10

    $800 Billion Cuts to Medicaid and Why It Matters to Disabled Individuals

    This episode also appears on the Purge 47 podcast which is in its infancy with few followers. I feel this information is important and so I'm adding it to this podcast. Check out Purge 47 for continuing episodes related to disability politics. Podcast Show Notes: Understanding Medicaid & The Fight to Protect It Introduction Welcome to the show! Today, I'm diving into Medicaid—what it is, how it works, and why proposed budget cuts could have devastating consequences for millions of Americans with disabilities.If you or a loved one rely on Medicaid, this episode is for you. Stay tuned to learn how you can take action to protect this essential program. Segment 1: What is Medicaid? Medicaid is a government-funded health insurance program that provides free or low-cost healthcare to low-income individuals, families, seniors, and people with disabilities.It is distinct from Medicare, which serves seniors (65+) and certain disabled individuals regardless of income.Medicaid covers hospital visits, doctor appointments, prescription drugs, and long-term care, including Home and Community-Based Services (HCBS) that help individuals with disabilities live independently.Funded jointly by federal and state governments, meaning eligibility and benefits vary by state. Key Differences Between Medicaid & Medicare: FeatureMedicareMedicaidWho It CoversSeniors (65+) & some with disabilitiesLow-income individuals, children, pregnant women, elderly, and disabled peopleFundingFederal programJoint federal & state programIncome Limits?NoYes, based on financial needCoverageHospital care, doctor visits, some prescriptionsHospital care, doctor visits, prescriptions, long-term care, and sometimes dental & visionCost to PatientsMay have premiums & co-paysUsually low or no cost, some states have small co-paysLong-Term Care?LimitedYes, covers nursing homes & in-home care Who Can Have Both? Some individuals qualify for both Medicaid and Medicare, known as “dual eligibility.” Medicaid can help cover Medicare premiums and out-of-pocket costs. Segment 2: Medicaid Under Threat – Proposed Budget Cuts The U.S. House of Representatives recently passed a budget framework that proposes cutting over $800 billion from Medicaid over the next decade.Advocates warn that these cuts could:Limit access to essential health services for over 10 million people with disabilities.Reduce funding for HCBS, forcing more people into institutional care.Deepen the workforce crisis in disability services—69% of providers have already had to decline new clients due to staffing shortages.Put nursing home care at risk, affecting millions of seniors.Leave states struggling to fill the funding gap, leading to more people losing coverage. What’s at Stake? More than 700,000 people are already on waiting lists for Medicaid waivers that provide home and community-based services.Cuts could force families to become full-time caregivers, quit jobs, or lose access to critical health services.ACLU and disability rights advocates stress that Medicaid is a lifeline—not just another budget line item. Segment 3: Why This Matters Medicaid is more than just a government program—it’s a promise to protect our most vulnerable citizens.If these cuts go through, real people will lose access to care, families will face overwhelming burdens, and communities will suffer.Experts warn that Medicaid funding reductions could lead to:Over 15.9 million people losing their Medicaid or CHIP coverage by 2026.Reduced support for children, pregnant women, seniors, and people with disabilities.Longer waiting lists and fewer available...

    13 min
  5. MAR 8

    ADHD as a Superpower – Unlocking Potential and Embracing Strengths

    Episode Summary: Today, I'm flipping the script on ADHD. Instead of focusing solely on the challenges, I'm highlighting the strengths—the creativity, innovation, and unique ways of thinking that make kids with ADHD exceptional. Whether you’re a parent, educator, or someone with ADHD yourself, this episode will offer a fresh perspective on how to harness ADHD as a superpower. I'll explore the science behind ADHD and creativity, the impact of movement on cognitive performance, and how hyperfocus can be an incredible asset. Plus, we’ll discuss real-world examples of successful innovators, entrepreneurs, and leaders who have thrived because of their neurodiverse minds—not in spite of them. What You’ll Learn in This Episode: ✅ How ADHD fuels creativity and problem-solving ✅ Why movement can enhance focus and performance ✅ The power of hyperfocus and how to channel it effectively ✅ Career paths that align with ADHD strengths ✅ Inspiring stories of ADHD innovators, from historical figures to modern-day leaders Key Takeaways: 🔹 ADHD and divergent thinking: A natural connection to innovation 🔹 Hyperactivity isn’t always a distraction—it can be a tool for success 🔹 Many industries thrive on the unique strengths of ADHD minds 🔹 Embracing neurodiversity is the key to unlocking extraordinary potential Featured Research & Insights: 📖 Dr. Holly White’s research on ADHD and divergent thinking 📖 UC Davis MIND Institute study on movement and cognitive performance 📖 Dr. Ned Hallowell’s insights on hyperfocus as a "turbocharged concentration mode" 📖 Thought-provoking perspectives from Bill Gates and other neurodiverse innovators Links https://www.sciencedaily.com/releases/2015/06/150611082116.htm?utm_source=chatgpt.com#google_vignette https://www.thetimes.com/comment/columnists/article/neurodiversity-is-a-power-we-must-tap-into-2t56jj8pr?utm_source=chatgpt.com®ion=global Let’s Connect! 📩 Have thoughts on this episode? Share your experiences with ADHD as a strength! Reach out at specialedrising@gmail.com 🎙️ Subscribe to the podcast for more insights and inspiration for families of exceptional individuals. If you found this episode valuable, share it with someone who needs a fresh perspective on ADHD! Let’s change the narrative together. https://specialedrising.com/

    14 min
  6. FEB 25

    "The Unseen Heroes: Understanding and Supporting Siblings of Individuals with Special Needs"

    Podcast Show Notes Episode Sub Title: Siblings as Caregivers, Protectors, and Advocates Episode Summary: In this episode, I take a deep dive into the unique experiences of siblings of individuals with disabilities. Through my personal journey—growing up with a paraplegic uncle and later witnessing my mother’s struggles with OCD and anxiety—I explore how these experiences shape identity, relationships, and emotional well-being. Siblings of individuals with special needs often take on multifaceted roles: caregiver, protector, and advocate. These responsibilities can be both rewarding and challenging, influencing their development, career choices, and emotional resilience. We discuss the psychological impact, share real-world examples, and highlight strategies for supporting siblings on their journey. Key Topics Covered: Personal Reflections: My experiences with my uncle’s physical disability and my mother’s mental health challenges.Understanding the Sibling Experience: How children instinctively adapt to their sibling’s needs and how this shapes their identity over time.The Three Core Roles:The Caregiver: Balancing responsibility with personal growth.The Protector: Defending and ensuring the safety of a sibling.The Advocate: Speaking up for their sibling’s rights and fostering inclusion.Emotional Complexity: Exploring feelings of guilt, pride, anxiety, and responsibility.The Psychological Impact of Challenging Behaviors: Research on the potential trauma experienced by siblings.Trauma Theory & Family Dynamics: How family experiences shape long-term emotional health.Supporting Siblings with Mindful Practices: Open communication, validation, leadership opportunities, and self-care strategies.Empowerment & Identity: Helping siblings find their voice, build leadership skills, and shape their identity beyond their role as a sibling. Key Takeaways for Parents & Siblings: Create a safe space for siblings to express their emotions without guilt.Acknowledge and validate their unique experiences and contributions.Provide resources and peer support networks to help them navigate challenges.Encourage leadership and advocacy skills to empower their growth.Reinforce their individuality beyond their sibling relationship. Final Thought: “To all the siblings listening—your role in your family is important, but it doesn’t define you. You are a leader, an advocate, and a person with your own dreams and identity. And to the parents—empowering all your children ensures they don’t just survive these challenges, but thrive.” Resources Mentioned: The Sibling Survival Guide by Don MeyerSibshops: siblingsupport.org Join the Conversation: 📩 Email me at specialedrising@gmail.com 📱 Follow us on Instagram, Facebook, Tik Tok and LinkedIn 🎙️ Subscribe and leave a review on wherever you listen Tune in and let’s explore what it means to be a sibling in a world of exceptional needs.

    24 min
  7. FEB 17

    Gaming for All: Josh Boykin on Storytelling, Inclusion and Accessibility

    "Helping People Understand the World Through Games." -Josh Boykin In this conversation, Mark and Josh Boykin explore the intersection of gaming and accessibility, discussing how games can serve as tools for storytelling, empathy, and connection, particularly for children with special needs. They delve into the evolution of gaming narratives, the importance of inclusivity, and the role of parents in guiding their children's gaming experiences. The discussion also touches on the social aspects of multiplayer gaming and the future of the gaming industry in terms of accessibility and understanding. takeaways Gaming can be a powerful tool for storytelling and connection.Empathy and understanding are crucial in today's society.Parents can use gaming to connect with their children.The Xbox adaptive controller enhances accessibility in gaming.Tabletop role-playing games foster creativity and social skills.Violence in video games does not directly correlate with real-life violence.Inclusivity in gaming is essential for a diverse audience.Multiplayer games provide opportunities for social interaction.Games can help children with special needs feel included.The future of gaming should focus on understanding and connection. titles Gaming and Accessibility: A New FrontierEmpathy Through Gaming: Connecting Generations Sound Bites "Gaming is a tool for storytelling.""We need more inclusivity in gaming.""Multiplayer games offer social connections." Chapters 00:00 Introduction and Personal Updates 00:01 Exploring the Role of Gaming in Education 01:31 Connecting Games to Real-World Issues 06:21 The Importance of Empathy and Understanding 10:19 Gaming as a Tool for Parent-Child Connection 14:05 Navigating the Gaming Landscape 20:15 Games for Neurodivergent and Physically Disabled Kids 25:44 The Power of Tabletop Role-Playing Games 28:05 Communal Storytelling and Character Development 30:05 Exploring Marginalized Experiences Through Gaming 33:01 The Importance of Accessibility in Gaming 36:07 Innovations in Gaming Accessibility 38:59 The Social Component of Multiplayer Gaming 41:41 Building Trust Through Shared Interests 49:21 The Future of Gaming: Understanding and Connection You can find Josh on BlueSky at https://wallstormer.bsky.social, and for more information about Intelligame at https://linktr.ee/intelligame. You can also contact him for speaking/consulting opportunities at josh@intelligame.us.

    59 min
  8. JAN 28

    Interview with (UK) Blue Sky Autism Founder, Dr. Ruth Glynne-Owen

    In this conversation, Dr. Ruth shares her extensive background in education, particularly focusing on autism and special needs. She discusses her journey from teaching in diverse environments to establishing Blue Sky, a charity aimed at providing early intervention services for children with autism. The conversation highlights the challenges faced in the UK regarding autism services, the cultural differences in perception and support, and the importance of empowering parents in the therapeutic process. In this conversation, Dr. Ruth discusses the challenges and innovations in autism therapy, particularly focusing on the Play-to-Talk approach. She highlights the importance of legal frameworks for disability services, the role of parents in therapy, and the need for accessible services across socioeconomic backgrounds. Dr. Ruth shares transformative success stories of children who have benefited from their therapy, emphasizing the potential of every child and the importance of not giving up hope. takeaways Dr. Ruth has a diverse background in education and autism.Blue Sky started with limited resources but grew rapidly.The therapy model focuses on parent involvement and empowerment.UK autism services face significant challenges and inconsistencies.Cultural perceptions of autism differ greatly between the UK and the US.Early intervention can lead to significant progress in children.Parents often lack a clear path post-diagnosis in the UK.Funding for autism services is limited and competitive.The importance of community support for parents is emphasized.Dr. Ruth advocates for more accessible early intervention services. Legal frameworks for disability services are often inadequate.Play-to-Talk is an innovative approach to autism therapy.Parental involvement significantly enhances therapy outcomes.Training parents is crucial for effective home practice.Accessibility to therapy is a major concern for families.Children's progress can be transformative with the right support.Understanding sensory processing is key in therapy.Cultural differences impact therapy approaches and parent involvement.Economic factors can limit access to necessary services.Every child has the potential to thrive with the right support. titles Navigating Autism: Insights from Dr. RuthEmpowering Parents in Autism TherapyThe Journey of Blue Sky: A Model for ChangeCultural Perspectives on Autism SupportChallenges in UK Autism ServicesEarly Intervention: A Path to Progress Sound Bites "It's a really strange road, I know.""It's tricky in the UK.""I want to have a path.""We need to have a path.""We don't have a lot of money.""It's sad to hear.""We play and help children to talk.""We want to empower parents.""It's a cultural thing.""We try and bridge that gap.""Don't give up hope." Chapters 00:00 Introduction and Background of Dr. Ruth 04:54 The Journey to Establishing Blue Sky 11:52 Therapy and Educational Services Overview 17:58 Challenges in the UK Autism Services 23:51 Cultural Differences in Autism Perception 29:52 Empowering Parents in Autism Therapy 31:05 Understanding Legal Frameworks for Disability Services 35:05 Innovative Approaches: Play-to-Talk Therapy 39:47 The Role of Parents in Therapy 48:07 Training Parents for Effective Home Practice 56:11 Accessibility and Economic Considerations in Therapy 57:00 Transformative Success Stories from...

    57 min
4.4
out of 5
8 Ratings

About

This former Special Ed classroom teacher is on his own with a microphone, to share some of the magic he's learned in his 36+ years in the field. Stories, strategies, and a true grasp for what life can be like for parents and caregivers of Disabled children are waiting here! Witnessing, first hand, your challenges in the home has invigorated my desire to share what I know and to be a cheerleader for your lives and the lives of your child using mindfulness as a fulcrum to success. You are not alone and your life matters. Join me as we let go and grow together!

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