Rare Strides

Rare STRIDES

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健康与健身

Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

2023/03/01

Season 2 Episode 1 Duchenne Muscular Dystrophy #makerarevisible

Listen in as we hear from the Rare Leaders and Parents with their journey in Duchenne Muscular Dystrophy. #beckshelpinghands #makerarevisible #duchennemusculardystrophy #rarestrides #zebrastrong #rarediseases --- Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

48 分钟
2022/02/01

Season 1 Episode 4 Rare Wish and the Make Rare Visible Challenge

Join us for Rare Strides updates about Rare Wish and the Make Rare Visible Challenge with co-founder, Beth Nguyen. --- Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

18 分钟
2021/10/07

Season 1 Episode 3. Code Rare. What is it and how did it help her child?

Join us as we speak with Missy who is the parent of our first Code Rare participant and learn all about Code Rare. For more information about Code Rare go to our website at www.rarestrides.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

38 分钟
2021/10/06

Episode 2 learning more about Rare from a parents perspective

Season 1, Episode 2 we are speaking with Rare Strides board member Dennis who is a parent of a Rare child. He shares his experience being a parent to a child who was diagnosed with a Rare disease, the struggles and the triumphs. Tune in and dig in to learn how you can #makerarevisible. You can find out more about Rare Strides and Code Rare on our website www.rarestrides.com Like, share and follow us on social media. --- Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

24 分钟
2021/10/03

Rare Strides Season 1 Episode 1 Beth Nguyen, Founder

Rare Strides Host, Trena Myers interviews Rare Strides founder and today's guest, Beth Nguyen. Trena inquires with Beth on the reasons behind the creation of Rare Strides. Join us on this episode to learn about the building blocks of Rare Strides where we hope to "make rare visible." #rarestrides #coderare #makerarevisible --- Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

25 分钟

5 集

Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible Support this podcast: https://podcasters.spotify.com/pod/show/rare-strides/support

创作者

Rare STRIDES
活跃年份

2021年 - 2023年
单集

5
分级

儿童适宜
节目网站

Rare Strides

Rare Strides

单集

Season 2 Episode 1 Duchenne Muscular Dystrophy #makerarevisible

Season 1 Episode 4 Rare Wish and the Make Rare Visible Challenge

Season 1 Episode 3. Code Rare. What is it and how did it help her child?

Episode 2 learning more about Rare from a parents perspective

Rare Strides Season 1 Episode 1 Beth Nguyen, Founder

关于

信息