382. Rare Connections with Alex Brito

When Alex first noticed it, she was 12 years old. She thought she had something in her eye, and then suddenly she couldn’t see out of it. A few months later, she was playing softball and felt like she pulled a muscle in her neck that sent pain across her body. It took five years of misdiagnoses, with progressive blindness and paralysis, for Alex to finally be properly diagnosed. She had a rare disease called Neuromyelitis Optica Spectrum Disorder (NMOSD).

Alex joins us on the show today to share her journey with a rare disease and encourage others who are facing medical uncertainty. Today, she is the first blind woman ever to earn a yellow belt in Krav Maga and she’s a successful power lifter.

Take a listen and be sure to check out her video with Alexion Pharmaceuticals, “Rare Connections.”

The Biggest Helping: Today’s Most Important Takeaway

Have your voice heard. Really get out there and connect. Because you're not alone, there are others that are going through the journey. And just being able to share my story here with Alexion, with the movie, has been so helpful for me to be able to connect with others and grow friendships. 

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Thank you for joining us on The Daily Helping with Dr. Shuster. Subscribe to the show on Apple Podcasts or Spotify to download more food for the brain, knowledge from the experts, and tools to win at life.

Resources:

• Watch “Rare Connections with NMSOD” 

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