Parenting Children with Special Needs

Parenting Children with Special Needs

Mariel Gutierrez: Hi everyone, you’re listening to the Faith and Family podcast, a Christian family community that aims to promote Christian values for every phase of your family life. I’m Mariel Gutierrez. This week, we have two moms, each with a son born with special needs.

Maribel Aquino: Hi, my name is Maribel Aquino from Pomona, California. I have a three-year-old son named Brennan.

Acelyne Parco Sagabaen: My name is Acelyne Parco Sagabaen from Burlingame, California. My son is Jaxson, and he’s one year old.

Mariel: Acelyne’s son, Jaxson was diagnosed with Down’s Syndrome during pregnancy, and Maribel’s son, Brennan was diagnosed at birth. Down’s Syndrome is characterized by intellectual and developmental delay due to a chromosomal disorder. Despite these challenges, a growing number of people with DS live independently and are able to find employment.

Life with a special needs child

Maribel: Three words to describe Brennan. Number one, he is brave. He’s sociable and diligent. He is brave. Actually looking back, my husband and I were thinking, “There must be a reason why we named him Brennan because the meaning of this name is brave.” Brennan is sociable. He gives a hug to everyone he meets. He lights up the room with the sweetest smile. And Brennan is diligent. Until now has been receiving therapy, physical therapy, occupational therapy, and then now speech therapy. And he works so hard and he doesn’t complain.

Acelyne: Three words to describe Jaxson. Jaxson is strong, and loving, and mellow. Maribel, what’s a fear that you had when you first found out about Brennan’s diagnosis? And looking back what would you tell your old self about that fear?

Maribel: More than anything else, I feared for his health, and I feared for his life. You know, those unanticipated health issues. When we learned about his congenital heart defect, we were so scared. And looking back, what will I tell myself, I will tell myself that everything will be okay. Learn to let go and let God take control of everything. And everything will be okay. I remember where during NICU (newborn intensive care unit) days hospital stays, I kept telling myself: “Nothing God gives that we cannot handle.” I kept on repeating those words in my mind. And it helped me get through all those difficult situations.

Acelyne: I had fears of—I had a lot of fears when I found out about Jaxson’s diagnosis, like, I had fears that people wouldn’t include him or love him just because he had a disability, like, I was so scared that people would leave him out. And I also had fears of having the ability to care for a child with a special with special needs, because I  had no idea how to care for someone with special needs. I’ve never been in that situation. I also had fears of having enough time and resources because before being a mom, I felt like I had no time, or I didn’t have enough time for myself. So when I found out about his diagnosis, I kept thinking like, how am I going to take him to his appointments? How am I going to take care of him? And how do we have enough financial resources to bring him to all these specialists and doctors? I was just so scared.

And I also had fears about the future like who would take care of h