The Parkinson's Life Podcast

The Parkinson's Life Podcast
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The Parkinson's Life Podcast

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons.parkinsonslife.eu Hosted on Acast. See acast.com/privacy for more information.

  1. 20 JUN

    Apps, devices and digital support: exploring technology and Parkinson's

    In this episode, we look at the role that technology can play in supporting people with Parkinson’s.   UK-based Elaine Payne shares how she uses digital devices to help manage her Parkinson’s symptoms – and why she encourages those with the condition to connect with others in the community.  She talks to Dr Alistair Mackett, a consultant geriatrician at Addenbrooke’s Hospital in Cambridge, UK, who sheds light on some of the tools and resources available.  Joining them is Lucy Jung, CEO of technology company Charco Neurotech, who highlights the impact that digital support can have for both clinicians and people with Parkinson’s.  Together, our guests explore the challenges and opportunities of implementing technology into management strategies – and look at possible future developments in this area.  This podcast is sponsored by Charco Neurotech, the technology company behind the CUE devices – wearable medical tools designed to support movement in people with Parkinson’s. The episode represents the individual views and experiences of the podcast attendees.   For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org. If you like what you’ve heard, please rate and review – it helps make sure others can find us. Keep a lookout for our next episode and until then, take care! Hosted on Acast. See acast.com/privacy for more information.

    45 min

  2. 21 FEB

    Tackling key questions about Parkinson's and sialorrhea (drooling)

    In this episode, we focus on sialorrhea. Also known as drooling, this is a common symptom experienced by people with Parkinson’s. UK-based David Bateson, who was diagnosed with the condition in 2015, explains how sialorrhea has impacted his speech, working life and interactions with others. He is joined by Dr Francesca Morgante, a neurologist based at St George’s, University of London – who has been working with David for several years. Together, the pair tackle key questions around sialorrhea – and share insights on how to manage it. This podcast has been sponsored by Merz Therapeutics. The content of this episode was up to date and accurate at the time of recording in June 2023. The episode represents the attendees’ own opinions and experiences. This episode has been reviewed by Merz Therapeutics. Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care! Hosted on Acast. See acast.com/privacy for more information.

    32 min

  3. 29/11/2023

    How to manage 'off' periods in Parkinson's

    Following our previous episode on what to expect with ‘off’ periods in Parkinson’s, this episode focuses on potential management methods. Canada-based Barbara Salsberg Mathews, who was diagnosed with the condition in 2020, shares her personal strategies for tackling ‘off’ states and the impact these have had. She is joined by Dr Silvia Rota, an Italian neurologist and clinical research fellow who sheds light on various treatments and approaches that may be beneficial. Together, our two guests explore how different tactics can help people to take better control of their ‘off’ periods – and why open communication is key. This episode was funded by pharmaceutical company Bial. The content of this episode was up to date and accurate at the time of recording in October 2023. The episode represents the individual views and experiences of the podcast attendees. Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org. If you like what you’ve heard, please rate and review – it helps make sure others can find us. If you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care! Hosted on Acast. See acast.com/privacy for more information.

    36 min

  4. 23/11/2023

    What to expect with 'off' periods in Parkinson's

    In this episode we focus on ‘off’ periods – when Parkinson’s medication is not as effective as it should be, and symptoms become more difficult to manage.  US-based Bill Bucklew shares how his ‘off’ periods have evolved since he was diagnosed with the condition in 2012, and how they play a role in his daily life.  Joining him is Dr Valentina Leta, a neurologist based in Italy who highlights the importance of increasing awareness around this important topic.  Together, our guests explore what people should know about the different types of ‘off’ periods, how to identify them – and how they can impact people in the Parkinson’s community.  This episode was funded by pharmaceutical company Bial. The content of this episode was up to date and accurate at the time of recording in October 2023. The episode represents the individual views and experiences of the podcast attendees. Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org. If you like what you’ve heard, please rate and review – it helps make sure others can find us.   If you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care! Hosted on Acast. See acast.com/privacy for more information.

    33 min

  5. 20/04/2023

    What you need to know about apomorphine pump treatment for Parkinson’s

    In this episode, we find out what it’s like to manage daily life with an apomorphine pump. Apomorphine is a type of liquid dopamine agonist that is primarily used to treat people living with a more ‘advanced’ stage of Parkinson’s. UK-based Bob Taylor explains how the treatment has helped him adjust to his “rollercoaster” journey with the condition, since he was diagnosed more than two decades ago. Joining him is Liz Taylor, his wife, who has supported him as a caregiver throughout his experience. They talk to Dr Tove Henriksen, a neurologist from Denmark, who says that in 30 years of treating people with Parkinson’s, she has never grown tired of her work. Together, our three guests explore the challenges and potential benefits of using an apomorphine pump. This episode was sponsored by Convatec, and Tove has been paid by Convatec to provide information for this podcast. The information in this podcast is given for information purposes only and is not a substitute for advice from your doctor, pharmacist, or other healthcare professional. Opinions expressed within this podcast are those of the individuals and not necessarily representative of Convatec. Parkinson’s Life magazine is produced by Speak Media on behalf of Parkinson’s Europe, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit www.parkinsonseurope.org. If you like what you’ve heard, please rate and review – it helps make sure others can find us.  And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Keep a lookout for our next episode and until then, take care! Hosted on Acast. See acast.com/privacy for more information.

    29 min

  6. 26/05/2022

    Freezing, moving and cueing: understanding gait and Parkinson's

    In this episode, we explore gait impairment – a common symptom of Parkinson’s that can involve slowness, muscle stiffness and freezing – and how it impacts people living with the condition. Our first guest is David Little, who lives in Carlisle, UK. Having previously worked as a firefighter, David was diagnosed with Parkinson’s back in 2005. David has experienced first-hand the effects of gait impairment in his day-to-day life and says he’s keen to challenge the misconceptions that can surround the condition. He is joined by Martina Mancini from Italy, who works as an assistant professor in the neurology department at the Oregon Health & Sciences University, in Oregon, US. Martina has worked on numerous studies about gait impairment – and has also investigated the role wearable devices can play in treatment. David and Martina discuss what causes gait impairment, share advice on managing these symptoms – and explore how current research is addressing this topic. This episode was funded by Charco Neurotech, the ­­company behind CUE1 – a wearable medical device designed to help alleviate gait impairment and support movement in people with Parkinson’s. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com. If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Hosted on Acast. See acast.com/privacy for more information.

    31 min

  7. 28/04/2022

    Getting involved in Parkinson's research

    This episode explores what it means to take part in Parkinson’s research – from finding out more about clinical trials, to completing surveys about life with the condition. Our first guest is Amelia Hursey, who lives in London, UK. Amelia recently joined the European Parkinson’s Disease Association – the only European Parkinson’s umbrella organisation – as Research Manager, and is passionate about informing members of the Parkinson’s community how they can learn more about research. She is joined by Karl Wouters, based in Beerse, Belgium, who has worked in corporate communications and disease management programmes. Since being diagnosed with Parkinson’s six years ago, Karl has taken part in clinical trials – and is particularly enthusiastic about the importance of bridging the gap between researchers and patients. Also joining is Shafaq Ali, a dentist who live in West Yorkshire, UK. Diagnosed with Parkinson’s in 2019, she is currently exploring the idea of taking part in research – and is looking for options to get involved that work for her. Amelia, Karl and Shafaq discuss how people in the Parkinson’s community can find out more, explore some of the different ways of taking part in research – and share why asking questions is key. This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions. Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.com If you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Hosted on Acast. See acast.com/privacy for more information.

    45 min

  8. 14/04/2022

    Women and Parkinson's: the research gap

    This episode delves into the gender gap in Parkinson’s research. It’s estimated that three million women worldwide are living with the condition – but are their specific needs being properly addressed in scientific studies?It’s a topic that is important to our guests, Dr Annelien Oosterbaan – a physician-researcher from the Netherlands – and retired family physician Dr Soania Mathur from Toronto, Canada.Both Annelien and Soania contributed to a recent study exploring gaps in awareness about sex and gender differences in Parkinson’s. The paper, “Unmet Needs of Women Living with Parkinson’s Disease”, highlights how women’s experiences of the condition have been an “overlooked field” – and includes recommendations to help tackle the problem.In their conversation, Annelien and Soania discuss the areas they think have been neglected in Parkinson’s research – while sharing insights from their personal experiences of life with the condition.This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing using digital or innovative solutions.Parkinson’s Life magazine is produced by Speak Media on behalf of the European Parkinson’s Disease Association, the leading voice for Parkinson’s in Europe. For the latest research and information on Parkinson’s, visit EPDA.eu.comIf you like what you’ve heard, please rate and review – it helps make sure others can find us. And if you’d like to share your story with Parkinson’s Life magazine, get in touch through Facebook, Twitter or by emailing editor@parkinsonslife.eu. Hosted on Acast. See acast.com/privacy for more information.

    33 min
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About

Hosted by online magazine Parkinson’s Life and supported by Parkinson's Europe, this free monthly podcast explores the reality of life with Parkinson’s – and shares ideas on how to live well with the world’s fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons.parkinsonslife.eu Hosted on Acast. See acast.com/privacy for more information.

Information

  • Creator
    The Parkinson's Life Podcast
  • Years Active
    2019 - 2024
  • Episodes
    27
  • Rating
    Clean
  • Copyright
    © The Parkinson's Life Podcast
  • Show Website
    The Parkinson's Life Podcast

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