Endo Trauma

Jo Zay
Endo Trauma Podcast

This is a passion project to highlight the lived experienced of modern Endometriosis patients. Endometriosis patients experience systemic medical abuse. Intentional and unintentional. We experience high rates of "Sudden Adult Death Syndrome" and mental health crises with minimal explanations from the medical field. This project is aimed to explore these topics and what we can do to create a change in the system.

Episodes

  1. 13/03/2022

    Case 2- Amare "Can I cook myself?" *TW* Suicide mentioned

    Amare is the CEO and Founder of the Transition Closet.  They are also a peer advocate and admin with the Endometriosis Crisis Connection. Amare and Jojo discuss the Endometriosis Crisis Connection cases we have taken on, accidental overdoses, sudden adult death syndrome and more.  We tackle topics of EndoComa, Before and After hysterectomy, and EndoParenting.  Amare also shares an EndoVeteran secret on how to find a good doctor.  1:48- Amare Intro 2:24- Amare and EndoTrauma- Suicide, Medical PTSD, Treated like an Addict, etc 5:02- Actively Suicidal EndoFam 5:52- Our Endo Survey from Endo Crisis Connection discusses suicide 6:07- Quite the Responsibility 7:52- Hard Questions got Hard Answers 8:22- Lies and Misinformation from the Medical Community 9:04- Accidental OD's from brain fog 9:27- Honoring Fallen EndoFam 10:47- Opiates, OTC medications, Diet, Heating Pads 12:52- Can I cook myself? 13:20- Scars from Heating Pads 14:27- 3rd Degree Burns from Heating Pad 15:42- Everything Possible for Pain 18:12- Pain Management 21:02- Anchor Ad 23:00- Amare VS Spoons 22:18- EndoComa 24:02- EndoParenting 25:32- Dr's choosing Hysterectomy  27:02- Dangerous Ways Patients Relieve Pain 28:42- Excision Cancelled and Left Amare High and Dry 31:02- Low Testosterone Treatments 31:22- EndoVeteran Secret to Find Great Doctor 32:42- Amare's NonBinary Journey 34:02- Cannabis  35:42- Tolerance 37:02- Know Your Limits- Know How Much Tylenol is Safe for Your Weight and Check Every Label 37:37- Drugs.com Interaction Checker and MediSafe App 39:08- Amare's Accidental OD on Meloxicam 42:42- How or What Can ACOG Do to Benefit from Changing Endometriosis Policies? 44:14- Lost 6 organs to Endometriosis 46:12- The Transition Closet

    49 min

About

This is a passion project to highlight the lived experienced of modern Endometriosis patients. Endometriosis patients experience systemic medical abuse. Intentional and unintentional. We experience high rates of "Sudden Adult Death Syndrome" and mental health crises with minimal explanations from the medical field. This project is aimed to explore these topics and what we can do to create a change in the system.

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