SMA News & Perspectives

SMA News Today
SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

  1. #145: Carrie Manriquez, Mother of adult son with SMA

    ٢ جمادى الآخرة

    #145: Carrie Manriquez, Mother of adult son with SMA

    In episode 145, host Kevin Schaefer talks with Carrie Manriquez from Sacramento, CA. Carrie is an elementary school principal, and her 24-year-old son Ryan has SMA type 2. She talks about her experiences as a parent and caregiver, connecting with the SMA community, and helping Ryan transition to adulthood. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

    ١ من الساعات
  2. #144: Doug McCullough, Advocate and Author With SMA

    ١٩ ربيع الآخر

    #144: Doug McCullough, Advocate and Author With SMA

    In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new book about understanding disability, Doug previously worked at Johnson & Johnson Pharmaceuticals and has a background in public speaking. He talks about growing up with SMA type 3, navigating employment with a disability, and advocating for an inclusive society. Doug’s book: https://publishyourpurpose.com/books/a-billion-people-in-the-shadows-the-ultimate-1-hour-guide-to-understanding-disability/ ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

    ٥٤ من الدقائق
  3. #143: Cory Lee, Travel Blogger and Influencer With SMA

    ٧ ربيع الأول

    #143: Cory Lee, Travel Blogger and Influencer With SMA

    In episode 143, host Kevin Schaefer talks with Cory Lee from Lafayette, Georgia. A renowned expert on disabled traveling, he has visited all seven continents from his wheelchair. He runs the Curb Free With Cory Lee blog and takes part in speaking engagements around the world. Join the two as they discuss growing up with SMA, Cory’s travel origins, and his hopes for the future of accessible travel. Cory’s Instagram: https://www.instagram.com/curbfreecorylee/ Cory’s website: https://curbfreewithcorylee.com/ ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

    ٤٦ من الدقائق
  4. #142: Savannah and Will Huff, Interabled Couple

    ٢ صفر

    #142: Savannah and Will Huff, Interabled Couple

    In episode 142, host Kevin Schaefer talks with Savannah and Will Huff from Thomasville, Georgia. Savannah, who has SMA type 3, met Will in 2018. Listen in as they discuss their marriage, careers, and the intersection of married life and caregiving. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

    ٥٠ من الدقائق
  5. #141: Quinn Bucher, Theater Student With SMA

    ١٩ ذو الحجة

    #141: Quinn Bucher, Theater Student With SMA

    In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about growing up in an arts-oriented household, making theater inclusive for disabled students, and the intersectionality of being trans and having SMA. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

    ٥١ من الدقائق
  6. #140: Lucy Trevino, Academic and Advocate

    ٢٩ ذو القعدة

    #140: Lucy Trevino, Academic and Advocate

    Note: This podcast includes thoughts about suicide. If you are struggling with thoughts of suicide, please contact the Suicide Prevention Lifeline in the U.S. (988, or 988lifeline.org, available 24/7), Samaritans in the U.K (samaritans.org), or Samaritans of Singapore in Singapore (sos.org.sg). In episode 140, host Kevin Schaefer talks with Lucy Trevino from Chicago, Illinois. Lucy is passionate about academia and advocacy, and she volunteers for the organization Chicago Scholars. She discusses living with SMA Type 3, her familial relationships, and the importance of disability inclusion.

    ٣٩ من الدقائق
  7. #139: Dianna Warren, Ms. Wheelchair USA Ambassador

    ٢٨ شوال

    #139: Dianna Warren, Ms. Wheelchair USA Ambassador

    In episode 139, host Kevin Schaefer talks with Dianna Warren from Canton, Ohio. Dianna is an ambassador for Ms. Wheelchair USA, and for 32 years she ran a disability bowling league. She discusses these experiences, living with SMA Type 3, and her marriage of 44 years. ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

    ٣٨ من الدقائق
  8. #138: Nolan and Blake Shofner, Brother Entrepreneurs

    ٣٠ رمضان

    #138: Nolan and Blake Shofner, Brother Entrepreneurs

    In episode 138, host Kevin Schaefer talks with Nolan, who lives with SMA, and Blake Shofner from Princeton, Illinois. The brothers discuss their dynamic as siblings and business partners, as they are the founders of Mullet Bros Co. They also discuss the importance of humor in their lives and how Nolan’s SMA has impacted them. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

    ٣٩ من الدقائق
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