A mom's journey with 22q11.2

Kristi Allen

5.0 (2)
育儿

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

2020/06/19

Hygiene

People with intellectual disabilities are often unaware of their personal hygiene. Teaching hygiene when they’re young may be helpful.

13 分钟
2020/06/19

Black Lives Matter and 22q11.2

Just some thoughts.

20 分钟
2020/06/13

Conversations about world events with a 22q11.2 individual.

All the events happening in the world right now are really confusing for anyone, but imagine how confusing it is for an individual with intellectual disabilities. Our conversations matter. These issues can bring fear and anxiety. It's our jobs as caretakers to explain world events simply and very carefully. Our conversations with others need to be monitored because even though your child may not be the one you're talking to, they may be listening, and are trying to make sense of everything they are seeing on TV and hearing all around them.

19 分钟
2020/04/03

Season 1 finale - The Cliffhanger! 😁

It seems fitting to end this season now - when the world awaits the current coronavirus Cliffhanger. May God bless you in your journey, and know that I truly believe that God sends extra angels to protect families with special needs children.

14 分钟
2020/03/20

Train of Thought

The thinking process can be interesting, and sometimes genuinely doesn't seem to make any sense. You can respond in different ways. That's YOUR choice, and, trust me when I say that can I say that empathetically. Either you can get frustrated, or annoyed or you can find humor in it, OR if you're really feeling patient you can try to follow the train/trail of where the thought began and how it led to the verbal communication. Good luck!

14 分钟
2020/03/17

Always Thinking For Two

Thinking for two can be EXHAUSTING! I personally believe that it means we're not only amazing, we're also freaking brilliant! Here's why!

22 分钟
2020/03/12

Caretaker Guilt

A person with 22q11.2 will (most likely) not have the same level of productivity that you have or that you'd like. You may not be okay with that, but they will, and sometimes it causes guilt.

19 分钟
2020/02/26

Interview with Brooke, Sarah's sister.

Brooke is 23 years old, has her nursing degree and has a 6 month old baby. The interview got cut short, (my phone rang) but I was pretty much done. I hope something is beneficial to someone.

24 分钟

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I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

创作者

Kristi Allen
活跃年份

2020年
单集

30
分级

儿童适宜

社会与文化

社会与文化

一周一更
政治

政治

半周一更
政治

政治

2天前更新

A mom's journey with 22q11.2

Hygiene

Black Lives Matter and 22q11.2

Conversations about world events with a 22q11.2 individual.

Season 1 finale - The Cliffhanger! 😁

Train of Thought

Always Thinking For Two

Caretaker Guilt

Interview with Brooke, Sarah's sister.

评分及评论

关于

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A mom's journey with 22q11.2

单集

Hygiene

Black Lives Matter and 22q11.2

Conversations about world events with a 22q11.2 individual.

Season 1 finale - The Cliffhanger! 😁

Train of Thought

Always Thinking For Two

Caretaker Guilt

Interview with Brooke, Sarah's sister.

评分及评论

关于

信息

你可能还喜欢