RealTalk MS

Jon Strum
  • 4.7(137개의 평가)
  • 의학
  • 매주 업데이트
RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

  1. Episode 382: Revisiting Women's Health Issues and MS with Dr. Anna Shah and Dr. Rhonda Voskuhl

    2일 전

    Episode 382: Revisiting Women's Health Issues and MS with Dr. Anna Shah and Dr. Rhonda Voskuhl

    The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling and important conversations that I've had over the past year. This week, I'm revisiting two conversations I had with two experts on MS and women's health issues. MS affects women almost 3 times more frequently than it affects men, which should make understanding how MS might impact other women's health issues a priority. Unfortunately, that hasn't really been the case. The good news is we're seeing that situation change and you can expect to hear much more about MS and women's health in the coming year.    This brings me to two conversations that I had this past year when I talked with Dr. Rhonda Voskuhl and Dr. Anna Shah.    Dr. Shah is an Associate Professor of Neurology and Associate Clinic Director of Outpatient Neurology at the University of Colorado School of Medicine.   Dr. Voskuhl is the Director of the UCLA Multiple Sclerosis Program, she holds the Jack H. Skirball Chair in MS, and Dr. Voskuhl also serves as Faculty Neurologist of the UCLA Comprehensive Menopause Care Program. We have a lot to talk about! Are you ready for RealTalk MS??! Happy Holidays!  :22 This Week: Revisiting our deep dive into women's health and MS   :44 Dr. Rhonda Voskuhl discusses her research looking at why MS affects men and women differently  2:34 Dr. Anna Shah discusses how MS can affect women's health issues and how those health issues can affect MS  13:30 Share this episode  32:18 Have you downloaded the free RealTalk MS app?  32:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/382 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 382 Guests: Dr. Anna Shah, Dr. Rhonda Voskuhl Privacy Policy

    34분
  2. Bonus Episode: Understanding Healthcare Provider Burnout -- How Patients and HCPs Can Work Together to Support Each Other

    12월 19일 · 보너스

    Bonus Episode: Understanding Healthcare Provider Burnout -- How Patients and HCPs Can Work Together to Support Each Other

    This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, Dr. Mary Rensel and Amanda Montague join me to explore HCP (Healthcare Provider) burnout and patient empowerment; and we'll be taking a close look at how patients and their healthcare providers can work together to support one another. Dr. Mary Rensel is an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine and Director of Pediatric Multiple Sclerosis and Wellness at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic. Amanda Montague is a global thought leader and Chief Mission Officer at the Multiple Sclerosis Association of America. Amanda is also an active member of the MS in the 21st Century initiative, more commonly known as MS21. MS21 is a Merck KGaA, Darmstadt, Germany, initiative involving healthcare professionals, or HCPs, and patient advocates. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

    12분
  3. Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

    12월 16일

    Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

    There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that! Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the Chief Medical Officer of BeCareLink, Dr. Charisse Litchman. The FDA has designated Tolebrutinib as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS. We're sharing the details. We'll tell you where you can participate in a phase 2 clinical trial that's designed to test the efficacy of Foralumab, an investigational disease-modifying therapy formulated as a nasal spray, among adults with non-relapsing secondary progressive MS. We'll share the details of a report that provides some frustrating data about out-of-pocket costs for MS prescription medications. Dr. Alicyn Magruder reviews the risks and benefits of using off-label medications to manage MS. And we'll share the results of a study that focused on how socioeconomic status impacts disease severity among kids and teens living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: An app that can tell you if your MS is worsening   :22 FDA awards Tolebrutinib Breakthrough Therapy designation  1:04 Phase 2 clinical trial for Foralumab adds 6 additional sites  3:13 Study compares out-of-pocket costs of MS DMTs with meds for other neurologic conditions  5:55 Dr. Alicyn Magruder discusses using off-label medications to manage MS  9:51 Study analyzes the impact of socioeconomic status on disease severity in pediatric-onset MS  15:27 Dr. Charisse Lichtman explains how the BeCare MS app is changing the game and providing an important bridge to better MS care   19:52 Share this episode  30:53 Have you downloaded the free RealTalk MS app?  31:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/381 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.msif.org/webcast-clinical-trials CLINICAL TRIAL: A Study of Nasal Foralumab in Non-Active Secondary Progressive Multiple Sclerosis Patients https://clinicaltrials.gov/study/NCT06292923 STUDY: Costs Are Still On the Rise for Commonly Prescribed Branded Neurologic Medications https://neurology.org/doi/10.1212/WNL.0000000000210029 STUDY: Association of Social Determinants of Health with Brain MRI Outcomes in Individuals with Pediatric Onset Multiple Sclerosis https://neurology.org/doi/10.1212/WNL.0000000000210140 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 381 Guests: Dr. Alicyn Magruder, Dr. Charisse Litchman Privacy Policy

    32분
  4. Thriving in Cold Weather with MS with Dr. Lisa Doggett

    12월 9일

    Thriving in Cold Weather with MS with Dr. Lisa Doggett

    If you're living with MS, you've probably already learned that hot weather, hot baths, or anything that causes your body temperature to increase can quickly cause your symptoms to worsen. But winter can also be a challenging time. Less daylight, frigid temperatures, ice, and snow can all have an impact on MS. Dr. Lisa Doggett returns to the podcast with tips and strategies for enjoying winter while staying healthy, safe, and warm.  We'll also remind you that the International Progressive MS Alliance global webcast is happening tomorrow -- Dec. 11th! And we'll share the details you'll need to sign up. We'll tell you about study results from Sweden that show that experiencing serious COVID-19 makes it twice as likely that someone will develop MS. (And we'll tell you why those study results aren't as scary as they may sound!) We're sharing research that has uncovered evidence of nerve damage in the central nervous system up to 9 years before someone experiences MS symptoms. We'll tell you about a team of biomedical engineers who are creating a tiny implantable device that will warn you if your MS is worsening or if you're heading for a relapse. And if you're over 55, you're living with MS, and you have 15 minutes to spare, we'll tell you about an online survey that we hope you'll decide to participate in. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Winning against winter when you're living with MS   :22 Don't miss the International Progressive MS Alliance global webcast on Dec. 11  1:46 A study shows that serious COVID-19 doubles the likelihood that someone will develop MS  2:42 Research reveals that nerve damage can occur in the central nervous system up to 9 years before you can experience any symptoms of MS  6:13 Imagine a tiny device implanted in your arm that can alert you if your MS is worsening or you're headed for a relapse   8:48 If you're 55 years old or older and you've been diagnosed with MS, there's a survey just for you  10:56 Dr. Lisa Doggett shares tips and strategies for thriving in cold weather when you're living with MS  12:29 Share this episode  26:14 Have you downloaded the free RealTalk MS app?  26:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/380 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials STUDY: SARS-CoV-2 Infection and Risk of Subsequent Demyelinating Diseases: National Register-Based Cohort Study https://academic.oup.com/braincomms/article/6/6/fcae406/7909395 STUDY: Temporal Dynamics of Plasma Neurofilament Light In Blood Donors with Preclinical Multiple Sclerosis https://neurology.org/doi/10.1212/NXI.0000000000200335 SURVEY: If you are 55 years old or older and living with MS, please complete https://illinois.qualtrics.com/jfe/form/SV_5oM7xmdpdSphTiC Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 380 Guests: Dr. Lisa Doggett Privacy Policy

    28분
  5. Special Episode: Aging with MS with Dr. Leorah Freeman

    12월 5일 · 보너스

    Special Episode: Aging with MS with Dr. Leorah Freeman

    Disease-modifying therapies work, and, as a result, people with MS are living longer. With half the MS population over the age of 55, it's never been more urgent to understand how the process of aging impacts MS and how MS impacts the process of aging. In this special episode of RealTalk MS, Dr. Leorah Freeman discusses the many factors associated with aging with MS. This special episode of RealTalk MS is sponsored by Viatris. SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/V202 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode V202 Guests: Dr. Leorah Freeman Privacy Policy

    20분
  6. The Pros and Cons of Participating in MS Research with Dr. Kathy Zackowski and Mimi Brown

    12월 2일

    The Pros and Cons of Participating in MS Research with Dr. Kathy Zackowski and Mimi Brown

    More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research? The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, returns to the podcast to discuss the risks and benefits of participating in clinical research. We're also joined by Mimi Brown, who lives with primary progressive MS. Mimi will share her experiences as a participant in several MS research studies. We'll also remember Professor Giancarlo Comi, a true giant in the MS research community who passed away last week. We'll discuss the updated Brain Health -- Time Matters report. We'll tell you about a research collaboration between the National MS Society, Breakthrough T1D (formerly the Juvenile Diabetes Research Foundation), and the Lupus Research Alliance. And we're sharing the details about the International Progressive MS Alliance's upcoming global webcast. We have a lot to talk about! Are you ready for RealTalk MS??! Remembering Professor Giancarlo Comi  :22 This Week: Participating in MS research   3:28 Experts release the Brain Health -- Time Matters report  4:10 The National MS Society teams up with Breakthrough T1D and the Lupus Research Alliance to fund research in common mechanisms that drive autoimmunity  6:35 The International Progressive MS Alliance is hosting a global webcast on Dec. 11  9:27 Dr. Kathy Zackowski and Mimi Brown discuss the risks and benefits of participating in MS research  10:58 Share this episode  29:52 Have you downloaded the free RealTalk MS app?  30:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/379 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REPORT: Brain Health -- Time Matters https://www.msbrainhealth.org/wp-content/uploads/2024/09/Brain-Health-Time-Matters-2024.pdf VIDEO: Brain Health -- Time Matters https://www.msbrainhealth.org/launch-videos Decoding Immunity: Common Mechanisms of Autoimmunity https://decodingautoimmunity.org REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 379 Guests: Dr. Kathy Zackowski and Mimi Brown Privacy Policy

    31분
  7. An MS Care Partners Roundtable with Barbara, Marina, Matt, and Maiya

    11월 25일

    An MS Care Partners Roundtable with Barbara, Marina, Matt, and Maiya

    Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis.  November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share their insights, experiences, and lessons learned caring for a loved one with MS. You won't want to miss my conversation with Barbara, Marina, Maiya, and Matt. We have a lot to talk about! Are you ready for RealTalk MS??! Giving thanks  :22 This Week: A roundtable discussion with four amazing MS care partners   1:31 Barbara, Marina, Maiya, and Matt discuss their roles as care partners  1:58 Share this episode  33:22 Have you downloaded the free RealTalk MS app?  33:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/378 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The MS Care Partner Connection https://mscarepartnerconnection.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 378 Guests: Barbara, Marina, Maiya, and Matt Privacy Policy

    35분
  8. The Art of Hope with Lydia Emily

    11월 18일

    The Art of Hope with Lydia Emily

    There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily has channeled that energy into a book entitled, The Art of Hope: The Life and Art of Lydia Emily. Lydia Emily and her co-author, Lenlee Keep, join me this week to talk about the process of writing the book and some of the issues affecting people with MS that Lydia Emily is passionate about. We'll also tell you about study results that provide an answer to how nerve cells die in MS. We'll share results from a study that shows MS progression may not be directly connected to the number of lesions someone may have. And we'll tell you about research that provides evidence for continuing your MS disease-modifying therapy, no matter your age. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Art of Hope   :22 A study uses a novel mouse model to explain how nerve cells die in MS  2:17 Study results show that MS progression may have less to do with the number of lesions and more to do with what's happening inside those lesions  5:23 Study results provide evidence for continuing your DMT, even as you age  9:15 Artist Lydia Emily and co-author Lenlee Keep discuss The Art of Hope: The Life and Art of Lydia Emily  14:17 Share this episode  34:50 Have you downloaded the free RealTalk MS app?  35:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/377 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Remyelination Protects Neurons from DLK-Mediated Neurodegeneration https://www.nature.com/articles/s41467-024-53429-5 STUDY: Advanced MRI Measures of Myelin and Axon Volume Identify Repair in Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/ana.27102 STUDY: Impact of Discontinuing Disease-Modifying Therapies On Healthcare Utilization Among Midlife Patients with Multiple Sclerosis in the United States https://www.jmcp.org/doi/10.18553/jmcp.2024.30.11.1248 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 377 Guests: Lydia Emily and Lenlee Keep Privacy Policy

    36분
모두 보기(422개)

4.7
최고 5점
137개의 평가

소개

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

정보

  • 제작진
    Jon Strum
  • 방송 연도
    2017년 - 2024년
  • 에피소드
    422
  • 등급
    전체 연령 사용가
  • 저작권
    © Copyright 2024. All rights reserved.
  • 웹사이트 보기
    RealTalk MS

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