AiArthritis Voices 360 Talk Show

International Foundation for Autoimmune & Autoinflammatory Arthritis
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AiArthritis Voices 360 Talk Show

AiArthitis Voices 360 is produced by the International Foundation for Autoimmune & Autoinflammatory Arthritis. On Sunday, join Tiffany and her fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most.

  1. MAR 2

    Ep 107: Parenting with a Chronic Illness

    Parenting is challenging, but adding a chronic illness like rheumatoid arthritis brings unique obstacles. In this episode, co-host Eileen shares her journey of raising a child while managing RA, from coping with fatigue and pain to adjusting expectations. She’s joined by her 12-year-old son, Jacob, who offers his perspective on growing up with a parent who has a chronic illness. Together, they discuss the struggles, unexpected lessons, and ways they support each other. Whether you're a parent navigating chronic illness or looking to understand its impact on families, this episode offers insight, advice, and encouragement. Donate to Support the Show: www.aiarthritis.org/donate Episode Highlights: Eileen shares her journey of parenting with RA, from early diagnosis to raising a preteen. The biggest struggles of parenting with chronic illness, including fatigue, guilt, and daily challenges. Jacob’s perspective on having a parent with RA and how it has shaped his life. The unexpected positives—how chronic illness has taught Jacob responsibility, independence, and empathy. Practical tips for parents with chronic illness, including self-care, communication, and asking for help. Links & Resources Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp   Connect with our Cohost: Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.   Connect with Eileen: Twitter: @ChronicEileen   Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    22 min

  2. FEB 2

    Ep 106: Undifferentiated Disease - What is it & How Could a Diagnosis Affect Me?

    What does it mean to be diagnosed with undifferentiated disease (UD)? In this episode, Tiffany Westrich-Robertson, AiArthritis CEO and founder, unpacks this complex diagnosis, sharing her personal journey from being a mystery patient to receiving a UCTD diagnosis. Tiffany explains how undifferentiated disease fits into the autoimmune.autoinflammatory spectrum, its implications for treatment, and why early intervention is critical. Join us on this episode to explore what undifferentiated disease means, how early treatment can improve outcomes, and the latest research shaping diagnosis and care. Tell us YOUR undifferentiated disease story: https://bit.ly/3EfuWsT Check out our social media channels for posts about UD and weigh in Sign up for our AiArthritis Research Database, where we are studying UD at www.aiarthritis.org/database Donate to Support the Show: www.aiarthritis.org/donate Episode Highlights: Learn more about undifferentiated disease, including why it’s so important to know it can be the final diagnosis OR it could branch off to a “full blown” autoimmune or autoinflammatory disease, including one of ours that include inflammatory arthritis as a major clinical component. Either way, UD IS a real diagnosis. Explore the connection between undiagnosed “mystery patients”, an undifferentiated diagnosis, and how UCTD and other undifferentiated conditions fit into the spectrum of autoimmune and autoinflammatory diseases. Understand the importance of early intervention and how it can lead to remission and improved outcomes. Discover the role of biomarkers, precision medicine, and risk stratification in guiding treatment plans. Hear how AiArthritis is advancing research and offering resources to help patients navigate undifferentiated disease.   Links & Resources Explore more from the “Go With Us to Conferences” program: www.aiarthritis.org/conferences Early Symptoms of AiArthritis Study: https://www.aiarthritis.org/Early-Symptoms-Study Go With Us to EULAR 2023 - Ig-G4, UCTD, RMDs and the Brain: https://www.youtube.com/watch?v=1w2Ouk-ItFk&t=264s Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp   Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    22 min

  3. JAN 5

    Ep 105: 2024 Rewind: Mental Health, Navigating the Patient Journey, and Reproductive Health

    Join us for a special episode where we reflect on the top three most-listened episodes of 2024! Leila revisits these engaging conversations that resonated deeply with the AiArthritis community, covering mental health, navigating the patient journey, and reproductive health. These episodes highlight the challenges and triumphs of living with autoimmune diseases, offering practical strategies and heartfelt support. Whether you're a patient, caregiver, or ally, this roundup of impactful discussions provides valuable insights and inspiration to carry into 2025. Donate to Support the Show: www.aiarthritis.org/donate Episode Highlights: Mental Health and Autoimmune Diseases: Explore how autoimmune diseases impact mental health for patients and caregivers, including strategies to manage stress, anxiety, and emotional challenges. Discover practical self-care techniques, mindfulness practices, and tools to promote emotional resilience. Navigating the Patient Journey: Learn about the Patient Journey resource, designed to help individuals navigate every stage of their autoimmune disease experience, from diagnosis to remission. Find guidance on managing symptoms, communicating with healthcare providers, and accessing support networks. Reproductive Health and Autoimmune Diseases: Gain insights into how autoimmune diseases can affect reproductive health, including safe birth control options and the impact of medications on fertility. Learn about resources and expert advice for planning pregnancies and managing reproductive challenges. Links & Resources Explore more from the “Go With Us to Conferences” program: www.aiarthritis.org/conferences Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp   Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    40 min

  4. 12/01/2024

    EP 104: Breaking Research at ACR 2024

    In this episode, our co-hosts share key takeaways and important updates from the American College of Rheumatology (ACR) Convergence 2024. Leila, Tiffany, Cristina, and Deb discuss cutting-edge therapies, chronic pain management strategies, and groundbreaking research on conditions like lupus, Sjögren’s, and psoriatic arthritis. Join us for an insightful and empowering conversation that highlights the strides being made in the AiArthritis community.   Donate to Support the Show: https://www.aiarthritis.org/donate  Episode Highlights Discover how innovative CAR-T treatments are paving the way for remission breakthroughs in autoimmune diseases. Learn surprising insights about how obesity influences inflammation and disease progression. Get practical strategies from Stanford’s renowned self-management program to take control of your pain. Explore cutting-edge imaging techniques and therapies that offer new hope for early diagnosis and better care. Find out how menopause impacts autoimmune patients and the tools available to navigate this life stage.   Links & Resources Explore more from the “Go With Us to Conferences” program: www.aiarthritis.org/conferences Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp   Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    46 min

  5. 11/03/2024

    Ep 103: Elevating The Patient Voice

    In this episode, co-hosts Leila and Brittany dive into the power of patient voices in transforming the healthcare experience for the AiArthritis community. They bring empathy and validation to stories submitted by listeners, highlighting real struggles with insurance, pharmacy issues, and the emotional toll of chronic illness. Brittany also shares key takeaways from the recent Autoimmune Community Summit, covering practical tips for self-management, understanding the influence of environmental factors, and the importance of owning and sharing your story to drive change. This episode is packed with relatable stories, actionable advice, and encouragement for anyone navigating autoimmune challenges. Tune in for new ways to elevate your voice and join a supportive community that understands. Episode Highlights Leila and Brittany discuss the impact of elevating patient voices in the AiArthritis community. Patient-submitted stories reveal real challenges with insurance, pharmacy issues, and living with chronic illness. Key insights from the Autoimmune Community Summit highlight the importance of self-management and environmental factors. Tips on using personal stories in healthcare advocacy help patients drive meaningful change. AiArthritis’s "WTHellth" project aims to address systemic barriers in healthcare. The hosts share tools like communication aids and advocacy programs for patient empowerment.   Links & Resources Submit Your Story or Rant: aiarthritis.org/rant Patient Journey Resources: aiarthritis.org/patientjourney Advocacy Program Information: aiarthritis.org/advocacy Communication Aid for JIA Patients: aiarthritis.org/JIAcommunication Follow Our Conference Coverage: aiarthritis.org/conferences Read Our Blog for Patient Perspectives: aiarthritis.org/blog Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate  Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE   Connect with our Co-Hosts:   Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.    Connect with Leila: Tiktok: @Lupuslifestyle.lei   Brittany Murray is a dedicated AiArthritis volunteer who has been living with Psoriatic disease for over 30 years. She loves to share her story to help others with AiArthritis diseases and to assist with advocacy and education work around hot topics like prior authorization and step therapy. She also started a blog and social community called ChronicDiseaseDiary to build a community of empowerment, love and support for those with chronic diseases or caretakers of those with chronic diseases.    Connect with Brittany: ChronicDiseaseDiary

    51 min

  6. 10/06/2024

    Ep 102: Navigating the Patient Journey: From Early Diagnosis to Remission

    In this episode of AiArthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the AiArthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. Tune in to learn about AiArthritis’s new online social community and how you can contribute your story and help develop more resources for patients. This episode is perfect for patients and caregivers seeking guidance and support on their health journey.   Share your ideas on resources that we can add to the patient journey by emailing us at info@aiarthritis.org, submit your patient story on each different section of the patient journey and join our online social community! Episode Highlights A breakdown of the six stages of the patient journey and how resources are organized. Personal stories from Leila and Eileen on living with AiArthritis diseases. The importance of early diagnosis and how it affects long-term outcomes. Strategies for caregiver support and understanding comorbidities. Learn how to contribute your story or join the new AiArthritis social community. Resources & Links: Check out our patient resources: www.aiarthritis.org/patientjourney Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate  Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE     Connect with our Co-Hosts:   Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.    Connect with Leila: Tiktok: @Lupuslifestyle.lei   Eileen is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.   Connect with Eileen: ChronicEileen

    31 min

  7. 09/01/2024

    Ep 101: "Go With Us!" to EULAR 2024

    In this episode, our co-hosts bring you an exclusive look into the AiArthritis “Go With Us!” to Conferences program. We dive deep into EULAR 2024, the European Rheumatology Research Conference, where patients and co-hosts reveal groundbreaking advancements in AiArthritis research. Discover the latest on CAR-T therapy, innovative pain management tailored for patients, the role of opioids in addressing pain and fatigue, and practical strategies for battling brain fog. Gain valuable insights and practical advice from fellow patients and experts. Don't miss this episode packed with cutting-edge information!   If you're eager for more, join us for our next journey to the ACR conference in November. Visit AiArthritis.org/conferences for more details and to sign up! Episode Highlights Overview of the Go With Us to Conferences program, which allows patients to virtually join and learn from major rheumatology conferences like EULAR and ACR.  Tiffany, CEO and person living with non-radiographic axial spondyloarthritis, discusses CAR-T therapy and its potential to achieve remission in autoimmune diseases, particularly in lupus patients. Deb, AiArthritis volunteer and person living with rheumatoid arthritis, presents on patient-tailored pain management, emphasizing multi-dimensional approaches to address different types of pain. Becky, AiArthritis volunteer and person living with Sjogren’s Disease, explores the relationship between fatigue, pain, and opioids, highlighting the challenges of treating these symptoms in autoimmune patients. Leila, AiArthritis Health Education Manager and person living with Lupus Nephritis and Sjogren’s Disease, covers cognitive dysfunction (brain fog), offering strategies for managing this common but under-discussed symptom in autoimmune diseases. Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate  Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE   Resources & Links: Join the Go With Us Program for ACR in November: https://aiarthritis.org/conferences Connect with our Co-Hosts: Tiffany is the CEO at AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.   Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.    Deb Constien is a medically retired Registered Dietitian and a Representative for AiArthritis with Rheumatoid Arthritis. Deb is also on the Advisory Council for WREN- Wisconsin Research Education Network and a Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning.   Becky Hosey is an AiArthritis volunteer, a healthcare professional, and also a person living with Sjogren's disease.

    49 min

  8. 08/04/2024

    100th Episode: AiArthritis Voices 360 Highlights!

    Welcome to a milestone episode of AiArthritis Voices 360 Talk Show! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners. Episode 73: "Arthritis" Awareness - It’s Complicated! Dive into the complexities of arthritis awareness with our co-hosts as they share personal stories of delayed diagnosis and the profound impact it had on their lives. Discover why education and awareness for AiArthritis diseases are crucial in transforming patient journeys. Episode 80/81: RheumyRounds: The Good, The Bad, and The Ugly - Improving Office Visit Communication In this dynamic episode, our co-hosts are joined by Dr. Al Kim, a renowned rheumatologist, to explore the intricacies of patient-doctor communication and how it can be improved. Learn about the key elements that can enhance patient care, streamline diagnosis, and ensure appropriate treatment through effective communication strategies. Episode 90: Why Won't They Diagnose Me? Uncover the mystery patient stories shared by our co-hosts, highlighting the struggles of obtaining a proper diagnosis. This episode emphasizes the importance of access to information and relatable experiences in navigating the often complex diagnostic journey. Join us in this special 100th episode as we reflect on these powerful stories and discussions. Gain valuable insights into the significance of education, awareness, and research in the AiArthritis community. Don't miss out on this celebratory highlight reel that underscores the essential aspects of improving lives through informed conversations. Tune in and be part of the journey! And if you want to help this talk show expand to reach more people in the AiArthritis community, please donate to support us here :  https://www.aiarthritis.org/donate  Episode Highlights We revisit 3 of the most popular episode of the talk show to highlight important topics for the AiArthritis community Cohosts share their stories of delayed diagnosis and the importance of education and awareness to receive proper treatment earlier Dr. Al Kim shares about how patient-doctor communication can be improved from both the physician and patient sides.  Cohosts share stories of being a mystery patients to shed light on the diagnosis journey and help others navigate its complexities Learn how to be a part of the show and share your story!  Resources & Links: Share Your Rant Story: https://www.aiarthritis.org/rant Submit your Doctor Visit Story: https://www.aiarthritis.org/gbu Find Juvenile Communication Information Aids: https://www.aiarthritis.org/jiacommunication Submit Your Mystery Patient Story: https://forms.gle/mnM5FeS6LsLvFSiY7 Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate    Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE   AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!

    42 min
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    About

    AiArthitis Voices 360 is produced by the International Foundation for Autoimmune & Autoinflammatory Arthritis. On Sunday, join Tiffany and her fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most.

    Information

    • Creator
      International Foundation for Autoimmune & Autoinflammatory Arthritis
    • Years Active
      2019 - 2025
    • Episodes
      100
    • Rating
      Clean
    • Copyright
      © Copyright 2019 All rights reserved.
    • Show Website
      AiArthritis Voices 360 Talk Show

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