A Mama’s Xtra Love

A Mama’s Xtra Love
  • 5.0（15則評分）
  • 非營利

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

  1. 8月19日

    Small Steps, Big Impact!

    It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.

    24 分鐘

  2. 5月8日

    Q&A Part 1: Fragile X Treatments, Anxiety and more!

    Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!

    16 分鐘

  3. 3月23日

    Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

    I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!

    21 分鐘

  4. 3月14日

    The Raw Realities of Grief & More!

    Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!

    20 分鐘

  5. 2024/11/25

    A Fragile X Family’s Diagnosis Journey

    It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!

    34 分鐘

  6. 2024/07/05

    An Update on our Fragile X Journey!

    During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!

    21 分鐘

  7. 2024/07/01

    An Important Message from Talk Fragile X

    It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!

    22 分鐘

  8. 2024/05/31

    Talk Fragile X is Back with News!

    It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!

    17 分鐘
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5
（滿分 5 顆星）
15 則評分

簡介

Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

資訊

  • 創作者
    A Mama’s Xtra Love
  • 活躍年代
    2020年 - 2025年
  • 集數
    72
  • 年齡分級
    兒少適宜
  • 版權
    © A Mama’s Xtra Love
  • 節目網站
    A Mama’s Xtra Love