Best Worst Club- Endometriosis Life Best Worst Club

We’re talking a Class action investigation, an endo non profit, ending discrimination in the endometriosis community and WWEM’s huge news! On this episode our host, Mariah, is joined by Chelsea from @gettingthebetterofendo on IG. She is a fierce advocate who shares her battle to not only receive an endometriosis diagnosis but proper management. Because in today’s medical system proper management doesn’t exist. We talk about why that is and what needs to change in order for endo warriors to receive the care we deserve. Endometriosis is so often dismissed, shrugged off and thought of as “not that bad”. Chelsea talks about the brutal facts on how endometriosis can be life threatening and the warriors we’ve already lost. We keep saying something has to change but we all know its actually way past due. Chelsea is taking action into her own hands and shares how you can help her efforts! One of those ways is by signing her petition calling for a national endometriosis reform. Check it out here; https://www.change.org/p/national-endometriosis-reform-investigation?recruiter=802324150&recruited_by_id=eb797ee0-a7a5-11e7-a5ae-1b4f3222fbab&utm_source=share_petition&utm_campaign=share_petition&utm_term=9e6159361ad64118b6c28d8b6bd213cc&utm_medium=copylink&utm_content=cl_sharecopy_35231789_en-US%3Acv_8988 You can check out all the resources and Chelsea’s advocacy work on Instagram and TikTok @gettingthebetterofendo

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Disclaimer- The content you are about to hear may be difficult for some listeners. Talks of online bullying will take place. Please listen at your own discretion and remember this podcast is never meant to be taken as medical advice. If you’re experiencing bullying and need help call or text 988.
While it hurts my heart to have to record this episode, I know that it is in part my duty to do so. I love this community more than I can express and will always be thankful for the literal lifeline it's become for me. That's why I can't sit back reading messages and having conversations in my DM's with other warriors who haven't had the same experience in our community. Last week I talked to a fellow endo- warrior who was thinking of deleting their IG endo account because they experienced such an onslaught of negativity. And that is devastating!!
We need each and everyone of us, working together. The fight against endometriosis misinformation and stigma takes all of us to combat, each of our unique voices and skill. That should be welcomed with open arms, regardless of "what kind of endo advocate you are". We are all so deeply invested in this community and are understandably passionate about the cause. But let's not forget that we are all doing the best with what we know, have access to and what we believe is best for ourselves.
This is not to say that the spread of misinformation inside our community is okay, because it isn't. It's dangerous and harmful. But I am here to say that we can approach each other with kindness and empathy. We can correct information and share resources out of genuine concern instead of anger or callus. Yes, it's frustrating that we have to combat such hurdles but it isn't the fault of a fellow endo warrior and we all start somewhere on our advocacy journeys.
If you've been on your own endo journey for years now, it can be easy to forget what those first days, months and even years of advocacy and what sharing your story looked like. Most of us aren't medical professionals or endometriosis experts. But we are experts at LVING WITH endometriosis and can speak to our own experiences without wavering. There's still so much we don't know about this disease, the medical system and society don't know about this disease. That's one of the reasons why we need each of our voices, why we need fellow warriors to stay engaged in the community and to continue to share their realties. It's our jobs to make sure we create a safe environment for others to feel that can do exactly that.
If you have ever experienced bullying in the endo community and/or need someone to talk to my DM's on Instagram are always open. I might not respond immediately but I will always get back to you asap. You can also send an email to me if you'd prefer, send all emails to bestworstclub@yahoo.com
If you are interested in being on Best Worst Club podcast you can use this link to set up a time to record with host, Mariah! Currently interviews for the series It’s Not Just A Bad Period are being scheduled. But if there is something specific related to endometriosis that you would like to talk about email the show at ⁠⁠bestworstclub@yahoo.com⁠⁠
Hosted by Mariah Battaglia- Come say Hi, join the Club and our private group chat on Instagram ⁠⁠here @EndoDoula⁠⁠ You can support the podcast by leaving an honest review and sharing on social media, don't forget to tag the ⁠⁠@BestWorstClub⁠⁠If you would like to be a guest on the podcast contact our host Mariah at ⁠⁠bestworstclub@yahoo.com⁠⁠
The first annual Endo- cation Retreat is coming September 2023. Find out details first and get early bird access here. Don't forget to bookmark our website, https://www.bestworstclub.com/retreat
Follow on Instagram and say hi to me! ⁠⁠https://www.instagram.com/endodoula/⁠⁠
Follow the Club on Instagram! ⁠⁠https://www.instagram.com/bestworstclub/⁠⁠
Support the Club & help me keep making content by buying me a

Lasa Health is your digital companion for living with endometriosis and pelvic pain. As a podcast dedicated to bringing our listeners helpful and tangible tips for coping with our realities of living with this disease, this episode is exactly that! In this week's episode you will meet the founder of the Lasa Health app and hear about her own personal journey with endometriosis. Margaret took her education, experience working in health innovation and as a person with endometriosis to create this app. "Being diagnosed with endometriosis can be overwhelming, but you don't need to go at it alone! Lasa Health's mobile app will walk you through everything you need to know."

Inside the app not only will you find an extensive list of symptoms you can track but also an entire resource of evidence based and accurate information both about endometriosis and it's many co- existing conditions. As you continue to track your symptoms and use the app your virtual garden will grow, this is a super cute feature. There is even a community aspect to Lasa Health app where you can connect with other endo- warriors. This app is gender inclusive and upon set up allows you to enter in your gender as assigned at birth and the gender you identify as, something that is so needed in our community! All around we are loving this app and are excited to watch it evolve. Lasa Health was released in December of 2022 and plans continue advancing and upgrading the app. Make sure to download it before Endo Awareness Month (March) is over to experience the premium version free and opt- in to their monthly survey to continue enjoying the premium features.

iOS App: https://apps.apple.com/us/app/lasa-health/id6443507327

Android App: https://play.google.com/store/apps/details?id=com.lasahealth.appalpha

Linked-in: https://www.linkedin.com/company/lasahealth/

https://www.linkedin.com/in/margaretmelville/

Instagram: https://instagram.com/lasahealth

https://instagram.com/margaretmelville

TikTok: https://tiktok.com/@lasahealth

Twitter: https://twitter.com/lasahealth

Website: www.lasahealth.com

If you are interested in being on Best Worst Club podcast you can use this link to set up a time to record with host, Mariah! Currently interviews for the series It’s Not Just A Bad Period are being scheduled. But if there is something specific related to endometriosis that you would like to talk about email the show at ⁠bestworstclub@yahoo.com⁠

Hosted by Mariah Battaglia- Come say Hi, join the Club and our private group chat on Instagram ⁠here @EndoDoula⁠ You can support the podcast by leaving an honest review and sharing on social media, don't forget to tag the ⁠@BestWorstClub⁠If you would like to be a guest on the podcast contact our host Mariah at ⁠bestworstclub@yahoo.com⁠

The first annual Endo- cation Retreat is coming September 2023. Find out details first and get early bird access here. Don't forget to bookmark our website, ⁠bestworstclub.com⁠

Follow on Instagram and say hi to me! ⁠https://www.instagram.com/endodoula/⁠

Follow the Club on Instagram! ⁠https://www.instagram.com/bestworstclub/⁠

Support the Club & help me keep making content by buying me a coffee! ⁠https://www.buymeacoffee.com/bestworst


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Send in a voice message: https://podcasters.spotify.com/pod/show/bwclub/message
Support this podcast: https://podcasters.spotify.com/pod/show/bwclub/support

Disclaimer- The stories you are about to hear are the personal experiences of each individual and the views expressed by guests are their own. Please listen with discretion as this series contains mature content that could possibly be triggering to some individuals. Mention of depression, suicidal ideation, medical trauma, sexual assault, disorder eating and other sensitive topics may come up. Please listen at your own discretion and remember this podcast is never meant to be taken as medical advice. The stories in the It's Not Just A Bad Period Series are difficult to listen to.  And I want to keep it that way because they aren't just stories, but the harrowing realities of each warrior that is bravely taking part. Although endometriosis was first identified over 160 years ago, substantial gaps in adequately addressing this disease remains. From research being severely underfunded to outdated medical procedures still being used, this disease is a beast to live with but existing in the current medical system makes it exponentially worse! I wish I could say these circumstances only exist for a few unlucky warriors but that’s not true. This is the typical experience of an endometriosis warrior and it’s time the world hears it!

This week you'll meet Aubrey, who gives incredibly solid advice on self- advocacy through the crazy rollercoaster that is endometriosis. It's one of my favorite parts of hosting this podcast, is hearing how other warriors cope with this grueling endo life. Aubrey was a delight to talk with and I know you will end this episode feeling supported! It never cease to amaze me that we are the ones fighting this disease and yet we are so quick to show up for each other. Aubrey did just that, she showed up to share her story with you!

If you are interested in being on Best Worst Club podcast you can use this link to set up a time to record with host, Mariah! Currently interviews for the series It’s Not Just A Bad Period are being scheduled. But if there is something specific related to endometriosis that you would like to talk about email the show at bestworstclub@yahoo.com

Hosted by Mariah Battaglia- Come say Hi, join the Club and our private group chat on Instagram here @EndoDoula You can support the podcast by leaving an honest review and sharing on social media, don't forget to tag the @BestWorstClub If you would like to be a guest on the podcast contact our host Mariah at bestworstclub@yahoo.com

The first annual Endo- cation Retreat is coming September 2023. Find out details first and get early bird access here. Don't forget to bookmark our website, bestworstclub.com

Follow on Instagram and say hi to me!
https://www.instagram.com/endodoula/

Follow the Club on Instagram!
https://www.instagram.com/bestworstclub/

Support the Club & help me keep making content by buying me a coffee!
https://www.buymeacoffee.com/bestworst


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Send in a voice message: https://podcasters.spotify.com/pod/show/bwclub/message
Support this podcast: https://podcasters.spotify.com/pod/show/bwclub/support

Disclaimer- The stories you are about to hear are the personal experiences of each individual and the views expressed by guests are their own. Please listen with discretion as this series contains mature content that could possibly be triggering to some individuals. Mention of depression, suicidal ideation, medical trauma, sexual assault, disorder eating and other sensitive topics may come up. Please listen at your own discretion and remember this podcast is never meant to be taken as medical advice.

This week you'll meet Kimether and hear her unique journey and perspective as a patient and practitioner. This warrior's determination absolutely blew me away. I seriously don't know how she was capable of doing all she did through the thick of her endometriosis journey. While working as a nurse AND going through med school, Kimether started to become debilitated by pelvic & back pain along with other symptoms. She was baffled that with her medical background and community of health professionals she was still left wondering what was happening to her body. She speaks to the strange switch from practitioner to patient and how once she was on the exam table it didn't seem to matter that she herself was a medical professional. Kimether brought up so many key points about navigating the medical system and tangible tips on how to do so that I just had to ask her to come back for a part 2. So please enjoy the first part of Kimether's episode and honestly get ready to take notes cause she's bringing the self advocacy tips!!

Check out more of Kimether's content on Instagram here.
@TheRebeliousUterus

If you are interested in being on Best Worst Club podcast you can use this link to set up a time to record with host, Mariah! Currently interviews for the series It’s Not Just A Bad Period are being scheduled. But if there is something specific related to endometriosis that you would like to talk about email the show at bestworstclub@yahoo.com

Hosted by Mariah Battaglia- Come say Hi and let me know if you're interested in attending Best Worst Club Events. Join the Club and our private group chat on Instagram here @EndoDoula You can support the podcast by leaving an honest review and sharing on social media, don't forget to tag @BestWorstClub Reviews and shares help us grow more than you know.

For more resources check out our always- growing website here!
https://www.bestworstclub.com


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Send in a voice message: https://podcasters.spotify.com/pod/show/bwclub/message
Support this podcast: https://podcasters.spotify.com/pod/show/bwclub/support

Disclaimer- The stories you are about to hear are the personal experiences of each individual and the views expressed by guests are their own. Please listen with discretion as this series contains mature content that could possibly be triggering to some individuals. Mention of depression, suicidal ideation, medical trauma, sexual assault, disorder eating and other sensitive topics may come up. Please listen at your own discretion and remember this podcast is never meant to be taken as medical advice.

Let's take a look at the state of AbbVie before Orilissa hit the market and where the motives for this "ground breaking" drug for the treatment of endometriosis pain. This episode is packed full with researched- backed information that starts to paint the picture of why endometriosis is treated the way it is in the medical community. And how that’s changed since the drug Orilissa came on the market. The first FDA approved drug for the treatment of endo pain since Lupron. Which was approved for use with endometriosis in 2001. This is just the beginning of our deep dive into Orilissa. If you've been on this drug and would like to share your experience with it please email the show at bestworstclub@yahoo.com.

Sources mentioned:
Lupron FDA approval- https://www.accessdata.fda.gov/drugsatfda_docs/nda/2012/203696Orig1s000SumR.pdf
Humira Patent- https://blog.petrieflom.law.harvard.edu/2021/01/06/abbvie-humira-antitrust-patent-thicket/
Abbvie expects 1 billion- https://www.reuters.com/article/us-abbvie-orilissa/abbvie-prices-new-endometriosis-drug-at-10000-a-year-idUSKBN1KE2O3
Suicide- https://www.rxabbvie.com/pdf/orilissa_pi.pdf

If you are interested in being on Best Worst Club podcast you can use this link to set up a time to record with host, Mariah! Currently interviews for the series It’s Not Just A Bad Period are being scheduled. But if there is something specific related to endometriosis that you would like to talk about email the show at bestworstclub@yahoo.com

Hosted by Mariah Battaglia- Come say Hi and let me know if you're interested in attending Best Worst Club Events. Join the Club and our private group chat on Instagram here @EndoDoula You can support the podcast by leaving an honest review and sharing on social media, don't forget to tag @BestWorstClub


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Send in a voice message: https://podcasters.spotify.com/pod/show/bwclub/message
Support this podcast: https://podcasters.spotify.com/pod/show/bwclub/support