Chris Anselmo is the Director of Market Intelligence at the Muscular Dystrophy Association but he never envisioned becoming an advocate for a disease he never thought he'd get. After a car crash found him in the hospital on the receiving end of a random diagnosis of having extremely high creatine kinase levels, he was soon after diagnosed with Dysferlinopathy, specifically, Limb-Girdle muscular dystrophy, a rare muscle-weakening disease. No one asks to get sick but he went beast mode as a prolific blogger sharing his story and documenting the very real issues he had facing isolation, depression, anxiety, and a desire to make a difference for others like him.
NORDpod is the official podcast of the National Organization for Rare Disorders. For more information, visit https://rarediseases.org.
See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
المعلومات
- البرنامج
- تاريخ النشر١٣ شعبان ١٤٤٣ هـ في ٥:٠٠ ص UTC
- مدة الحلقة٢٨ من الدقائق
- الحلقة٢٩
- التقييمملائم