199 episodes

Are you one of the millions living with a chronic illness? Our illnesses may be very different, but we have many of the same experiences, obstacles and frustrations. We are all working for a better quality of life knowing that pain, illnesses, and limitations will be our traveling companions. My name is Annette and I'm the host of Chronic Wellness, a brief, daily, podcast where we talk about it all: sex, self-care, mental heath, loss of identity, anger, how to navigate health care and have less days that suck so hard.

I have this belief that: If health is the absence of disease, and wellness is the presence of wholeness; whether or not I'm ever "healthy" again, I can work work toward my wellness, my wholeness.

Curious? Join me where you listen to Podcasts, Monday through Friday, for a few moments of Chronic Wellness.

Chronic Wellness Annette Leonard

    • Health & Fitness
    • 5.0, 6 Ratings

Are you one of the millions living with a chronic illness? Our illnesses may be very different, but we have many of the same experiences, obstacles and frustrations. We are all working for a better quality of life knowing that pain, illnesses, and limitations will be our traveling companions. My name is Annette and I'm the host of Chronic Wellness, a brief, daily, podcast where we talk about it all: sex, self-care, mental heath, loss of identity, anger, how to navigate health care and have less days that suck so hard.

I have this belief that: If health is the absence of disease, and wellness is the presence of wholeness; whether or not I'm ever "healthy" again, I can work work toward my wellness, my wholeness.

Curious? Join me where you listen to Podcasts, Monday through Friday, for a few moments of Chronic Wellness.

    Episode 238: What Is Dermatomyositis

    Episode 238: What Is Dermatomyositis

    What are the indicators of dermatomyositis?
    The rash that goes along with dermatomyositis, while often uncomfortable if not painful, is so helpful in assisting the diagnosis. The presentation of the rash make it more identifyable.
    Inflammation of blood vessels (vasculitis) cause the muscle weakness in dermatomyositis.
    The pain and weakness tends to be symmetrical and the muscles first impacted tend to be the large muscle groups nearest to the core.
    Tasks likes rising from a seated from a position, going up stairs, lifting objects above your head, are some of the difficulties reported.
    There are no cures for any of the myositises.
    Poly and dermatomyositis are classic autoimmune diseases in that they can be relapsing/remmiting.
    Because this is an autoimmune disease, it is typical to see a rheumatologist for dermatomyositis. One might also see a dermatologist. Additionally, depending on the nerve and muscle involvement, one might also see a neurologist, and if the lungs and heart are involved, perhaps a pulmonologist and cardiologist.
    Do you or someone you know have experience with dermatomyositis?

    • 6 min
    Episode 237: Myositis Awareness Month

    Episode 237: Myositis Awareness Month

    For more information Myositis.org or UnderstandingMyositis.org
    What is myositis?
    How do they impact people?
    What are the broad categories of myositis?
    These irreversible muscle-wasting conditions are rare diseases.
    There are no drugs specifically for the inflammatory myopathies, just off-label therapies borrowed from other conditions like Crohns and Rheumatoid Arthritis.
    Do you have experiences or stories of myositis?

    • 5 min
    Episode 236: Immunosuppressing Drugs, Rituxan Part 3

    Episode 236: Immunosuppressing Drugs, Rituxan Part 3

    How do I feel after the infusion?
    What are the benefits?
    What does the muscle wasting feel like?
    With chronic pain and chronic conditions, any bit that we can carve out or reclaim is giant territory that is not ceded to our disease.
    My infusion gives me several months of positive effects. We've gauged the time of my infusions based on when effects start to wear off.
    Consider these autoimmune diseases without the benefits of modern medicine. How fortunate we are to live during a time when there are these options.
    Have you tried infusing meds? Have they worked for you?

    • 6 min
    Episode 235: Immunosuppressing Drugs, Rituxan Part 2

    Episode 235: Immunosuppressing Drugs, Rituxan Part 2

    How do I get my Rituxan treatments?
    How does prednisone impact getting an infusion?
    What are premeds and why are they important to the process?
    Because I am at a rheumatology clinic, I am with other autoimmune patients during my infusion. That is also a therapeutic part of the treatment. We learn from each other and share war stories, share tips, share the burden of living with these illnesses.

    • 6 min
    Episode 234: Immunosuppressing Drugs - Rituxan Part 1

    Episode 234: Immunosuppressing Drugs - Rituxan Part 1

    Autoimmune disease is our body fighting our self.
    Without Ig products I needed other meds online. My doctors decided on Rituxan/Rituximab.
    During the 2.5 years of IVIg/SCIg I didn't catch colds and flus.
    However, since being off IVIg, I catch any and every virus that's circulating. That was a tremendous benefit. The difference is remarkable.
    Our bodies cannot rally a defense on immunosuppressing drugs. This is so that our bodies are kept in a state that lessens the attack we are mounting on ourselves.
    Rituxan keeps my B cells from maturing. Have you taken an infusing med or been on a biologic? Leave me a comment and tell me how that's gone.

    • 6 min
    Episode 233: Trusting Myself About Treatment

    Episode 233: Trusting Myself About Treatment

    What happens when we don't agree with our doctor's recommendations?
    Do you know your body well enough that you can make decision about the best course of treatment?
    My doc in Seattle was frustrated that I couldn't/wouldn't continue with Ig products for treatment of my autoimmune cluster and pulmonary fibrosis.
    Lung transplant was going to be unlikely or at least a long shot, his job was to preserve and protect my life and I think he was afraid.
    I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness.
    Big pharma isn't testing drugs for my autoimmune cluster.
    I had learned some things about how to make decisions about what was best for me, whether or not they worked for my doctor or anyone else.
    Have you had to make these hard decisions when it comes to your care?

    • 6 min

Customer Reviews

5.0 out of 5
6 Ratings

6 Ratings

WOMI 4/5 ,

Thank you

I am so grateful for Annette - these are the voices we chronically ill need. I cannot tell you how good it feels to be seen and heard and validated and finally in community with others who are invisibly ill, like myself. Thank you for creating this space for us, Annette!!

jenjenville ,

Wisdom and insight

The wisdom and insights in these episodes will be a huge help to anyone who lives when chronic illness or loves someone who does. As a therapist I work with clients who deal with chronic illness and I have found Annette’s work invaluable. I highly recommend!

amyanaples ,

Real problems

I love these podcasts. Nice to know we aren’t alone and that things will get better. Topics that no one discusses. Thank you!

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