A podcast about traveling the special needs road and discovering the hidden gems and unique finds of a place you didn't think you would be. We share how families are doing amazing things as a result of a diagnosis, and give you a glimpse into the realities of raising children with differing needs.
Caring for the Caregiver with Rory Lawrence
This episode is all about taking care of the caregiver. Rory Lawrence, mother of a child with complex medical needs and staff member with David’s Refuge, talks with us about the organization she works for that pours into parents turned caregivers, and how she and her husband have found meaningful respite. We also talk about practical ways to weave in self-care that don’t require a sitter but can actually make a difference.
Sensory Pathway Booklet
The Intentional Family: Simple Rituals to Strengthen Family Ties
Mae Bae Fan Club - Unique Apparel for Special Kids and Those Who Care for Them
Rory’s Email - firstname.lastname@example.org
David's Refuge Private Facebook Page
Embracing Autism with Lia McCabe
For this episode, we share with you another Maryland parent and fellow autism mom, Lia McCabe, who started AutismWish.org which seeks to fulfill the wish lists of families across the country without all of the red tape of government programs. She and her husband also host a podcast called Embracing Autism, which is child focus and helps parents to understand and embrace their neurodiverse children. Give it a listen, follow, and subscribe to support their mission of helping families in the face of fear and the unknown.
We talk about:
Empathizing with sensory needs
The formation of Autism Wish and the Embracing Autism Podcast
Accepting behaviors that are harmless
How IQ testing is not designed for children who are non-verbal
Maintaining a positive perspective
Growing to understand that a diagnosis doesn't mean future dreams are gone
Autism Wish Facebook Page
Lia’s Recommended Books
More Than Words: A Parents Guide to Building Interaction and Language Skills for Children with Autism Spectrum Disorder or Social Communication Difficulties by Fern Sussman
The Reason I Jump by Naoki Higashida
Other books mentioned
Autism Breakthrough by Raun K. Kaufman
An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate and Learn by Sally Rogers
Enjoying Your Child with Leylani Cardoso
This week we chat with Leylani Cardoso, warrior parent, and mother of Sophia, her daughter with Down Syndrome. Leylani and her family helped Sophia bring her passion for food and entertaining to life by creating the YouTube Channel Cheeky Sassy Me
When Life Gets Life-y with Maura Moore
In this episode, we chat with teacher, Maura Moore, cheerleader of her students, encourager of those in her life, and developer of the Meep! Maura shares with us her vision to help those who are struggling and ways we can help too!
We talk about:
Using creativity and crafting to support others The creation of emotional support orbs Helping others who are dealing with heavy things Creating and fueling a movement A creative way to connect during the pandemic
All You Meep is Love
All You Meep Is Love Facebook Page
Meg's Favorite Cheap Crochet Hooks
A Foundation of Hope with Aimee Darby
In this episode, we chat with Aimee Darby, founder of the Eliza Hope Foundation.
We talk about:
Recognizing and savoring the important moments The devastation that is losing a child The remarkable way that Aimee has turned her grief into action A foundation built to nurture families running to multiple therapies Her come one, come all concept that serves all levels of functioning Equipping families while they are dealing with a new diagnosis Passing it on when its incredibly difficult to do so Eliza's purposes and the lessons taught in her four and a half years here The ability to celebrate other’s successes The critical importance of saying their name, and allowing their memory to live on
Seizing Joy and Grace with Tracy Umezu
The Eliza Hope Foundation
The Pinecone Collection
Custom jewelry with all proceeds benefiting The Eliza Hope Foundation:
A blog post that Aimee wrote a month before Eliza passed
Aimee’s first blog post after Eliza’s passing
Motivated to Advocate with Lauren Shillinger
In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools.
We talk about:
Finding a cause of her daughter’s epilepsy Tuberous Sclerosis Complex (TSC) Traveling to Texas for brain surgery Learning to navigate the system Turning grief and energy toward rare disease advocacy The TS Alliance and her work with the Maryland chapter Brynleigh’s Act for Seizure Safe Schools Ways to introduce legislation Giving back and finding hope The joy found in paying it forward
Families That Advocate Together Stay Together with Laura Hatcher
Changing Spaces and Creating Hope with Christina Abernethy
Maryland General Assembly - HB370
Maryland General Assembly - SB225
Find your Maryland Representatives
Kindness is Golden book
Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues
Low Intensity Support Services - LISS
Discusses topic in a “take it or leave it” fashion. No judgement or “you should do this, or you should do that...” here the way other special needs podcasts or books do.
Embracing Holland is a must for all who love a person with special needs!
Proud to share with all my family and friends: Embracing Holland podcast is AMAZING. Do you have family members or friends who are parents of children with special needs? Have a listen and then share with them. You may be able to relate or you may find a nugget of wisdom to help that friend or family member.
These two young moms have experience themselves and let you know you are NOT alone on this journey. They have resources and tricks up their sleeves that I never heard of before, and my son is 26 years old!
Listen, share, listen, share. (Those, plus love, make the world go round.) 💕
Interviews are personal and real. Life hacks and living with the Coronavirus is insightful for families that are living with a child with autism and the special challenges. That brings. While listening I found myself picking up on little hacks that I had never thought . Keep it up