Signalise: a Dazzle4Rare Podcast

Kimberly Thomas-Tague

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The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages. We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.

5 THG 1

EP39 Rare and Relevant News Stories of 2023 TL;DR and Update

Welcome to the first 2024 episode of Signalise: a Dazzle4Rare podcast! Remember, we’re now airing on Fridays. In this episode, we’re looking at your rare and relevant TL;DR for 2023 with some of the rare disease stories and news that had the most eyes on in 2023.

18 phút
3 THG 1 · NỘI DUNG TẶNG THÊM

Bonus: 2024 Podcast Schedule Change

A quick ”bonus” episode to drop to let you know that we’ll be making some scheduling changes and 2024 will hopefully fingers crossed be a year of positive changes. But first, a big thanks to our faithful listeners for tuning in today and to this bi-monthly podcast. From this month, January 2024, we’re shifting our podcast schedule to Fridays, keeping the podcast bi-monthly.

2 phút
06/12/2023

EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December

In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope.

8 phút
21/11/2023

EP36: Rare and Relevant TL;DR and an Update on ”Take Care of Maya”

Please note there are audio issues with this episode. I’ll be working to upload an improved version later on release date. In this, Kimberly shares a range of awareness events including International Epilepsy Awareness Day and World Pneumonia Day.

26 phút
08/11/2023

EP35: November TL;DR Feat. a Message for Menkes Awareness

In this episode, Kimberly shares several important awareness events happening in November.

20 phút
25/10/2023

EP34: 2023 Halloween Special: Reel Struggles On and Off Screen for Rare Heros in Media, Feat. Original Spooky Jokes by Kimberly

In this episode Kimberly talks about actors with rare or less commonly understood conditions in sci-fi and horror media. The discussion begins with Bruce Willis, who has recently been diagnosed with a rare form of dementia. She also describes three fictional rare conditions we’re all very familiar with.

25 phút
11/10/2023

EP33: Kimberly Speedruns an October Rare and Relevant TL;DR Plus Network Good News

Please come back later today for links to the articles and social media profiles Kimberly mentioned in today’s episode. We’ll be making updates and corrections as needed.

11 phút
26/09/2023

EP32: September Rare and Relevant TL;DR and Returning Guest Daniel De Fabio on Global Genes Rare Week 2023

This week, we wrap up September, share October awarenes events, and feature some of Kimberly’s conversation with Daniel De Fabio of The Disorder Channel as they discuss the recent Global Genes Rare Week in San Diego, California.

21 phút

Xem tất cả (41)

TRAILER

Signalise : a Dazzle4Rare Podcast - The Trailer

In this brief trailer, Kimberly talks about what you can expect from Signalise. You’ll also hear why Signalise, and Dazzle4Rare have been life-changing, and a life-line, for Kimberly herself and many others around the world.

17/09/2022

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9 phút

The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages. We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.

Nhà sáng tạo

Kimberly Thomas-Tague
Năm hoạt động

2022 - 2024
Tập

41
Xếp hạng

Sạch
Trang web chương trình

Signalise: a Dazzle4Rare Podcast

Signalise: a Dazzle4Rare Podcast

EP39 Rare and Relevant News Stories of 2023 TL;DR and Update

Bonus: 2024 Podcast Schedule Change

EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December

EP36: Rare and Relevant TL;DR and an Update on ”Take Care of Maya”

EP35: November TL;DR Feat. a Message for Menkes Awareness

EP34: 2023 Halloween Special: Reel Struggles On and Off Screen for Rare Heros in Media, Feat. Original Spooky Jokes by Kimberly

EP33: Kimberly Speedruns an October Rare and Relevant TL;DR Plus Network Good News

EP32: September Rare and Relevant TL;DR and Returning Guest Daniel De Fabio on Global Genes Rare Week 2023

Trailer