Imperfect Heart

Jeff Holden
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Imperfect Heart

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

  1. -6 J

    Episode 46: My Virtual Conversation With A I About Myocardial Bridges.

    I was doing some work with AI for a project and I wondered what I would find if I began a conversation about myocardial bridges. To my amazement, the responses to my questions were quite contemporary, on point for the most part and very much aware of the condition without doubt. I found the answers to be as technical as I wanted to get or as general given what I asked. The overall takeaway for me, was that there was little downside or disinformation. The entire conversation was pro myocardial bridges as we know them. If we could only get the majority of our medical community to be as receptive to the condition as our AI is, there would be far fewer people suffering from the condition and, in my opinion, far fewer deaths from cardiac arrest. We're making progress and the more our digital/virtual resources endorse the corrective procedures for a condition that is more common than other diseases like cancer and stroke, the better off we're going to be. There's a lot in the episode as we cover a lot of ground. It's one worth taking notes on if you find areas of interest. I hope the episode gives you some additional support to share with whomever you're trying to convince that what you're experiencing is real. It should also enlighten you to the capability of what AI can provide us with regard to information about myocardial bridges. It gives me tremendous encouragement to see that AI is initially very receptive to the techniques for correction of a bridge.  Here's to a future of acute awareness of MB's and to procedures and techniques to remedy them. I know one place we can go to get comfort in knowledge! Enjoy the episode.

    35 min

  2. 24/12/2024

    Thank You for Another Incredible Year of Stories and a Little Holiday Message.

    In this episode I take a moment to reflect and celebrate a year of content novelty and camaraderie in our Imperfect Heart community. From hosting 11 awesome patients who shared their personal journeys to featuring insights from 10 esteemed doctors, this episode is a testament to the strength and resilience of our community. We explored the world of unroofing surgery with top robotic surgeons and experience the detailed moments from inside the OR through exclusive videos on our YouTube channel. Each story and professional insight is a stepping stone toward understanding and advocacy for myocardial bridges and for that, I'm grateful. Our first-ever Myocardial Bridge meetup united patients from across the nation, sparking a network of support and hope. We even broke new ground with a three-part series chronicling a patient's journey from diagnosis to surgery, offering a rare, in-depth look at the procedure. An interventional cardiologist joined us to clarify the provocative test, an essential but often misunderstood evaluation for our condition. What a wonderful year it's been. I invite anyone with their own story or a recommendation for a medical professional to join our mission of raising awareness and support. Together, let's continue to shine a light on myocardial bridges and inspire each other.  Have a wonderful Christmas holiday and here's to a happy and healthy new year in 2025. If you would like to connect with me directly, my email is: jeff@hearmenowstudio.com.  I hope to hear from you.

    9 min

  3. 12/12/2024

    Episode 45: Robotic’s Revolution in Cardiac Care. Dr. Johannes Bonatti Shares Myocardial Bridge Unroofing From the Operating Room.

    This episode includes graphic video and a detailed explanation of the "unroofing procedure" from the operating room and is best when viewed on the "Imperfect Heart" YouTube Channel. In this, the third in a series on the "Vollmer Journey", we uncover the transformative potential of robotic myocardial bridge unroofing surgery as we bring you an insightful conversation with Dr. Johannes Bonatti, a pioneer in the field now practicing at University of Pittsburgh Medical Center, and David Vollmer, the patient who experienced its benefits firsthand. Hear how robotic techniques are redefining unroofing surgery, offering significant advantages over traditional methods, including quicker recovery times. David shares his remarkable journey back to full physical activity in just three months, shedding light on the decision-making process and the crucial role of provocative testing in determining the necessity of surgery. Step into the state-of-the-art hybrid operating room where technology meets surgical expertise. Dr. Bonatti reveals how the DaVinci robot enhances the precision of procedures like robotic unroofing of myocardial bridges. Gain an understanding of the importance of work on a resting heart and the process to make that happen. Additionally, explore the vital function, in detail, of the heart-lung machine in maintaining circulation during surgery, providing insights into the meticulous care involved in these advanced procedures. We'll discuss the complexities and risks of robotic heart surgery, with Dr. Bonatti as he details the nuance and novelty when compared to thorocotomy or sternotomy. We discuss the subject of myocardial bridges and their potential links to sudden cardiac events, highlighting the growing recognition of these conditions in the medical community. As we close this third episode of the series, it truly is a celebration of patient recovery and the dedication of Dr. Bonatti and his team, inspiring confidence in the future of myocardial bridge repair both robotically and traditionally. We continue to provide evidence of successful outcomes of this somewhat controversial procedure to provide hope for those with the condition and looking for solutions. To learn more about UPMC and their innovative robotic cardiac care, you can find more by cliking on this LINK You can also call the department at 412-648-6200, option 7 when prompted. CHAPTER SUMMARIES (00:00) Robotic Heart Surgery Dr. Bonatti and David Vollmer discuss the decision-making process and benefits of robotic cardiac surgery, including quicker recovery times. (15:37) Robotic Heart Surgery Robotic totally endoscopic unroofing of LAD myocardial bridge using DaVinci robot in hybrid OR with CO2 insufflation and heart-lung machine support. (35:20) Managing Risks in Robotic Heart Surgery Cardioplegia and hemostatic agents are used in robotic heart surgery, with a focus on patient safety and positive experiences at UPMC. (40:28) Myocardial Bridges and Robotic Surgery Nature's risks in cardiac surgeries, including pericarditis and atrial fibrillation, and the role of myocardial bridges and advancements in robotic technology. (52:04) Robotic Heart Surgery Success Story Successful recovery from surgery, addressing mineral deficiency and absence of AFib, with innovative approach by Dr. Bonatti at UPMC.

    58 min

  4. 04/12/2024

    Episode 44: Describing in Detail the Myocardial Bridge Provocative Test Procedure with UPMC’s Dr. Jeffrey Fowler.

    Unlock the secrets of properly understanding and diagnosing myocardial bridges with insight from Dr. Jeffrey Fowler, a leading interventional cardiologist at University of Pittsburgh Medical Center. Our conversation promises to illuminate the often perplexing process of diagnosing these cardiac anomalies and their impact on heart function. Through the lens of minimally invasive procedures and advanced imaging techniques like coronary CT angiograms, Dr. Fowler demystifies why myocardial bridges are not always the main culprits behind chest pain and the definitive testing now being done to ascertain the significance of the myocardial bridge. We're going to explore the intricate world of invasive testing, as we detail the provocative testing process used to evaluate myocardial bridges, their severity and their contribution to angina, or chest pain. Dr. Fowler explains how starting with an empiric trial of medications can lead to more invasive procedures like heart catheterization if necessary. Learn about the steps of the provocative test and the role of acetylcholine in testing for endothelial dysfunction and vasospasm, with reassurances about the safety and reversibility of these tests. This episode is our first on the detail and best practice for diagnosis of the bridge through the provocative test we've heard so much about. It's meant for the education and knowledge for both patients and professionals, enhancing understanding of the nuanced approaches in relatively rare process of diagnosis. Celebrate the spirit of collaboration among cardiology experts as Dr. Fowler shares the necessity of communication and advice. He's consulted with many others along the way including Dr. Shaw at Yale and Dr. Tremmell at Stanford, highlighting real-world case studies like that of patient David Vollmer. Join me in this compelling narrative of breakthroughs and dedication in the realm of cardiac care, and discover how ongoing advancements promise a brighter future for patients everywhere. This episode also has a video component that can be found on the Imperfect Heart YouTube channel or by clicking on the link HERE. To reach Dr. Fowler call 412-647-6000 and ask for him specifically. Or you can visit the hospital website HERE . Dr. Fowler's email is: fowlerja@upmc.edu You can learn more about the Microvascular Network in the link HERE.

    53 min

  5. 27/11/2024

    Episode 43: David Vollmer’s Journey Into the Holisitic and Alterntative Therapies. Part 1 of a 3 part series.

    When David Vollmer first felt his heart race unpredictably during a workout, little did he know it would kickstart a journey that would redefine his understanding of health. From grappling with atrial fibrillation (AFIB) and a surprising diagnosis of myocardial bridging, David's unwavering pursuit for answers led him to challenge traditional medical advice and seek holistic paths to wellness. Tune in to explore how David's story highlights the power of self-advocacy and the importance of asking the right questions when navigating complex heart issues. Join us as David recounts his relentless search for an accurate diagnosis and effective treatment options, shedding light on the emotional and physical challenges faced along the way. His experience underscores the necessity of investigating underlying causes, like mineral deficiencies, and considering alternative therapies, including hyperbaric chambers and red light therapy. Through his candid reflections, we learn about the critical balance between conventional treatments and innovative health technologies that supported his recovery and empowered his personal health journey. David's story is a powerful reminder of the importance of being an informed and proactive participant in one's health decisions. As he shares his experiences, from consulting multiple doctors to understanding medical jargon, listeners are encouraged to consider diverse treatment approaches and advocate for personalized healthcare solutions. Whether tackling heart surgery decisions or managing post-operative recovery, David’s insights offer invaluable guidance for anyone navigating similar health challenges. You can reach out to David using the links below: o Https://thevollmerjourney.com o David@thevollmerjourney.com You can follow David on social media at one of his many handles for your preference of outlets below: o Instagram: https://www.instagram.com/thevollmerjourney o Twitter: https://x.com/vollmerjourney o Facebook: https://www.facebook.com/TheVollmerJourney o LinkedIN: https://www.linkedin.com/in/david-vollmer-jr-aa33aaaa/ o Youtube: https://www.youtube.com/@TheVollmerJourney o Rumble: https://rumble.com/user/TheVollmerJourney o Truth Social: https://truthsocial.com/@thevollmerjourney CHAPTER SUMMARIES (00:00) Health Journey David's journey with AFib, his preference for holistic solutions, and his advocacy for investigating deficiencies in his health. (11:38) Health Discovery and Treatment Journey Discovering and addressing myocardial bridging, proactive health management, and integrating alternative health technologies. (16:23) Medical Decision Making Process Choosing a medical path, consulting with doctors, and importance of Stanford protocol in addressing mechanical issues. (28:17) Post-Robotic Surgery Recovery and Herbal Remedies Patient's journey at UPMC highlights importance of convenience, challenges in recovery, and use of herbal remedy. (33:23) Advocating for Personal Health Education David's holistic approach to managing AFib includes medical treatments, alternative remedies, self-advocacy, and lifestyle changes. (42:26) Advocating for Personalized Healthcare Options Navigating medical journey after diagnosis, advocating for oneself, understanding surgical options, and taking control of health journey. (46:45) Navigating Heart Surgery and Recovery Emotional and physical journey of minimally invasive heart surgery, including provocative testing, support systems, and post-operative experiences.

  6. Encore Episode: Expressing Gratitude for the Holiday with the Gratitude Psychologist, Dr. Peggy DeLong.

    26/11/2024

    Encore Episode: Expressing Gratitude for the Holiday with the Gratitude Psychologist, Dr. Peggy DeLong.

    For many of us afflicted with this condition, it's easy to get lost in the challenges of living with a myocardial bridge. Whether you've been unroofed or not, there are still a myriad of things to be thankful for and Dr. Peggy DeLong helps us get to understanding the point of gratitude. If you've already heard the episode, it won't hurt to refresh your memory on the value of being grateful and making a kind gesture to someone to show your appreciation for them. There's a visceral effect to giving that makes you feel good. Tis the season... May you have a wonderful Thanksgiving holiday from your team at Imperfect Heart.

    41 min

  7. 13/11/2024

    Episode 42: How Ben Hunt’s Heart Health was Finally Revealed and Ultimately Repaired.

    Imagine growing up on a rural desert farm, surrounded by sports and discovering pickleball before it became a sensation. That was Benjamin Hunt's life until an unexpected health crisis turned his world upside down. Ben shares his journey from an active lifestyle to facing alarming symptoms like exercise intolerance and chest pain, experiences initially dismissed by doctors. Despite leading a busy life as a teacher and coach, he found himself in a frustrating odyssey for answers, battling severe exhaustion and undiagnosed symptoms for years. Ben's relentless quest for a diagnosis unfolds as he talks about the cognitive challenges that demanded self-education and advocacy. Through sheer determination, he identified a constriction in his artery, a crucial finding overlooked by several cardiologists. His perseverance eventually led him to Professor Kofidis, whose confirmation of the need for heart surgery marked a significant turning point. This episode also highlights Ben's belief in divine inspiration, emphasizing the power of persistence, even when traditional medical avenues appear exhausted. Travel with Ben to Greece as he recounts his solo journey to recovery, filled with anxiety and hope. Alone in a foreign land for heart surgery, he found support in a local named Gregory, and technology kept him connected to loved ones back home. The "unroofing" procedure performed by Dr. Kofidis brought a renewed sense of life and joy upon reuniting with his family. Ben's story is a testament to the importance of community, faith, and prayer, encouraging us to share our unique experiences to inspire and support one another through life's unpredictable challenges. To get the documents we discuss in this episode, email me at Jeff@hearmenowstudio.com and in the subject line put "Ben's Homework". I'll get them out to you immediately. CHAPTER SUMMARIES: (00:00) Heart Health Journey Through DenialBenjamin's journey from an active lifestyle to dealing with an undiagnosed health crisis, despite multiple medical evaluations. (14:36) Personal Journey to Heart SurgeryOvercoming challenges in understanding a complex medical condition through self-education and self-advocacy, leading to successful surgery. (25:18) Recovery and Relationship RenewalA solo traveler's transformative trip for heart surgery in Greece, overcoming challenges and finding support, and returning home with gratitude and renewed appreciation for life. (37:18) Personal Journey of Faith and HealingSharing personal medical journeys highlights the uniqueness of experiences and the power of community support, faith, and gratitude.

    44 min

  8. 30/10/2024

    Episode 41: My (Your) First Meeting With a New Cardiologist Post Unroofing Surgery.

    Knowing I needed to find a cardiologist in my home community post surgery, left me a little disappointed to leave the confines of Stanford's outstanding care. After two years it seemed a good idea to reach out to see who might be the "lucky" doctor to get a patient like me. I'm pleased to say that the gentleman I was fortunate to be introduced to turned out to be very knowledgable about our condition and we had a very nice first consultation. Meeting Dr. Diwakar Lingam was a breath of fresh air as you're going to hear in this episode. His expertise offered reassurance, reminding me what a crucial role a well-informed cardiologist plays. This episode unfolds my first encounter with Dr. Lingam, a cardiologist who not only understood the complexities of our condition but also embraced the opportunity to share insights with our listeners. With his guidance, we explore what patients should seek in their healthcare providers, especially when navigating the oft-overlooked terrain of myocardial bridges. You'll hear me explain my personal medical narrative, from the initial bewildering diagnosis to the life-changing care I received at Stanford. Myocardial bridges are not just a medical anomaly but involve genetic factors and precise surgical interventions like unroofing surgery, which we dissect in our first discussion. Dr. Lingam understood the value of proper diagnosis, the role of advanced imaging techniques, and the often-missed symptoms that can complicate the path to treatment. This is a call to action for the cardiology community to bolster awareness and refine diagnostic approaches. Not many doctors would feel comfortable with a new patient, walking in with a recording device and asking to record the conversation in that very first meeting. Dr. Lingam was and I applaud him for his acceptance as this very simple gesture alone may allow this episode to be shared with other cardiologists who may not be as astute and aware of the need to treat a diagnosed MB patient differently. You can reach out to Dr. Lingam or share his contact information with a cardiologist you may want to connect with him at Roseville Cardiology Group. BIO Diwakar Lingam, M. D. graduated from Siddhartha Medical College, NTR University of Health Sciences, Vijayawada, India in 1994. He completed his residency at State University of New York (SUNY) Downstate Medical Center in Brooklyn, NY where he served as a Chief Resident of Internal Medicine. He completed his fellowship in Cardiovascular Disease from Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire. Dr. Lingam strongly believes in solid patient education to improve patient compliance with treatment and better health outcomes. He strives hard to help patients understand clearly the rationale behind all the tests, treatment choices and medications prescribed. He focuses his patient education on lifestyle changes and the value of diet and exercise in the management of many cardiac and medical issues of the patient. Dr. Lingam’s clinical interests are preventive cardiology, cardiac imaging, and cardio-oncology. He loves to help patients with cancer treatment-related cardiac issues and patients interested in preventing cardiac and vascular problems. He lives in Folsom with his wife and two children. During his free time, he enjoys biking, playing chess, and spending time with family. (00:11) New Cardiologist Discusses Myocardial Bridges Meeting a new cardiologist after myocardial bridge surgery, discussing the importance of informed and empathetic care in cardiology. (04:51) Myocardial Bridges Myocardial bridges, unroofing surgery, genetic nature, accurate diagnosis, specialized care, radiation exposure, contrast use, diabetic patients, continued research.

    29 min
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À propos

Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge. The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.

Informations

  • Création
    Jeff Holden
  • Années d’activité
    2023 - 2025
  • Épisodes
    53
  • Classification
    Tous publics
  • Copyright
    © 2023 Imperfect Heart
  • Site web de l’émission
    Imperfect Heart

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