Mogil's Mobcast-A Scleroderma Chat

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  • 5.0 (62)
  • 健康与健身
  • 两周一更
Mogil's Mobcast-A Scleroderma Chat

The goal of my podcast is to have a central place for people afflicted with Scleroderma and a place for their families and friends to be informed by specialists in either Scleroderma or autoimmune topics. I will cover a wide range of topics like nutrition, medications, vitamins, and lifestyles. I will also showcase stories from others affected by Scleroderma and how they have dealt with the disease. For additional information you can visit my website-Mogilsmobcast.com, or follow me on Instagram-mogilsmob and Facebook mogilsmob

  1. 1天前

    Episode #85 Kim Rodning: Scleroderma Warrior, First non-trial recipient of an autologous stem cell transplantation at Duke University

    In the last episode, you heard Dr. Shah discuss autologous stem cell transplants. In today’s episode, you’ll meet Kim Rodning, the first non-trial recipient of an autologous stem cell transplant at Duke University. Like many scleroderma warriors, Kim remains positive and upbeat, even in the face of adversity. Her story is truly heartwarming.

    53 分钟

  2. 10月7日

    Episode #84 Dr. Ankoor Shah MD: Rheumatologist, Director of the Duke Scleroderma Clinic

    Today's guest is Dr. Ankoor Shah. He is the Director of the Duke Scleroderma Clinic. In our episode today, we discuss his clinic and what it has to offer to scleroderma patients. We then dive into the main topic of our talk, stem cell transplant. I learned so much about what stem cell transplant involves and how it has helped the scleroderma community.

    42 分钟

  3. 9月23日

    Episode #83 Terri Pilawa: Double Lung Recipient, CEO of One Breath Foundation

    Today's guest is Terri Pilawa. Terri started feeling ill in 2008 and was finally diagnosed correctly after 4 years of not knowing what was wrong in 2012 with Idiopathic Pulmonary Fibrosis. She was told she needed a lung transplant. In 2015, she had a successful double lung transplant. As a part of her journey she became involved with the One Breath Foundation and is now the CEO. Let's hear about both her IPF journey and her involvement in the One Breath Foundation.

    44 分钟

  4. 9月9日

    Episode #82 Ezra Halsted: Scleroderma Warrior

    Today's podcast is with Ezra Halsted who was diagnosed with scleroderma at the age of 16. It was very interesting to hear the perspective of someone who was diagnosed young and how that changed her youth.

    34 分钟

  5. 8月26日

    Episode #81 Jeremy Quinby: Integrative health practitioner and educator. Certified Craniosacral Therapist. Nationally Certified Massage Therapist. Certified Movement and Post-rehab Specialist

    Today's guest is Jeremy Quinby. Jeremy is an integrative health practitioner and educator, Certified Craniosacral Therapist, Nationally Certified Massage Therapist, and Certified Movement and Post-rehab Specialist. In today's episode, we discuss what craniosacral therapy is and how it can help scleroderma patients as well as others with pain.

    38 分钟

  6. 8月12日

    Episode 80 Yen Chen: Postdoctoral Research Fellow Rheumatology Division Department of Internal Medicine Department of Physical Medicine and Rehabilitation University of Michigan

    Today's guest is Yen Chen. Yen is a health behavioral researcher in the Department of Physical Medicine and Rehabilitation and Rheumatology Division at the University of Michigan. Yen is doing a study called Brain Boost program which deals with cognitive dysfunction or brain fog. Today we talk about the definition of brain fog, general causes of brain fog, and how it pertains to scleroderma patients. We also cover activities that can be done to help if you're having brain fog. Lots of great i...

    43 分钟

  7. 7月29日

    Episode 79 Ilaria Galetti: Vice President: Federation of European Scleroderma Associations FESCA, Scleroderma Warrior

    Today's guest is Ilaria Galetti, a scleroderma warrior for over 27 years and currently awaiting a lung transplant. Like many scleroderma warriors she is an advocate for the disease. Ilaria is the Vice President of the Federation of European Scleroderma Associations FESCA. Listen to hear about her journey and her advocacy work.

    35 分钟

  8. 7月15日

    Episode #78 Dr. Thomas Medsger: MD Rheumatologist Professor Emeritus, Department of Medicine, University of Pittsburgh School of Medicine

    Today’s topic is on the evolution of scleroderma. Dr. Medgser joins us in this discussion as he is a rheumatologist who practiced for 46 years and is currently retired. He started his interest in rheumatology at the University of Pittsburgh, which was the first institution to have a scleroderma center. It was here that Dr. Medgser met and worked with Dr. Rodnan, who is considered the "father of scleroderma”. It was really interesting to hear how practices and diagnosis has changed over the ye...

    50 分钟
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关于

The goal of my podcast is to have a central place for people afflicted with Scleroderma and a place for their families and friends to be informed by specialists in either Scleroderma or autoimmune topics. I will cover a wide range of topics like nutrition, medications, vitamins, and lifestyles. I will also showcase stories from others affected by Scleroderma and how they have dealt with the disease. For additional information you can visit my website-Mogilsmobcast.com, or follow me on Instagram-mogilsmob and Facebook mogilsmob

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