Episode 6: Brandon's Experience

Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self.

Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings! 

If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org.

Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode. 

(Transcript coming soon!)