30 min
Episode 6: Brandon's Experience The Secret Life of Sibs
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- Kids & Family
Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self.
Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!
If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org.
Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode.
(Transcript coming soon!)
Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self.
Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!
If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org.
Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode.
(Transcript coming soon!)
30 min