Hidradenitis SuppuraDIVAS

Living with HS can be very lonely. People cannot always see your scars and flares, yet you are in the pain, physically and mentally. Not having control over your body can be devastating. It’s awesome to have a community that understands this disease and that talks about triggers, helpful things, and just about the struggle and how to overcome it. I have had HS since age 11 and was diagnosed at 29. The average HS person gets misdiagnosed for 17 years. I went to countless urgent cares and emergency rooms and all I got was an incision and drainage and antibiotics. I am so grateful for the one doctor that mentioned HS. I went home and looked it up and I bursted into tears when I realized it all matched what I had been through. There is hope. I have changed my diet to paleo and I am flare up free. You have to do what works for you and it’s a treacherous path to understanding what that is. Thank you girls for these amazing episodes.

This podcast came at just the right time in my life. I was recently diagnosed and I have felt so isolated in that diagnosis. No one in my life understands and this podcast has made my feel like there are people who relate to me in my struggles with HS.

I feel so seen, so heard!!! I cried listening to this. The emotions right now. I love this. Please never stop advocating for us!!! 🤞🏼🤞🏼💜 💜

It’s amazing to have a podcast dedicated to HS. It can be such a lonely disease and you feel like you are the only one. It’s great to know we aren’t alone!