RARECast

RARECast
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RARECast

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

  1. -1 J

    Accepting What We Can’t Understand

    James Robinson, author of More than We Expected: Five Years with a Remarkable Child, discusses his experience as the father of a child with a rare disease, life in hospital wards across two continents, and the feeling of pride in his son that remains.

    47 min

  2. 7 NOV.

    A Gene Therapy Company Born from a Father’s Efforts to Save his Daughter

    Noam Baumatz, co-founder and CEO of Noga Therapeutics, discusses his experience with a daughter born with a rare immunodeficiency, how that experience led to the founding of the gene therapy company Noga Therapeutics, and the company’s business decision to pursue both rare and common diseases.

    49 min

  3. 31 OCT.

    Lowering Barriers to Clinical Trial Participation with Do-It-Yourself Blood Sample Collection

    RARECast

    27 min

  4. 24 OCT.

    Scaling N-of-1 Therapies to Viability

    Kent Rogers, CEO of EveryONE Medicines, discusses the challenges of building a sustainable business model for the development of individualized therapies, the regulatory hurdles it may face, and what it will take to get payers to embrace such medicines.

    32 min

  5. 17 OCT.

    Building Gene Therapies that Address Gain and Loss of Function Simultaneously

    Guang Qu, chief operating officer and co-founder of NGGT, discusses the company’s dual-functional vectors that simultaneously remove harmful, mutated genes and replace them with normal, healthy genes to restore cellular function. https://globalgenes.org/raredaily/building-gene-therapies-that-address-gain-and-loss-of-function-simultaneously/

    40 min

  6. 10 OCT.

    How One Woman Climbed from Patient to Advocate

    Allison Freedman discusses her multiple myeloma journey through diagnosis and treatment, her recovery that culminated in her scaling Mount Kilimanjaro in Tanzania, and why she went from not wanting to talk about her condition to being a patient advocate.

    32 min

  7. 3 OCT.

    Shortening the Diagnostic Odyssey

    Katherine Stueland, CEO of GeneDx, discusses the state of genetic testing, what its 2022 acquisition by the AI-drive genomics company SEMA4 has meant to it, and what she thinks it will take to make meaningful change to the diagnostic odyssey.

    28 min

  8. 26 SEPT.

    Making Exomes More Revealing

    Brigette Tippin Davis, chief operating officer for Ambry Genetics, discusses the diagnostic odyssey for people with a rare disease, Ambry’s new ExomeReveal test, and what people can do to accelerate their path to a diagnosis.

    22 min
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À propos

RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.

Informations

  • Création
    RARECast
  • Années d’activité
    2014 - 2024
  • Épisodes
    517
  • Classification
    Tous publics
  • Copyright
    © All rights reserved
  • Site web de l’émission
    RARECast

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