The Deep C

The Deep C

The Deep C Podcast is for families, caregivers, friends and community who are supporting a child through a cancer diagnosis. While every ounce of your being is used to carry your child, this podcast is here to carry you.When you're bedside at the hospital, sitting in a waiting room for the millionth appointment, or just need to feel like you're not alone in this dark place - come find us. Our conversations will match the ones you're already having in your head. No topic is off limits, no fear is kept hidden. We speak to parents and caregivers at every stage of a diagnosis - families who are NED and families who are bereaved - diving deep into their reflections and personal accounts of how they walked (sometimes crawled) through their child's cancer diagnosis. This is not a medical podcast, we don't discuss chemo cocktails or treatment plans. You already talk about that enough. This podcast is where you come for conversations between people JUST like you: scared, tired, determined, and fierce as hell. Hosted on Acast. See acast.com/privacy for more information.

  1. 22 НОЯБ.

    When "I Don't Know" is The Answer - Parenting a Teen Through the Rare Diagnosis of Papillary Renal Cell Carcinoma

    In this episode, host Sam Taylor and parent Nicole talk about all the unknowns that come up when your child is diagnosed with a rare cancer that doesn’t respond to all the traditional treatments like chemotherapy and radiation. When Nicole’s son Hayden was 12 years old, he had a bad fall while snowboarding and complained of serious pain in his side that brought them to the hospital. After tests and ultrasounds, Nicole was told that Hayden’s fall had ruptured a15 centimetre tumor on his kidney, diagnosing him with a rare type of cancer called Papillary Renal Cell Carcinoma, typically only found in men over the age of 50. Treatment for Hayden’s cancer was surgery to remove the tumor, and 3 month follow up scans to check for recurrence. Nicole and Sam talk about Hayden’s rare diagnosis, and how difficult it is to resume a “normal” life when the lingering fear of Hayden’s cancer returning is always present. With no other treatments to try to eradicate his cancer, Nicole talks about how she moves forward with so many unknowns. Sam and Nicole also talk about Hayden’s age, and how he is old enough to understand his cancer and have a lot of questions about it, in particular, asking if he is going to die. This conversation is so important for families who also have rare diagnoses, non traditional treatments and families whose kids are old enough to experience all the unknowns alongside their parents. Hosted on Acast. See acast.com/privacy for more information.

    34 мин.
  2. 5 НОЯБ.

    What Is Caregiver Storytelling with Dr Mike Lang - How We Can Use Storytelling To Integrate And Make Sense Of Our Caregiving Experience

    In this conversation, Sam and Dr. Mike Lang explore the profound impact of caregiving storytelling. Mike shares his personal journey from being diagnosed with Hodgkin's Lymphoma when he was 25, emphasizing the importance of caregiver support and the need for connection among those affected by cancer. They discuss the challenges of identity during treatment, the significance of agency in caregiving, and the transformative power of adventure therapy. Mike emphasizes the value of caregiver storytelling as a means to bridge the gap, allowing caregivers to process their experiences and share wisdom with others. The discussion also highlights his award winning video series 'Caregivers in the Wild,' which aims to support caregivers through shared experiences and storytelling. Ultimately, the conversation underscores the significance of finding hope and connection in the caregiving journey. In this conversation, Sam and Dr Mike Lang delve into the profound themes of caregiving, storytelling, and the elusive nature of balance. They explore how shared experiences can create a safe space for caregivers to express their feelings and insights. The discussion highlights the importance of storytelling in processing experiences and the need for community support among caregivers. They also touch on future projects aimed at enhancing digital storytelling and the significance of hearing others' stories during challenging times. mikelangstories.com Caregivers In the Wild  Hosted on Acast. See acast.com/privacy for more information.

    36 мин.
  3. 27 ОКТ.

    Do Followers Equal Funds? - Heather's Experience Using Social Media To Raise Funds For Her Daughter’s Ewing Sarcoma

    This chat with Heather was initially intended to talk about the difference between the US and Canadian health care systems and the cost of cancer, but more often than not, our talks veer into areas that go much deeper than what we originally planned. Heather bravely and vulnerably shares how the financial pressures of her daughter’s treatment for Ewing Sarcoma made her feel like she needed to turn to social media for fundraising based on the success she’d seen when other families shared their child’s cancer journey. The only caveat, she found, was that the more graphic and intense the photo’s, the more followers a family would have, which equates to more funds. Heather’s daughter wasn’t comfortable with sharing the more sensitive photos during her treatment, so Heather shares it impacted how many followers, and funds, they were able to raise. This topic is VAST. There are so many opinions and strongly held beliefs when it comes to social media and how we, as a medical parent community, choose to share our child’s cancer. There is no denying the value of social media when it comes to connecting parents, raising awareness for childhood cancer, and sharing with loved ones and our communities what our family is experiencing. But is there a line? Is there a place where we as parents have to consider what our kids might consent or agree to in the future? Today we talk about Heather’s line, and what she felt comfortable with sharing. I would love to hear what your line is, and how it makes you feel to share, and what you feel comfortable sharing. Thank you SO much Heather for starting this conversation with me, I really want to keep having it with all of you. ALSO! You'll (not in a peaceful way) meet all my dogs in our episode today. They all send their deepest apologies for barking like crazy 🐕💛 Hosted on Acast. See acast.com/privacy for more information.

    30 мин.
  4. 12 ОКТ.

    You Never Move On, You Just Move Forward - The Unstoppable Force Behind Curtis, Jaycee's Dad

    Curtis Vallier is a bereaved dad, a childhood cancer activist, and the podcast host of The Childhood Cancer Perspective where he provides a unique perspective on pediatric cancer from a father's point of view. In January 2020 when Curtis' daughter was six, she was diagnosed with Choroid Plexus Carcinoma Brain Cancer, which she passed from in July 2021.  In our chat, Curtis discusses the lack of representation of fathers in the pediatric cancer community and the societal expectations that prevent them from expressing their emotions. Curtis left his job to focus on his nonprofit Battlecorn and his podcast, using the platform to share stories and connect with others in the community. He emphasizes the importance of authenticity and raw emotion in his podcast, allowing guests to share their experiences without filters. Curtis shares his advocacy efforts to bring attention and funding to pediatric cancer research. He discusses his initial outreach to senators and representatives, the challenges of getting support, and the need to make the cause meaningful for politicians. Curtis emphasizes the importance of creating a tissue database in Wisconsin and utilizing the state's college system for research. He also talks about his persistence in advocating for change and his desire to see his daughter's name on research. Curtis reflects on the regrets and healing process after his daughter's passing and the different ways families cope with grief. Curtis discusses the impact of his organization's care packages and their investment in funding clinical trials for pediatric cancer drugs. Hosted on Acast. See acast.com/privacy for more information.

    45 мин.
  5. 4 ОКТ.

    After The Bell - Leahann's Reflections On Her Son's Hodgkin's Lymphoma, Post Treatment

    Leahann’s son was diagnosed with stage 3 nodular lymphocyte predominant Hodgkins lymphoma when he was 16yrs old. Like a lot of us, it’s so hard to talk about what this is all like during treatment, so we often find ourselves after our children are done frontline trying to make sense of what just happened. So many of our chats start here, and today’s is no exception. Leahann and I jump right in to how it felt the day she left the hospital after her son rang the bell, and how confusing it was. You’ll hear Leahann call it an “attack on her senses” and I couldn’t agree more. When you’re in treatment, your senses are operating at a whole other level. Everything is heightened and hyper vigilant, and we get so used to being in that state of adrenaline. As soon as Leahann left the hospital after the bell ringing, it was like her body was slowly shedding and loosening from this heightened state and for the first time since diagnosis, her nervous system was trying to regulate - and that felt strange and abrasive and foreign. This is such a great chat with an incredible mom who is SO easy to talk to, and feel calm and safe and warm beside. We shared a coffee during this chat, sitting at her table that made me feel so comfortable and seen and not alone. I invite you, wherever you are, whether it’s bedside with your child or sitting in a waiting room, or driving, or maybe you have a chance to be outside for a walk - wherever you are, to let yourself feel like you’re sitting with us and let yourself know that wherever you are in your child’s treatment, we’re right beside you. Hosted on Acast. See acast.com/privacy for more information.

    31 мин.

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The Deep C Podcast is for families, caregivers, friends and community who are supporting a child through a cancer diagnosis. While every ounce of your being is used to carry your child, this podcast is here to carry you.When you're bedside at the hospital, sitting in a waiting room for the millionth appointment, or just need to feel like you're not alone in this dark place - come find us. Our conversations will match the ones you're already having in your head. No topic is off limits, no fear is kept hidden. We speak to parents and caregivers at every stage of a diagnosis - families who are NED and families who are bereaved - diving deep into their reflections and personal accounts of how they walked (sometimes crawled) through their child's cancer diagnosis. This is not a medical podcast, we don't discuss chemo cocktails or treatment plans. You already talk about that enough. This podcast is where you come for conversations between people JUST like you: scared, tired, determined, and fierce as hell. Hosted on Acast. See acast.com/privacy for more information.

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