Hypermobility Happy Hour

HypermobilityHH
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Hypermobility Happy Hour

Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on this podcast is for educational purposes only and not for the diagnosis or treatment for any individual. Hypermobility conditions can be complex and difficult to treat and it is extremely important to work with trained medical specialists for any diagnosis or treatment.

  1. 81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington

    ١٧ ربيع الأول

    81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington

    In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally. Links: Instagram: https://www.instagram.com/leahpinnington_author/ My Hypermobility on Amazon: https://www.amazon.com/My-Hypermobility-Leah-Pinnington/dp/1738437205 My Hypermobility at Target: https://www.target.com/p/my-hypermobility-by-leah-pinnington/-/A-91860135

    ٣٦ من الدقائق
  2. 80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides

    ١١ ربيع الأول

    80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides

    This episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athletes. She challenges conventional perspectives on clinical outcomes in hypermobile patients and is dedicated to helping individuals with hypermobility (including hypermobile Ehlers-Danlos syndrome) to achieve their goals. Alex’s academic background fuels her commitment to promoting informed consent in healthcare settings, emphasizing the importance of patients understanding not only the “what” but also the “why” when it comes to their experiences and conditions. This dedication to answering the “why” questions has led to the successful establishment of her social media presence, the Hypermobility HQ Discord community, and the Help! I’m Hypermobile podcast. Alex is committed to doing her best to make the world a better place for hypermobile people. A friendly reminder that this podcast is for informational and educational purposes only, it is not advice. If you have questions or are having trouble finding resources or professionals, please feel free to reach out to us at hypermobilityhappyhour@gmail.com Links: Help! I'm Hypermobile podcast available at: https://podcasts.apple.com/us/podcast/help-im-hypermobile/id1691592838 Hypermobility HQ: https://hypermobilityhq.com/contact Instagram: https://www.instagram.com/hypermobilityhq/

    ٥٨ من الدقائق
  3. 79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More

    ٢٣ محرم

    79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More

    This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studies and anecdotal evidence from healthcare providers to help educate others about various movement disciplines. Celest is a co-author of the book Too Flexible to Feel Good and she also has a blog, a podcast, various YouTube videos, an active social media presence, and offers private 1 on 1 online science where she focuses on a neuromechanical approach to physiotherapy. A friendly reminder that this podcast is for informational and educational purposes only, it is not advice. If you have questions or are having trouble finding resources or professionals, please feel free to reach out to us at hypermobilityhappyhour@gmail.com https://www.celestpereira.com/ Beginner’s Yoga - Shapes with Weights (Celest Pereira): https://www.youtube.com/watch?v=ZJXEUpBVycY https://www.instagram.com/celestpereirapt/ Too Flexible to Fell Good (book), available at: https://www.amazon.com/Too-Flexible-Feel-Good-Hypermobility/dp/1628604174/ref=sr_1_1?crid=2GSKMQH1YS2Y4&dib=eyJ2IjoiMSJ9.HKAql1iYWO27pOpry3uvh9JjnUPVkzjR5Hm0JzR3xDoABa1qzYNVJSXJlMcGmSN25k6JOWJH3m3CIkIGeiBq69UV6lgFmrEWt8hD1wR9nOu1utB2kUEKM-5-_x9PO0xew-Vd-nquXdgtXziNtcL9IhQAhiACKkEz-XRqCnfj7F2pBMTZFMmEd_hizsMf3M6_20VSeCLFfdl98P7bAW0JdTEA2FwjNfw-4smfBOlWi-w.8GKNhGvYeMMiH7ccaXrTaBXBSt__q0y1TihzDvmkikE&dib_tag=se&keywords=too+flexible+to+feel+good&qid=1712157923&sprefix=too+flexible+%2Caps%2C1230&sr=8-1 Love @ First Science Podcast, available at: https://www.celestpereira.com/podcast

    ٥٥ من الدقائق
  4. 78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work

    ١٧ محرم

    78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work

    Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at the Rio Paralympic Games, Allysa made history when she won a gold medal in paratriathlon’s debut as a medal event at the Paralympics. She also competed in track and field at the Rio games where she landed an impressive sixth place finish in the 200m event. Allysa has been featured in ESPN the Magazine’s Body issue and has been dominant in the women’s PTS2 division since the Rio games. In July 2019, Allysa won an ESPY award for Best Female Athlete with a disability. Allysa has struggled with significant health challenges in late 2020 and early 2021 and spent several months in the hospital with endocarditis or severe inflammation of the heart. She was able to return to full time training in the spring and was able to earn a silver medal at the Americas Triathlon Para Championships event on June 27, 2021 in Pleasant Prairie, Wisconsin, a key selection event for the Tokyo Games. Links: https://www.teamusa.com/profiles/allysa-seely-817537 https://www.instagram.com/triallysa

    ٥٢ من الدقائق
  5. 77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE)

    ١٢ محرم

    77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE)

    On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in the greater San Diego area. Movement Reborn’s YouTube channel has some videos about hypermobility, one of which has been seen nearly sixty thousand times as of the time of this recording. Andy discusses nervous system regulation, movement for hypermobile people and people with EDS, neurokinetic treatment, resources that can be helpful for movement protocols and more. Links: Movement Reborn https://movementreborn.com/ YouTube Video: Exercises and Tips for Hypermobility - Stretch Less, Stabilize More. available at: https://www.youtube.com/watch?v=-CzIsYElN0w&t=27s YouTube Video: Stabilizing the Hip: Exercises for Hypermobility and EDS, available at: https://www.youtube.com/watch?v=RuWzU4w2oYw Neurokinetic Therapy https://neurokinetictherapy.com/about/david-weinstock/

    ٥٤ من الدقائق
  6. 76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT)

    ٤ محرم

    76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT)

    On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobility Spectrum Disorders (HSD) and Postural Orthostatic Tachycardia Syndrome (POTS). Dr. White owns her own practice, Intrinsic Physical Therapy & Wellness, a specialty PT clinic in Minneapolis, Minnesota, specifically designed for people living with complex, chronic conditions. She is passionate about providing a space for people to feel seen and heard in their healthcare needs no matter how complex or rare their symptoms may be. Rita combines her personal experience of living with chronic pain and fatigue with her professional expertise to help people find lasting relief from symptoms. Links: https://www.intrinsic-pt.com/ Instagram: @theintrinsicpt Paper on the “presentation and physical therapy management of upper cervical instability in patients with symptomatic generalized joint hypermobility: International expert consensus recommendations” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9893781/

    ٤٩ من الدقائق
  7. 75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach

    ٢٧ ذو الحجة

    75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach

    On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth. Links: https://spreadwhealth.com/overcome-pain https://www.instagram.com/whealth https://www.facebook.com/spreadwhealth https://www.youtube.com/spreadwhealth

    ١ من الساعات
  8. 74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility

    ١٦ ذو الحجة

    74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility

    In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite athletes. He has worked with swimmers at many levels from physical therapy to the USA Olympic Swim Team. Dr. Cunningham also reflects on his own personal experience with hypermobility as well as his professional insights gleaned from working with many hypermobile people. Links: https://www.theswimdoc.com/#/ Instagram: https://www.instagram.com/drbriancunningham Article by Dr. Cunningham “Hypermobility in Swimmers” https://www.streamlineteams.org/post/hypermobility-in-swimmers

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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on this podcast is for educational purposes only and not for the diagnosis or treatment for any individual. Hypermobility conditions can be complex and difficult to treat and it is extremely important to work with trained medical specialists for any diagnosis or treatment.

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