The Lucky Few

The Lucky Few Podcast

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

  1. 1H AGO

    326. What We Wish We’d Known About Loneliness in honor of World Down Syndrome Day (3/21)

    In this episode, we continue our What I Wish I’d Known series in honor of World Down Syndrome Day (3/21) and this year’s theme: Together Against Loneliness. When we first became parents of children with Down syndrome, no one talked to us about loneliness. Not the loneliness that can come in high school.Not when siblings leave.Not when friends start driving.Not when graduation comes — and the path forward feels unclear.Not when your child is included, but still isolated. We talk about the loneliness our kids experience — and the loneliness we feel as parents. We unpack the difference between inclusion and belonging, and why belonging is what truly combats loneliness. World Down Syndrome Day isn’t just about celebration.It’s about awareness.It’s about connection. Wear the socks.Have the conversations.Extend the invitation. Let’s be together against loneliness. Show Notes 🌍 World Down Syndrome Day Official site (theme, resources, global events):https://www.worlddownsyndromeday.org/ College scholarships for students with Down syndrome:https://www.rubysrainbow.org/ Creators of the annual World Down Syndrome Day campaign videos:https://www.coordown.it/ This year’s campaign video (featuring Noah, focused on ending use of the R-word):https://www.youtube.com/@CoorDown Their classic video “Dear Future Mom”:https://www.youtube.com/watch?v=Ju-q4OnBtNU Free programming and community for individuals with Down syndrome:https://gigisplayhouse.org/ 🎓 Ruby’s Rainbow🇮🇹 CoorDown (Italy)💙 GiGi’s Playhouse 🎉 Celebrate World Down Syndrome Day With Us We’ve been celebrating World Down Syndrome Day since the very beginning of this podcast. Revisit past conversations here: Episode 1 – World Down Syndrome Day 2018https://www.theluckyfewpodcast.com/episodes/1 Episode 53 – World Down Syndrome Day 2019https://www.theluckyfewpodcast.com/episodes/53 Episode 104 – World Down Syndrome Day 2020https://www.theluckyfewpodcast.com/episodes/104 Episode 156 – World Down Syndrome Day 2021https://www.theluckyfewpodcast.com/episodes/156 Episode 207 – World Down Syndrome Day 2022https://www.theluckyfewpodcast.com/episodes/207 Episode 259 – World Down Syndrome Day 2023https://www.theluckyfewpodcast.com/episodes/259 Episode 310 – World Down Syndrome Day 2024https://www.theluckyfewpodcast.com/episodes/310

    47 min
  2. MAR 2

    324. What We Wish We’d Known About Inclusion

    In this episode of The Lucky Few Podcast, we continue our What I Wish I’d Known series by talking about inclusion — and being honest about how it actually feels. When we hear the word inclusion, we don’t immediately feel hopeful. We feel heaviness. Process. Fight. Sometimes discouragement. We talk about why inclusion so often becomes a disability service instead of a true community responsibility. We wrestle with school settings, adult programs, housing, and the limited options available once our kids grow up. We name the exhaustion of always being the one advocating — and the toll it takes on our kids to keep showing up in spaces not built for them. At the center of this conversation is this truth: The existence of a person with Down syndrome in the world is their resistance. Our kids take up space. They walk into rooms. They show up in communities that weren’t designed for them. That matters. Inclusion isn’t a program to be applauded. It’s a cultural shift. And while we may feel weary some days, we still believe our kids belong — not as a service, but as neighbors, coworkers, and friends. We see you doing the work. Take a breath if you need to. And keep going. Show Notes For more thoughtful work on disability, community living, and person-centered inclusion, visit Open Future Learning: https://www.openfuturelearning.org/** Interested in diving deeper? We’ve talked about inclusion before — especially in the context of school, IEPs, and advocacy. If you want to explore more episodes with an emphasis on inclusion in education and collaboration, start here: Episode 78: Building Trust (Not Barriers) w/Your Child’s IEP Teamhttps://www.theluckyfewpodcast.com/episodes/iep-advocacy Episode 94: IEPs During COVID-19 (ft. Vickie Brett & Amanda Selogie)https://www.theluckyfewpodcast.com/episodes/inclusive-education-project Episode 270: IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig)https://www.theluckyfewpodcast.com/episodes/270-iep-success-how-to-plan-communicate-and-collaborate-april-rehrig Episode 272: What Do We Wish We Knew Before Our First IEP Meeting?https://www.theluckyfewpodcast.com/episodes/272-what-do-we-wish-we-knew-before-our-first-iep-meeting-heather-avis-mercedes-lara Episode 273: Breaking Down Barriers: The Parent’s Role in IEP Success (w/Ashley Barlow)https://www.theluckyfewpodcast.com/episodes/273-breaking-down-barriers-the-parents-role-in-iep-success-with-ashley-barlow

    37 min
  3. FEB 22

    323. What I Wish I’d Known About IEPs

    EPs can feel overwhelming, emotional, and complicated—and that’s because they are. In this episode of The Lucky Few Podcast, we kick off our new season, What I Wish I’d Known About…, by talking about IEPs—what we wish we understood from the very beginning, and what we’ve learned the hard way. Fresh off a multi-hour meeting, we share honestly about the exhaustion, the tension, and the “us vs. them” dynamic that can creep in. We unpack how evaluations drive goals, how goals drive placement, and why learning the language of the IEP changes everything. We talk about inclusion, evolving expectations, and what it looks like to follow our child’s lead as they grow. Most importantly, we remind ourselves—and you—of this: Our kids are not problems to fix.The IEP exists to serve them. Whether this is your first meeting or your fifteenth, we hope this conversation helps you feel more steady, more informed, and less alone. SHOW NOTES: For more practical guidance, we’ve learned a lot from Ashley Barlow and her work at Ashley Barlow Co.. She offers clear, actionable resources to help you navigate IEPs, strengthen your advocacy skills, and understand your rights—all in one place. Check out more IEP Episodes: 78. Building Trust (Not Barriers) w/Your Child’s IEP Team – IEP advocacy tips. 94. IEPs during COVID-19, ft. IEP Lawyers Vickie Brett & Amanda Selogie – IEPs & distance learning. 272. What Do We Wish We Knew Before Our First IEP Meeting? – Reflections on early IEPs. 270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig) – Practical IEP strategies. 273. Breaking Down Barriers: The Parent’s Role In IEP Success (w/Ashley Barlow) – Parent advocacy in IEPs. CONNECT WITH THE PODCAST WEBSITE INSTAGRAM FACEBOOK CONNECT WITH HEATHER AVIS WEBSITE: THE LUCKY FEW OFFICIAL IG: THELUCKYFEWOFFICAL FACEBOOK I LIKE YOU SO MUCH THIS IS DOWN SYNDROME CONNECT WITH MERCEDES LARA IG: HOORAY4THELARAS IG: HUMANLY.TV FACEBOOK CONNECT WITH MICHA BOYETT MICHABOYETT.COM IG: ACEFACEISMYFRIEND IG: MICHABOYETT LISTEN TO THE SLOW WAY DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET’S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News or Shout Outs for future episodes.

    50 min
  4. FEB 9

    321. What We Wish We’d Known (And What We’re Still Learning)

    January felt heavy. So instead of pretending we had it all figured out, we talked honestly about what we wish we’d known earlier. In this kickoff episode of What We Wish We’d Known, Heather, Micah, and Mercedes reflect on lessons that only come with time, experience, and a lot of unlearning. In this episode, we talk about: Letting go of milestone pressure, assuming competence, and unlearning ableism Rethinking inclusion, communication (including AAC), and what real support looks like Identity, advocacy, and why the goal was never a “poster child” — just a whole human This episode is part reflection and part reset. Whether you’re brand new or years into this journey, we hope it gives you permission to breathe, recalibrate, and keep learning. 💛 DM us what you wish you’d known — and what you want us to cover this season. SHOW NOTES Check out AbleNet, an assistive technology company that helps families access AAC devices quickly, often handling insurance and paperwork on their behalf. DISCOUNT CODE Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information! LET’S CHAT Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News or Shout Outs for future episodes.

    54 min
4.9
out of 5
335 Ratings

About

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

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