While participating at the National Federation of the Blind National convention this year with my colleague and friend, Sheldon Lewis who also is a former guest here on Unstoppable Mindset, we had the opportunity to meet Amy SP Wilson. Amy is the founder and leader of the Safety Positive Foundation. Amy began losing her eyesight at the age of ten years old due to a condition known as Stargardt's. this disease can best be described as macular Degeneration in juveniles. If you want to know more about Stargardt's just listen into my conversation with Amy. Amy has always been quite interested in personal safety. She also has been quite a physical person starting with wrestling with her cousins to later becoming the first female wrestler at the Missouri School for the Blind to later becoming part of the inaugural women's Judo team of the United States Association of Blind Athletes. Amy went on to college where she obtained a Bachelor’s degree in Psychology. After a time and some life challenges Amy will tell us about she decided to go back to college to obtain a second Bachelor’s degree in Social Work. She decided to get this second degree because she wanted to help persons with disabilities in the United States. In 2023 Amy founded Safety Positive Foundation to teach blind persons about self defense. Her approach is by no means all about being physical. She will talk with us about self awareness and self advocacy, two aspects she feels must be part of the psyche of everyone who wishes to take charge of their own life. About the Guest: ael Hingson ** 00:00 Access Cast and accessiBe Initiative presents Unstoppable Mindset. The podcast where inclusion, diversity and the unexpected meet. Hi, I'm Michael Hingson, Chief Vision Officer for accessiBe and the author of the number one New York Times bestselling book, Thunder dog, the story of a blind man, his guide dog and the triumph of trust. Thanks for joining me on my podcast as we explore our own blinding fears of inclusion unacceptance and our resistance to change. We will discover the idea that no matter the situation, or the people we encounter, our own fears, and prejudices often are our strongest barriers to moving forward. The unstoppable mindset podcast is sponsored by accessiBe, that's a c c e s s i capital B e. Visit www.accessibe.com to learn how you can make your website accessible for persons with disabilities. And to help make the internet fully inclusive by the year 2025. Glad you dropped by we're happy to meet you and to have you here with us. Well, hi everyone. I am your host, Mike hingson, and welcome to another episode of unstoppable mindset where inclusion, diversity and the unexpected meet. And the reason it's worded that way people still ask me why I say that. The reason it's worded that way is that when we talk to diversity people, they'll talk about race, gender, sexual orientation and so on, and they never talk about disabilities. So unfortunately, the ship has mostly sailed when it comes to including disabilities in diversity, no matter what they say. So we won't let them do that with inclusion, which means it's inclusion diversity and the unexpected. And today we get to deal with a lot of all of that. The unexpected is anything that doesn't have anything to do with inclusion or diversity. But today, we do get to talk about inclusion a lot in some esoteric and maybe not so esoteric ways. Our guest today is Amy SP Wilson, and I just discovered, as Amy showed me, if you were to ask your smart speaker, like my Amazon Echo, who is Amy SP Wilson, it will tell you that she is the CEO of the positive safety positive foundation. We're going to talk more about that, so we'll get there anyway. Amy, welcome to unstoppable mindset. We're glad you're here. Wonderful. Amy SP Wilson ** 02:45 Thank you for having me. It's an honor and a privilege, and Michael Hingson ** 02:49 it's nice to know that the echo knows your name. Amy SP Wilson ** 02:53 Yeah, I'm still kind of flabbergasted that that's a thing, but definitely gives you some street cred, I guess. Michael Hingson ** 03:02 Yeah, it probably means that there, there aren't, well, there certainly aren't very many. Amy SP Wilson, so that works, yes, well, why don't we start the way I kind of really love to. Why don't you tell us, sort of about the early Amy growing up and some of that sort of stuff. Amy SP Wilson ** 03:21 So in my younger years, I was born and raised in the state of Missouri, and have what I consider a biker family. We did a lot of traveling on motorcycles. I was riding my own dirt bike at the age of four, and so really tomboy at at heart, but loved, you know, wrestling and fighting with the cousins. And at the age of 10 is when I was diagnosed with star guards, and that put me on a different path, because at the age of 10, my dream was to be a motorcycle mechanic and join the Navy. And at the time, I did not have any expectations that a blind person could do either. So it really put me on a different trajectory of what I thought my life was going to going to be like, and I, of course, went on with school and and that sort of business, but I loved wrestling so much that I became the Missouri School for the blinds First Lady wrestler. And that led me into being part of the United States Association of Blind Athletes, where I was on the first women's judo team that they had, and so just got real passionate about personal safety and different ways. But due to my eye condition, I couldn't take hits to the head, and so there went my martial arts career this. I'll just say, or so I thought, and led me into going to college and get my my first bachelor's degree in psychology and and so on. But I I have people tell me that apparently I have been pioneering new things my whole life. And when I have to talk about myself and talk about I was the first to do this and first to do that, yeah, it's a very sobering reminder of those steps that I've make it in my life. Right? Michael Hingson ** 05:35 Reading your bio, it says that because of star guard, you weren't at some at one point, able to continue kind of dealing with martial arts. What did star guard specifically have to do with that? Amy SP Wilson ** 05:47 So it it affects my retina, and I noticed the more hits that I was taking to the head and, you know, being thrown I was having more cloudy spots in my vision, and when I stopped doing those things, it, it, you know, significantly reduced the amount of things I wasn't able to to see. And so that's, that's how that played into that well, Michael Hingson ** 06:19 tell me a little bit about what star guards is. I'm not sure that everyone listening or watching will be familiar with Amy SP Wilson ** 06:26 it, correct? Yes. So star guards is a juvenile form of macular degeneration. So you hear of, you know, your grandparents, or you know, maybe you're a person of experience, as I like to say, in your in your later years. And you know, hear about people getting macular degeneration. I essentially just got macular degeneration at the the age of 10. So little bit of a flip. And of course, again, being a first, I was the first person in my family to have any kind of blindness, low vision, and so it was. It really shook everything Michael Hingson ** 07:06 is star guards, a genetic kind of situation. Amy SP Wilson ** 07:12 So I learned that the only way that a person can get star guards is essentially by your parents getting together. It's not a medication defect, which is what they originally told my mother. So she carried a lot of guilt with that. And when I went to get seek a different doctor, he had me do some I guess genetic counseling is what they called it, because I had concerns of my son having it. And they were like, no, no, it doesn't work. And they explained it. I was like, well, that had been helpful in my younger Michael Hingson ** 07:50 just sort of the right combination of things getting together that brings it on. Exactly. Yeah. Now, where do you live today? I live in the great Show Me State. Ah, so you're still in Missouri? Yes, I've Amy SP Wilson ** 08:05 moved to a couple other states. I spent a year in Alaska, where my son was born. I lived in Indiana for a little bit. I pass on that, and fortunately, I was able to come back to to Missouri. Michael Hingson ** 08:20 So we're in Missouri. Are you, uh, close Amy SP Wilson ** 08:23 to Kansas City area? Okay, about about in that area, but I like to, I like it because I can take the train back and forth between Kansas City and St Louis. So, yeah, Michael Hingson ** 08:34 well, trains are very useful things to have around. I when I lived on the East Coast, would use the train a lot. And of course, going from New Jersey into New York, we had New Jersey Transit and other things that we had a lot of train stuff. But out here, where I live now, there is a train that stops here once, at 430 in the morning. If I want to go to San Francisco, I'm not going to do that on the train, I don't think, because you actually have to go to Los Angeles and then get another train to go to San Francisco, because the train that comes from Los Angeles stops here, and then, I guess, goes east. So, oh, well, one of these days, maybe there'll be more trains and more mass transit, and that'll be a good thing. Exactly. Amy SP Wilson ** 09:19 I know in Europe, trains are used very heavily, and people that come over here are constantly surprised that we don't have more sufficient trains. And so hopefully, like you said, with time we'll we'll get some more transportation going. There's Michael Hingson ** 09:36 a big argument and a brouhaha going on out here right now because Los Angeles wants to create a gondola system to go from downtown LA the train station to Dodger Stadium and stop along the way. And there are people who are saying, no, no. Because you're not going to get that many people
