9 episodes

This is your weekly podcast where we discuss news, policy, and advocacy for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.



The world needs your voice, and we are here to help you become a better informed and effective advocate for Tennesseans who have been underserved and underrepresented for far too long.



Hit subscribe and stay up to date each week on the matters impacting your family the most.

Let's Talk Tennessee TN Chapter of NCSA

    • News

This is your weekly podcast where we discuss news, policy, and advocacy for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.



The world needs your voice, and we are here to help you become a better informed and effective advocate for Tennesseans who have been underserved and underrepresented for far too long.



Hit subscribe and stay up to date each week on the matters impacting your family the most.

    Introducing Kramer Davis Health with Dr. Matt Holder

    Introducing Kramer Davis Health with Dr. Matt Holder

    ===========================
    Summary
    ===========================
    Dr. Matthew Holder shares about the Kramer Davis Health clinic that recently opened in Hermitage, TN. Founded by a physician and dentist, Dr. Matthew Holder and Dr. Henry Hood of the renowned Lee Specialty Clinic, their transdisciplinary model puts people with IDD at the center of their healthcare. Designed for adults and adolescents with IDD over the age of 13, KD Health provides a revolutionary option in healthcare — inclusive, compassionate, specialized care for the whole person.


    ===========================
    Speaker
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    As an international leader in the emerging field of Developmental Medicine, Dr. Matthew Holder has spent 20 years advocating on behalf of people with intellectual and developmental disabilities (IDD) for better quality health services. Dr. Holder is the CEO and Co-Founder of Kramer Davis Health – a patient care, teaching and research organization that has set the national standard for providing high-quality, broadly-integrated transdisciplinary healthcare to people with IDD. He is the President of the American Board of Developmental Medicine, Past-President and Co-Founder of the American Academy of Developmental Medicine and Dentistry (AADMD), and he served for 16 years as the Global Medical Advisor and Chair of the Medical Advisory Committee for Special Olympics International.
    Dr. Holder has educated thousands of healthcare providers and healthcare officials from nearly every state and over 150 countries, including several U.S. Presidents, Governors, Surgeons General, and members of Congress.


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    Timestamps
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    Speaker Intro 01:12
    Presentation Start 02:16
    Kramer Davis Beginnings 03:25
    Kramer Davis Name 04:37
    Kramer Davis Model 08:06
    About the Clinic 12:44
    Tour Code 22:27
    Make a Referral 23:08
    Contact Information 23:46
    Q&A 25:00


    ===========================
    CONNECT WITH US!
    ===========================
    Website: https://www.tnncsa.org/
    Facebook Page: @TNNCSA
    Join the NCSA National Grassroots Network
    https://www.ncsautism.org/nationalnetwork
    YouTube: @TNNCSA
    Email us: hello@tnncsa.org

    • 1 hr
    013 - Crisis in Rural Crisis Response | Let's Talk Tennessee | February 10, 2024

    013 - Crisis in Rural Crisis Response | Let's Talk Tennessee | February 10, 2024

    Exciting update for the TN Chapter, a look at big challenges for West Tennessee, and what is coming up.

    • 12 min
    Catatonia in Pediatric & Neurodiverse Populations Presented By Dr Joshua Ryan Smith

    Catatonia in Pediatric & Neurodiverse Populations Presented By Dr Joshua Ryan Smith

    Catatonia in Pediatric and Neurodiverse Populations by Dr. Joshua Ryan Smith | TN NCSA Webinar | National Grassroots Network
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    Summary
    ===========================
    Dr. Joshua Ryan Smith of The MEND Research Clinic at Vanderbilt dispels stigma and explores nuances of Catatonia in Profound Autism and related disorders.

    Dr. Smith discusses symptoms of catatonia which are specific to pediatric and neurodiverse populations, increasing the difficulty in making the diagnosis. He also reviews treatment algorithms including medication management and electroconvulsive therapy.


    ===========================
    Speaker
    ===========================
    Dr. Joshua Ryan Smith’s primary research interest is in bridging the gap between clinical trial research and clinical care. His specific areas of interest include use of transcranial magnetic stimulation in autism, catatonia in neurodevelopmental conditions, consult-liaison psychiatry in children’s hospitals, and electroconvulsive therapy. Dr. Smith serves as an ad hoc reviewer for the following journals: Journal of the American Academy of Child and Adolescent Psychiatry, Journal of Autism and Developmental Disorders, as well as Brain and Behavior. At the national level, Dr. Smith participates in the American Academy of Child and Adolescent Psychiatry Psychopharmacology and Neurotherapeutics Workgroup (AACAP).
    Dr. Smith is an Assistant Professor of Psychiatry and Behavioral Sciences at Vanderbilt University Medical Center and the Vanderbilt Kennedy Center. He is the Medical Director of the MEND Clinic at Vanderbilt and of Neuromodudulation Service at Vanderbilt Psychiatric Hospital.


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    Timestamps
    ===========================
    Speaker Intro 00:23
    Webinar Intro 01:51
    Case “LS” 03:12
    Profound Autism 08:56
    Catatonia in Autism 11:32
    Catatonia in Children 14:23
    Subtypes of Catatonia 16:46
    Assessment Tools 17:58
    Pharmacology 18:59
    Electroconvulsive Therapy 30:13
    Case “AH” 40:26
    MEND Clinic Findings 42:25
    Closing 44:15
    Q&A 45:39


    ===========================
    CONNECT WITH US!
    ===========================
    Website: https://www.tnncsa.org/
    Facebook Page: @TNNCSA
    Join the NCSA National Grassroots Network
    https://www.ncsautism.org/nationalnetwork
    YouTube: @TNNCSA
    Email us: info@tnncsa.org

    • 1 hr 3 min
    012 - Let's Talk Tennessee - Do You Feel A Shift?

    012 - Let's Talk Tennessee - Do You Feel A Shift?

    Do You Feel A Shift? | Let's Talk Tennessee TN NCSA | Episode 12 | January 27, 2024
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    Summary
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    Family caregiver pay took a big step forward in Tennessee this week, and more focus on MH/IDD is in the works. Is there a shift in the Volunteer State?
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    Timestamps
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    Intro 00:14
    TikTok Video 00:45
    Video Breakdown 04:43
    Current Challenges 08:16
    News 11:48
    Family Caregiving Pay Resolution 12:13
    DIDD Efforts 14:31
    Disability Pathfinder Webinar 15:43
    Catatonia Webinar 16:48
    Kramer Davis Webinar 17:26
    Closing Remarks 18:45
    Group Virtual Social 19:25


    ===========================
    LINKS MENTIONED
    ===========================
    TikTok Video by @autism_mom_life : https://www.tiktok.com/@autism_mom_life/video/7326964723654708510?q=autism_mom_life&t=1706383787521
    Tennessee Disability Coalition Resolution Announcement: https://www.youtube.com/watch?v=p1hihB8_BYs
    SJR 848 Full Text: https://legiscan.com/TN/text/SJR0848/id/2897912
    TDC/TJC Paid Family Caregiving Resource Hub: https://www.tndisability.org/article/tdctjc-paid-family-caregiving-resource-hub
    Assembly Resolution Page: https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SJR0848
    TN Disability Pathfinder Webinar Navigating Support for Dual Diagnosis https://zoom.us/webinar/register/WN_pcArhRzQT7u0iOL7NFvf5g#/registration
    Vanderbilt MEND Clinic: https://www.vumc.org/mend/welcome
    Dr. Joshua Smith Catatonia Webinar: https://www.tnncsa.org/events/catatonia:
    Dr. Matthew Holder Kramer Davis Webinar: https://www.tnncsa.org/events/kd
    Kramer Davis on BusinessWire: https://www.youtube.com/watch?v=WZjmLGeiwiI
    Project ECHO Autism Vanderbilt: https://www.vumc.org/sleep-in-autism/echo
    Education Legislative Panel https://wapp.capitol.tn.gov/apps/videowrapper/default.aspx?CommID=841000 (Scroll to On Demand Videos / 2024 / Jan 24, 2024, Click “Video”, Scroll to Click “Tennessee Council on Developmental Disabilities”)
    TN NCSA Facebook Group: https://www.facebook.com/groups/tnncsa


    ===========================
    CONNECT WITH US!
    ===========================
    Website: https://www.tnncsa.org/
    Facebook Page: @TNNCSA
    Join the NCSA National Grassroots Network
    https://www.ncsautism.org/nationalnetwork
    YouTube: @TNNCSA
    Email us: info@tnncsa.org

    • 20 min
    011 - Let's Talk Tennessee - Southern Snomaggedon

    011 - Let's Talk Tennessee - Southern Snomaggedon

    Southern Snowmaggedon | Let's Talk Tennessee TN NCSA | Episode 11 | January 19, 2024
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    Summary
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    Southern winter storm, tips for winter weather, public commenting, and webinars to check out.
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    Timestamps
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    Intro 00:14
    State Shutdowns 00:46
    Weather Tips 01:31
    NIH Public Comment 02:55
    NCSA Public Comment to NIH 03:08
    Blog Post from A Father’s Perspective 03:29
    Dr. Joshua Smith Catatonia Webinar 04:42
    Community Participation for Regional PPC Committees 05:15
    SPPC Next Meeting and Public Commenting 05:42
    NCSA Webinars Lineup 06:09

    ===========================
    LINKS MENTIONED
    ===========================
    NIH Public Comment https://www.federalregister.gov/documents/2023/12/26/2023-28425/request-for-public-comments-on-co-occurring-conditions-in-autism
    NCSA Public Comment to NIH https://www.ncsautism.org/blog//nih-requests-public-comment-on-co-occurring-conditions-in-autism
    Blog Post by Scott Maulsby https://www.tnncsa.org/blog/fathers-love
    Dr. Joshua Smith Catatonia Webinar: https://www.tnncsa.org/events/catatonia
    NCSA Webinars https://www.ncsautism.org/webinars


    ===========================
    CONNECT WITH US!
    ===========================
    Website: https://www.tnncsa.org/
    Facebook Page: @TNNCSA
    Join the NCSA National Grassroots Network
    https://www.ncsautism.org/nationalnetwork
    YouTube: @TNNCSA
    Email us: info@tnncsa.org

    • 7 min
    010 - Let’s Talk Tennessee - Heath Disparity Crisis Needs Solved

    010 - Let’s Talk Tennessee - Heath Disparity Crisis Needs Solved

    Current news, upcoming webinars, first week of session, health disparities crisis, and ending things with some sunshine and rainbows to restore faith in humanity.

    • 16 min

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