9 episodes

"Lipedema Link" is your essential podcast connecting individuals navigating the challenges of Lipedema. Join host Don-Ellen Ray, a passionate advocate and Lipedema survivor, as she explores this misunderstood condition. Through expert insights, personal stories, and empowering discussions, we provide support, information, and inspiration. Join our community, gain knowledge, and embrace resilience on your Lipedema journey. Tune in for valuable resources, practical tips, and a sense of unity. You are not alone—discover the power of the "Lipedema Link" today!

Lipedema Link Don-Ellen Ray

    • Health & Fitness
    • 5.0 • 4 Ratings

"Lipedema Link" is your essential podcast connecting individuals navigating the challenges of Lipedema. Join host Don-Ellen Ray, a passionate advocate and Lipedema survivor, as she explores this misunderstood condition. Through expert insights, personal stories, and empowering discussions, we provide support, information, and inspiration. Join our community, gain knowledge, and embrace resilience on your Lipedema journey. Tune in for valuable resources, practical tips, and a sense of unity. You are not alone—discover the power of the "Lipedema Link" today!

    Conservative Treatments for Lipedema - Physical Therapist Explains Compression, Exercise, and More!

    Conservative Treatments for Lipedema - Physical Therapist Explains Compression, Exercise, and More!

    Get the inside scoop on conservative treatments for lipedema directly from Sandra, a physical therapist and lipedema warrior herself! 💪

    In this info-packed episode, Sandra explains manual lymphatic drainage, compression garments, vibration plates, aquatic therapy, dry brushing, and more. You'll also learn exercises and lifestyle tips to reduce swelling and pain through movement.

    If you or a loved one lives with lipedema, don't miss Sandra's top recommendations for at-home relief. She also shares her perspective as both a patient and practitioner.

    Chapter breakdown:

    Intro to conservative treatments [2:08]
    Compression options [3:01]
    Assessing treatment plans [5:36]
    Manual lymphatic drainage [26:14]
    Exercise and activity tips [31:14]
    Nutrition and mental health [41:15]
    Community support [47:37]
    Follow Lipedema Link for the latest lipedema news and advice!



    Contact Sandra:



    Fluid Movement Therapy
    Fluidmovementtherapy@gmail.com
    470-625-6832





    #lipedema #lipoedema #lipodema #conservativetreatment #lymphaticdrainage #compression #exercise #physicaltherapy

    • 49 min
    Surviving Young with Stage 1 Lipedema - How One Woman Navigated Diagnosis, Surgery, and Life Over 10 Years

    Surviving Young with Stage 1 Lipedema - How One Woman Navigated Diagnosis, Surgery, and Life Over 10 Years

    Zahra shares her story of discovering she had Stage 1 Lipedema in her early teens. She details the frustrations of misdiagnosis, finding the right surgeon, insurance battles, weighing surgery vs conservative treatment, her experience with liposuction, and how she maintains a healthy mindset living with a chronic condition.

    • 45 min
    From Barely Able to Stand to Crushing CrossFit - How She Conquered Lipedema with Fitness

    From Barely Able to Stand to Crushing CrossFit - How She Conquered Lipedema with Fitness

    Pattie shares her incredible journey of overcoming severe mobility issues from lipedema using strategic fitness and exercise. Learn how she went from barely being able to walk to completing triathlons and CrossFit in this motivational interview.

    We cover her tough diagnosis struggle, how she created her own modified at-home workout program, and progressed to doing hardcore CrossFit training. She provides tips on pool exercises, yoga, vibration plates, compression wear, and more for managing lipedema.

    Pattie founded the Lipedema Fitness support group to help and inspire other lipedema sufferers on their fitness journey. Don't miss her amazing story of determination and resilience conquering lipedema through fitness and community support!



    #lipedema #lipoedema #lipedemalink #fitness #workout #exercise #crossfit #triathlon #interview #mobility #chronicillness #chronicpain #lymphedema #motivation #inspiration

    • 1 hr 9 min
    🏥 Unlocking Insurance Coverage for Lipedema Surgery: Expert Tips and Strategies 🌟

    🏥 Unlocking Insurance Coverage for Lipedema Surgery: Expert Tips and Strategies 🌟

    Struggling to get your lipedema surgery covered? In this jam-packed episode, the top lipedema patient advocate Antonio shares their best tips for navigating health insurance.

    Learn how to:

    Put together the STRONGEST pre-authorization package
    Work with both in-network and out-of-network surgeons
    Handle denials and successfully appeal
    Avoid paying high upfront costs
    With over 550 women helped and $40+ million in approvals, these experts know exactly how to overcome barriers and biases in the insurance system. Their step-by-step advice will prepare you to advocate for the treatment you deserve.

    This info could be the difference between fighting for reimbursement or getting the green light for fully covered surgery. Don’t miss these pro tips!

    Visit Coverlipedema.com

    #lipedemasurgery #insurancecoverage #patientadvocacy #liposuction

    • 50 min
    Getting Insurance Coverage for Lipedema Surgery :Tips from A Patient Advocate

    Getting Insurance Coverage for Lipedema Surgery :Tips from A Patient Advocate

    In this episode of Lipedema Link, host Don-Ellen Ray interviews patient advocate Karie about tips for getting insurance coverage for lipedema surgery. They discuss the history of insurance coverage for lipedema, finding qualified surgeons, ensuring surgical safety, and being your own advocate. Karie provides insight into getting the right documentation and appeal strategies. She emphasizes doing thorough research on surgeon qualifications, not just relying on social media.

    Key tips include having both a surgeon and non-surgeon confirm lipedema diagnosis, checking plastic surgery board certification, and asking about surgery location and safety protocols. Karie explains the insurance approval process and timeline. This episode provides helpful advice for lipedema patients seeking surgery coverage.

    #lipedema #lipedemasurgery #insurancesurgery #patientsafety #patientadvocacy

    • 56 min
    Diets and Supplements for Reducing Lipedema Inflammation with Bonnie Newlin

    Diets and Supplements for Reducing Lipedema Inflammation with Bonnie Newlin

    In this episode of Lipedema Link, dietician Bonnie Newlin joins hosts Don Ellen and Phil to discuss the best anti-inflammatory diets and supplements for reducing lipedema symptoms. Bonnie shares her experience with lipedema and weight loss, and provides an overview of popular diets like keto, Mediterranean, RAD, plant-based, and vegan. She explains how these diets can help manage lipedema inflammation through a focus on whole, unprocessed foods. Bonnie also covers supplements like turmeric, omega-3s, vitamin D, and more that support lipedema health. Don't miss Bonnie's tips on taking a lifestyle approach instead of restrictive dieting. Use hashtag #lipedemalink to join the conversation!


    #lipedema #lipedemalink #lipedemadiet #lipedemainflammation #lipedemasupplements #antiinflammatorydiet

    • 38 min

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