Seizing Life

CURE Epilepsy
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Seizing Life

Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.

  1. 4 DÉC.

    SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy

    Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.

    41 min

  2. 6 NOV.

    Rocking for Research: The Inspiration and Impact of Joey’s Song

    Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”

    38 min

  3. 2 OCT.

    One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising

    In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.

    31 min

  4. 4 SEPT.

    Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy

    This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa.

    30 min

  5. 13 AOÛT

    Post-Traumatic Epilepsy: What We Know and Where the Research is Going

    This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.

    29 min

  6. 3 JUIL.

    The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy

    After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.

    34 min

  7. 5 JUIN

    The Sudden and Life-Altering Impact of Adult-Onset Epilepsy

    This month on Seizing Life® Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of controlling his epilepsy. He also tells us about his forthcoming book Seizing Today: Discovering Purpose and Authenticity in a Life Changing Diagnosis

    35 min

  8. 1 MAI

    Older Adults and Epilepsy: the Causes, the Signs, and the Treatments

    This week on Seizing Life® Dr. Laura O’Dwyer joins us to talk about the fastest growing segment of people living with epilepsy in the United States – older adults. Dr. O’Dwyer explains why adults are more likely to develop epilepsy later in life, outlines the challenges of recognizing, diagnosing, and treating epilepsy in older adults, and provides valuable information for older adults living with epilepsy and their caregivers.

    28 min
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À propos

Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with epilepsy in conversation with our host, Kelly Cervantes.

Informations

  • Création
    CURE Epilepsy
  • Années d’activité
    2019 - 2024
  • Épisodes
    142
  • Classification
    Tous publics
  • Copyright
    © 2024 CURE Epilepsy
  • Site web de l’émission
    Seizing Life

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