95 episodes

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

Living with Long covid Julie

    • Health & Fitness
    • 4.8 • 26 Ratings

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

    Four years later!

    Four years later!

    Send us a Text Message.In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid. I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the longest time ever! and the other has me questioning 'where have those years gone?' This is a reflection of the last 4 years and I wanted to acknowledge...

    • 29 min
    Guest; A. K. Davidson - Poetry for life and other chronic conditions

    Guest; A. K. Davidson - Poetry for life and other chronic conditions

    Send us a Text Message.On this episode of the podcast I chat to freelance writer and editor A. K. Davidson. We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below. Anna talks about her journey and experiences with acute and Long Covid, and how she now feels recovered, in a slower more thoughtful pace of life. We discuss how Anna put pen to paper to create these short and thoughtful poems, she ad...

    • 37 min
    Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS

    Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS

    Send us a Text Message.In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid. Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and support (and what a journey!!). Jess explains how this has led to the development of the Turnto app. We discuss the reason for the app, the c...

    • 37 min
    Alexander Taylor - Creating a safe space

    Alexander Taylor - Creating a safe space

    Send us a Text Message.In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at Rebecca Dickinson's salon in Bawtry; RD hair, body and soul; Alexander talks about how he wants to make sure the salon he works in is accessib...

    • 43 min
    As requested....My experience on using a fitted Vagus nerve stimulator!

    As requested....My experience on using a fitted Vagus nerve stimulator!

    Send us a Text Message.As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am finding it at this point, including any symptom improvement. I touch upon alternatives for stimulating the vagus nerve and what the suggested benefits ...

    • 27 min
    NHS court hearing update with Kevin Digby and Rachel Hext

    NHS court hearing update with Kevin Digby and Rachel Hext

    Send us a Text Message.In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling consequences of Long Covid after working on the frontline, with inadequate, incorrect or no PPE (personal protective equipment). We discuss the day...

    • 40 min

Customer Reviews

4.8 out of 5
26 Ratings

26 Ratings

wilderness-sojourner ,

Helpful and Validating Podcast for LongHaulers

I first encountered Julie’s podcast when I had the initial thought to chronicle my own journey with Long Covid via a podcast. At the time, the only podcasts I found were from a medical perspective, which although informative, did little to provide an understanding of navigating everyday life with this diagnosis.

Living With Long Covid was just that - a podcast about the lived experience of being a Long Hauler, the struggles we face, the lack of understanding and validation from the medical community, and even the moment-to-moment emotions triggered by our condition. I found her to be soft spoken but informed, relatable, and validating.

I get something out of every single episode, be it practical advice (the Four P’s) or just a reassurance that I am not alone in the physical, mental, and emotional toll that Long Covid has taken on me.

Whether or not you suffer from Long Covid, chances are high that you know someone who does, and also that there is a 10-30% chance of developing it yourself the next time you contract Covid.

Thank you, Julie, for being so open and vulnerable with us, and in doing so, raising awareness of this life-changing condition.

BodybuildingNerdsRadio ,

Farce

This entire podcast is a farce. “Long Covid” just means; “little brain”.

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