RealTalk MS

Jon Strum
RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

  1. A New Year Means New Benefits for Many People Affected by MS

    -1 ДН.

    A New Year Means New Benefits for Many People Affected by MS

    The new year brings with it several significant benefits for many people affected by MS. We're reviewing how the nearly 400,000 people with MS who rely on Medicare for their health insurance will save thousands of dollars, how people with MS who currently have medical debt will see a big improvement on their credit report, and how people who fly with their mobility device will see major improvements in how the airlines treat them. We're also talking with Craig Bianco about his experience as a member of the Care Partner Advisory Board creating the MS Care Partner Connection web portal. And we'll tell you about the Phase 1 clinical trial for the Epstein-Barr Virus vaccine that's getting underway. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Where to get support if you have MS and you're a victim of the Southern California fires   :22 Here's where and how 2025 is delivering new and improved benefits for many people with MS  2:06 Department of Transportation adopts new rules to improve flying for people with disabilities  10:26 Modex Therapeutics, in collaboration with Merck, announces Phase 1 clinical trial for Epstein-Barr Virus vaccine  14:03 Craig Bianco talks about his experience as a member of the Care Partner Advisory Board creating the MS Care Partner Connection web portal     17:26 Share this episode  29:12 Have you downloaded the free RealTalk MS app?  29:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/385 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS MS Care Partner Connection https://mscarepartnerconnection.com Find Out How You Can Become an MS Activist https://nationalmssociety.org/advocacy RealTalk MS Episode 302: De-Stressing Air Travel if You're Living with MS with Dr. Scott Crawford https://realtalkms.com/302 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 385 Guest: Craig Bianco Privacy Policy

    31 мин.
  2. Behavioral and Lifestyle Risk Factors for MS with Dr. Jared Bruce and Dr. Amanda Bruce

    6 ЯНВ.

    Behavioral and Lifestyle Risk Factors for MS with Dr. Jared Bruce and Dr. Amanda Bruce

    There are genetic risks associated with MS, there are demographic risks of experiencing a more severe disease course, and there are also behavioral and lifestyle risks that will increase the chance that someone will be diagnosed with MS. Joining me today to discuss behavioral and lifestyle MS risk factors and how they can be mitigated are Doctor Jared Bruce and Dr. Amanda Bruce. Dr. Jared Bruce is a neuropsychologist and the director of psychiatric research at the University of Missouri-Kansas City School of Medicine. Dr. Amanda Bruce is a clinical psychologist and an assistant professor in the Department of Behavioral Pediatrics at the University of Kansas Medical Center. We're also reviewing the details of the Inflation Reduction Act, which means, beginning in 2025, significantly lower out-of-pocket costs for prescription medications for the quarter-million people with MS who are on Medicare.  We'll tell you about study results for a novel drug that was effective in remyelination and restoring lost function to mice with the mouse model of MS. We'll share the details of a study that shows how specific comorbidities affect specific MS outcomes. We'll review results of a study that shows men with MS who start a high-efficacy disease-modifying therapy experience fewer relapses. And we'll tell you how an artificial intelligence chatbot soundly beat human experts in predicting the results of neuroscience studies. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Behavioral and Lifestyle risk factors for MS (and how to mitigate them)   :22 It's 2025, and that means significant out-of-pocket savings on prescription medications for people with MS on Medicare  1:20 Novel drug shows effectiveness in remyelination and restoring function in mouse model of MS  3:26 Study shows how specific comorbidities affect specific MS outcomes  5:17 Study shows men on high-efficacy disease-modifying therapies experience fewer MS relapses  8:46 Study shows AI beats human experts in predicting results of neuroscience studies  12:22 Dr. Jared Bruce and Dr. Amanda Bruce discuss behavioral and lifestyle MS risk factors   16:43 Share this episode  32:13 Have you downloaded the free RealTalk MS app?  32:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/384 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS STUDY: Selective Retinoid X Receptor Agonism Promotes Functional Recovery and Myelin Repair in Experimental Autoimmune Encephalomyelitis https://actaneurocomms.biomedcentral.com/articles/10.1186/s40478-024-01904-x STUDY: Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review https://msard-journal.com/article/S2211-0348(24)00519-4/fulltext STUDY EXPLAINED (Plain English): Comorbidities and Their Association with Outcomes In the Multiple Sclerosis Population: A Rapid Review https://tremlettsmsresearchexplained.wordpress.com/2024/10/29/comorbidities-and-their-association-with-outcomes-in-the-multiple-sclerosis-population-a-rapid-review-explained STUDY: Comparative Effectiveness of High-Efficacy and Moderate-Efficacy Disease-Modifying Agents in Reducing the Annualized Relapse Rates Among Multiple Sclerosis Patients in the United States https://sciencedirect.com/science/article/abs/pii/S0091743524003359 STUDY: Large Language Models Surpass Human Experts in Predicting Neuroscience Results https://nature.com/articles/s41562-024-02046-9 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 384 Guests: Dr. Jared Bruce and Dr. Amanda Bruce Privacy Policy

    34 мин.
  3. Episode 383: Revisiting ECTRIMS 2024 with Dr. Bruce Bebo and Kristine Werner Ozug

    30.12.2024

    Episode 383: Revisiting ECTRIMS 2024 with Dr. Bruce Bebo and Kristine Werner Ozug

    One of the most important MS research events every year is the annual European Committee for Treatment and Research in MS Scientific Congress, usually referred to by its acronym, ECTRIMS.    You've made our podcast episode that followed ECTRIMS the most downloaded episode of the year. So, this week, I'm revisiting the two conversations that I had immediately after the ECTRIMS conference ended. In what has become an annual tradition, it's my privilege to sit down with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, just minutes after the conclusion of ECTRIMS to get his first impressions of the news and presentations that caught his eye.   This year, I also wanted to bring you the perspective of someone who's living with MS, who attended ECTRIMS for the very first time.  So, less than an hour after the conference concluded, I had a conversation with Kristine Werner Ozug. (Full disclosure, Kristine is a member of the RealTalk MS team.) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Revisiting ECTRIMS 2024   :22 Dr. Bruce Bebo shares the announcements and presentations that caught his eye at ECTRIMS  1:59 Kristine Werner Ozug shares a patient's perspective on attending the largest MS research conference in the world  14:07 Share this episode  26:54 Have you downloaded the free RealTalk MS app?  27:14 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/383 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 383 Guests: Dr. Bruce Bebo and Kristine Werner Ozug Privacy Policy

    28 мин.
  4. Episode 382: Revisiting Women's Health Issues and MS with Dr. Anna Shah and Dr. Rhonda Voskuhl

    23.12.2024

    Episode 382: Revisiting Women's Health Issues and MS with Dr. Anna Shah and Dr. Rhonda Voskuhl

    The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling and important conversations that I've had over the past year. This week, I'm revisiting two conversations I had with two experts on MS and women's health issues. MS affects women almost 3 times more frequently than it affects men, which should make understanding how MS might impact other women's health issues a priority. Unfortunately, that hasn't really been the case. The good news is we're seeing that situation change and you can expect to hear much more about MS and women's health in the coming year.    This brings me to two conversations that I had this past year when I talked with Dr. Rhonda Voskuhl and Dr. Anna Shah.    Dr. Shah is an Associate Professor of Neurology and Associate Clinic Director of Outpatient Neurology at the University of Colorado School of Medicine.   Dr. Voskuhl is the Director of the UCLA Multiple Sclerosis Program, she holds the Jack H. Skirball Chair in MS, and Dr. Voskuhl also serves as Faculty Neurologist of the UCLA Comprehensive Menopause Care Program. We have a lot to talk about! Are you ready for RealTalk MS??! Happy Holidays!  :22 This Week: Revisiting our deep dive into women's health and MS   :44 Dr. Rhonda Voskuhl discusses her research looking at why MS affects men and women differently  2:34 Dr. Anna Shah discusses how MS can affect women's health issues and how those health issues can affect MS  13:30 Share this episode  32:18 Have you downloaded the free RealTalk MS app?  32:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/382 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 382 Guests: Dr. Anna Shah, Dr. Rhonda Voskuhl Privacy Policy

    34 мин.
  5. Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

    16.12.2024

    Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman

    There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that! Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the Chief Medical Officer of BeCareLink, Dr. Charisse Litchman. The FDA has designated Tolebrutinib as a Breakthrough Therapy for the treatment of adults with non-relapsing secondary progressive MS. We're sharing the details. We'll tell you where you can participate in a phase 2 clinical trial that's designed to test the efficacy of Foralumab, an investigational disease-modifying therapy formulated as a nasal spray, among adults with non-relapsing secondary progressive MS. We'll share the details of a report that provides some frustrating data about out-of-pocket costs for MS prescription medications. Dr. Alicyn Magruder reviews the risks and benefits of using off-label medications to manage MS. And we'll share the results of a study that focused on how socioeconomic status impacts disease severity among kids and teens living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: An app that can tell you if your MS is worsening   :22 FDA awards Tolebrutinib Breakthrough Therapy designation  1:04 Phase 2 clinical trial for Foralumab adds 6 additional sites  3:13 Study compares out-of-pocket costs of MS DMTs with meds for other neurologic conditions  5:55 Dr. Alicyn Magruder discusses using off-label medications to manage MS  9:51 Study analyzes the impact of socioeconomic status on disease severity in pediatric-onset MS  15:27 Dr. Charisse Lichtman explains how the BeCare MS app is changing the game and providing an important bridge to better MS care   19:52 Share this episode  30:53 Have you downloaded the free RealTalk MS app?  31:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/381 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.msif.org/webcast-clinical-trials CLINICAL TRIAL: A Study of Nasal Foralumab in Non-Active Secondary Progressive Multiple Sclerosis Patients https://clinicaltrials.gov/study/NCT06292923 STUDY: Costs Are Still On the Rise for Commonly Prescribed Branded Neurologic Medications https://neurology.org/doi/10.1212/WNL.0000000000210029 STUDY: Association of Social Determinants of Health with Brain MRI Outcomes in Individuals with Pediatric Onset Multiple Sclerosis https://neurology.org/doi/10.1212/WNL.0000000000210140 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 381 Guests: Dr. Alicyn Magruder, Dr. Charisse Litchman Privacy Policy

    32 мин.
  6. Thriving in Cold Weather with MS with Dr. Lisa Doggett

    09.12.2024

    Thriving in Cold Weather with MS with Dr. Lisa Doggett

    If you're living with MS, you've probably already learned that hot weather, hot baths, or anything that causes your body temperature to increase can quickly cause your symptoms to worsen. But winter can also be a challenging time. Less daylight, frigid temperatures, ice, and snow can all have an impact on MS. Dr. Lisa Doggett returns to the podcast with tips and strategies for enjoying winter while staying healthy, safe, and warm.  We'll also remind you that the International Progressive MS Alliance global webcast is happening tomorrow -- Dec. 11th! And we'll share the details you'll need to sign up. We'll tell you about study results from Sweden that show that experiencing serious COVID-19 makes it twice as likely that someone will develop MS. (And we'll tell you why those study results aren't as scary as they may sound!) We're sharing research that has uncovered evidence of nerve damage in the central nervous system up to 9 years before someone experiences MS symptoms. We'll tell you about a team of biomedical engineers who are creating a tiny implantable device that will warn you if your MS is worsening or if you're heading for a relapse. And if you're over 55, you're living with MS, and you have 15 minutes to spare, we'll tell you about an online survey that we hope you'll decide to participate in. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Winning against winter when you're living with MS   :22 Don't miss the International Progressive MS Alliance global webcast on Dec. 11  1:46 A study shows that serious COVID-19 doubles the likelihood that someone will develop MS  2:42 Research reveals that nerve damage can occur in the central nervous system up to 9 years before you can experience any symptoms of MS  6:13 Imagine a tiny device implanted in your arm that can alert you if your MS is worsening or you're headed for a relapse   8:48 If you're 55 years old or older and you've been diagnosed with MS, there's a survey just for you  10:56 Dr. Lisa Doggett shares tips and strategies for thriving in cold weather when you're living with MS  12:29 Share this episode  26:14 Have you downloaded the free RealTalk MS app?  26:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/380 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials STUDY: SARS-CoV-2 Infection and Risk of Subsequent Demyelinating Diseases: National Register-Based Cohort Study https://academic.oup.com/braincomms/article/6/6/fcae406/7909395 STUDY: Temporal Dynamics of Plasma Neurofilament Light In Blood Donors with Preclinical Multiple Sclerosis https://neurology.org/doi/10.1212/NXI.0000000000200335 SURVEY: If you are 55 years old or older and living with MS, please complete https://illinois.qualtrics.com/jfe/form/SV_5oM7xmdpdSphTiC Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 380 Guests: Dr. Lisa Doggett Privacy Policy

    28 мин.
  7. Special Episode: Aging with MS with Dr. Leorah Freeman

    05.12.2024 · БОНУСНЫЙ КОНТЕНТ

    Special Episode: Aging with MS with Dr. Leorah Freeman

    Disease-modifying therapies work, and, as a result, people with MS are living longer. With half the MS population over the age of 55, it's never been more urgent to understand how the process of aging impacts MS and how MS impacts the process of aging. In this special episode of RealTalk MS, Dr. Leorah Freeman discusses the many factors associated with aging with MS. This special episode of RealTalk MS is sponsored by Viatris. SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/V202 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Devices https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode V202 Guests: Dr. Leorah Freeman Privacy Policy

    20 мин.
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Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

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