MND Matters

Motor Neurone Disease Association
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MND Matters

The MND Matters podcast offers people living with and affected by motor neurone disease access to information, informal advice and expertise. Created by the MND Association, the podcast will explore a wide range of subjects alongside people affected by MND. As well as being an extra information source for the MND community, MND Matters will also be  a new tool for the Association to use to raise awareness among the wider community. Find out more on our website www.mndassociation.org.

  1. 10/10/2024

    MND Matters Episode 34: Behind the curtain with Michael Patrick and Oisín Kearney

    Eighteen months after announcing his diagnosis of MND, actor and writer Michael Patrick gives us an insight into his starring role in a special adaptation of Shakespeare’s Richard III – in which Richard receives a diagnosis of MND. Alongside friend and creative partner Oisín Kearney, Michael talks about how moments of the play hold up a mirror to his own MND experiences, and the pair give host Domonique a trip down memory lane to relive their past successes, including the award-winning play and BBC3 series, My Left Nut.

    33 min

  2. 09/12/2024

    MND Matters Episode 33: Q&A with Coronation Street’s Dan Brocklebank and Peter Ash

    Coronation Street actors Dan and Peter answer your questions in this special episode of MND Matters. Go behind the scenes of Peter’s award-winning portrayal of Corrie character Paul, who was diagnosed with MND in 2023, and hear more about how Dan’s personal connection to the disease influenced playing the role of Paul’s husband and carer, Billy.

    23 min

  3. 06/13/2024

    MND Matters Episode 32: Caring for someone with MND

    "One of the things we’ve said is - as long as we laugh more times than we cry, we're winning.” Carers of people with motor neurone disease (MND) often face significant emotional and financial challenges. In this episode, released during Carers Week 2024, Martyn shares his personal experience as an unpaid carer for his wife Anna, who was diagnosed with MND in May 2023. As part of our MND Guarantee campaign, we are calling on the next government to do a full review of the support currently available to unpaid carers. Unpaid carers are the backbone of support for people with MND, and the financial support they receive does not reflect the contribution they make. We want this to change. You can urge your MP candidates to sign the MND Guarantee by taking part in our e-action – it will only take a few minutes.

    23 min

  4. 02/29/2024

    MND Matters Episode 31: Tanya Arnold sits down with Tanya Curry

    Sports journalist and West Yorkshire branch patron Tanya Arnold sits down with Chief Executive Tanya Curry, who recently marked one year in post at the MND Association. I In this episode, Tanya discusses her tenure so far, her passion for supporting people affected by MND and her ambitions for the Association in 2024 and beyond.

    25 min

  5. 02/01/2024

    MND Matters Episode 30: The Love Inside - The Making of our Campaign

    Have you seen our new awareness campaign, The Love Inside? In this episode, host Helen chats to the MND Association’s Director of External Affairs Chris James to find out more about the awareness campaign, the reasons behind exploring TV advertising for the first time in years and what the Association hopes to achieve from The Love Inside.   Also on the podcast is Mike and Zoe Sumner, who many of you might remember from Episode 9 of MND Matters: Dating after diagnosis. Mike and his wife Zoe star in some of The Love Inside adverts and they tell us what it was like to be involved and their hopes for the campaign.   You can watch our TV ad here.

    20 min

  6. 08/03/2023

    MND Matters Episode 29: Cultural challenges with MND

    In this thought-provoking episode of the MND Matters podcast, Yvonne Johnson, living with MND, and author Liv Little, whose dad died with MND in 2022, talk to the Association about some of the cultural challenges around navigating the disease.     Join us as we learn of some of the challenges around representation and medical support for people of colour in the MND community. While Yvonne shares her incredible story and the ways she’s trying to bring about change, Liv tells us about her dad and his journey with the disease, who she was caring for while writing her debut novel, Rosewater.     To find out more about the Association’s inclusion work, click here.   We’d love to hear more stories from underrepresented people in the MND community. If this sounds like something you’d like to be involved with, contact communications@mndassociation.org

    40 min

  7. 06/21/2023

    MND Matters Episode 28: Eddie Redmayne meets Lesley Connor

    In this captivating episode of the MND Matters podcast, Academy Award-winning actor Eddie Redmayne takes the reins as he sits down with the incredible Lesley Connor, an MND Association volunteer whose unwavering dedication has spanned two decades. Join us as we explore Lesley's journey, from her various roles within the Association to her current position as an MND Connect Helpline volunteer. Throughout this heartfelt conversation, Eddie and Lesley delve into the challenges, triumphs, and the immeasurable impact Lesley has made in the lives of individuals and families affected by motor neurone disease – shining a light on the vital role volunteers play across the country. Tune in and be inspired by Lesley's passion, resilience, and selflessness as she shares her experiences and the work carried out by the MND Association. Get ready for an episode that will broaden your understanding and remind us all of the power of community. Eddie and Lesley, the stage is yours. If you would like to volunteer for the MND Association, click here to find a role that suits you.

    17 min

  8. 05/25/2023

    MND Matters Episode 27: Rob Burrow Leeds Marathon

    This month's episode was recorded on location at the very first Rob Burrow Leeds Marathon, which took place on Sunday 14 May. Our Press Officer, Ally, was roaming the course, Headingley Stadium, our charity tent and reception room to speak with some of our incredible runners and supporters, both pre and post race. You'll also experience the atmosphere when Kev and Rob crossed the finish line together. Listen in to get a sense of the occasion. We have guaranteed charity places for next year's Rob Burrow Leeds Marathon, click here to sign up!

    31 min
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About

The MND Matters podcast offers people living with and affected by motor neurone disease access to information, informal advice and expertise. Created by the MND Association, the podcast will explore a wide range of subjects alongside people affected by MND. As well as being an extra information source for the MND community, MND Matters will also be  a new tool for the Association to use to raise awareness among the wider community. Find out more on our website www.mndassociation.org.

Information

  • Creator
    Motor Neurone Disease Association
  • Years Active
    2021 - 2024
  • Episodes
    38
  • Rating
    Clean
  • Copyright
    © Motor Neurone Disease Association
  • Show Website
    MND Matters

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