69 episodes

The International Myeloma Foundation (IMF) is the world’s oldest and largest myeloma organization, reaching more than 525,000 members in 140 countries.

Founded in 1990, the IMF is a non-profit organization dedicated to improving the quality of life of myeloma patients and their families.

The IMF funds research, provides education, lends
support, and promotes advocacy initiatives that allow collective voices to be heard.

The IMF’s dedicated and diverse staff provides immediate help. Our knowledgeable and compassionate professionals can be reached via email at TheIMF@myeloma.org or our toll-free InfoLine 800-452-CURE (2873).

Myeloma Voices International Myeloma Foundation

    • Education
    • 5.0 • 1 Rating

The International Myeloma Foundation (IMF) is the world’s oldest and largest myeloma organization, reaching more than 525,000 members in 140 countries.

Founded in 1990, the IMF is a non-profit organization dedicated to improving the quality of life of myeloma patients and their families.

The IMF funds research, provides education, lends
support, and promotes advocacy initiatives that allow collective voices to be heard.

The IMF’s dedicated and diverse staff provides immediate help. Our knowledgeable and compassionate professionals can be reached via email at TheIMF@myeloma.org or our toll-free InfoLine 800-452-CURE (2873).

    S3E8 - A Day in the Life - Rebecca Zeiter

    S3E8 - A Day in the Life - Rebecca Zeiter

    In this episode of A Day in the Life podcast, Rebecca Zeiter, an oncology social worker, discusses the role of social workers in supporting cancer patients and their caregivers/care partners. She highlights the importance of eliminating barriers to care, providing emotional support, and helping patients navigate their treatment journey.

    Facts
    Oncology social workers are part of the healthcare team and play a crucial role in supporting cancer patients and their care partners.

    They help eliminate barriers to care, such as transportation issues and emotional barriers, and provide general support and a safe space for patients to express their feelings.

    Oncology social workers assist patients in finding transportation options to get to appointments, including public transportation, taxis, or arranging for family support.

    They also explore funding options for patients, such as grants for gas cards or assistance with car maintenance.

    Social workers coordinate appointment schedules with care partners and facilitate communication between the healthcare team and patients.

    Caregivers or care partners may face stressors related to the diagnosis, treatment uncertainties, and coordinating care.

    Shared decision making involves including the patient and their family in the decision-making process, considering their values, and respecting their dignity.

    Care partners play a significant role in supporting patients, providing transportation, emotional support, and being part of the decision-making process.

    Different care dynamic relationships, such as spouse, child, or sibling, can present unique challenges. It is important to have open communication, respect each other's perspectives, and advocate for the patient's wishes.

    • 32 min
    A Day in the Life — Jill Schock

    A Day in the Life — Jill Schock

    In this episode of the 'A Day in the Life' podcast, Jill Shook shares her journey as a myeloma care partner, navigating the challenges of her husband Jerry's disease and finding strength in her role. Gain insights into adapting to life's unexpected twists, maintaining a strong support system, and embracing the hand you're dealt. Explore the triumphs, setbacks, and unwavering determination that define their fight against myeloma. Listen now for uplifting stories, expert advice, and a reminder that together, we can overcome any obstacle.

    • 24 min
    S3E7 - Day in the Life - Carl Burgman

    S3E7 - Day in the Life - Carl Burgman

    In this episode of the “A Day in the Life” podcast, myeloma patient and support group leader Carl Burgman discusses his myeloma journey with the IMF.

    • 14 min
    S3E6 - A Day in the Life - Valarie Traynham

    S3E6 - A Day in the Life - Valarie Traynham

    In this episode of the A Day in the Life Podcast, 7-year multiple myeloma survivor and support group leader Valarie Traynham discusses her myeloma journey with the IMF.

    • 14 min
    S3E5 - A Day in the Life - Andy Sninsky

    S3E5 - A Day in the Life - Andy Sninsky

    You're listening to A Day in the Life Podcast, brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience, for those in the Myeloma Community and beyond.

    Today we are talking to Andy Sninsky, who was diagnosed with multiple myeloma in 2008, at the age of 59. Some of our listeners may be familiar with Andy, who is the self-described that crazy guy on a bike. Andy claims this moniker because despite a myeloma diagnosis, undergoing chemotherapy, radiation, and an autologous stem cell transplant, Andy has managed to complete multiple bicycle tours of Europe, and across the US and Canada.

    • 33 min
    S3E4 - A Day in the Life - Nick Lenoir

    S3E4 - A Day in the Life - Nick Lenoir

    You're listening to a Day in the Life podcast brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond. Today we're talking to Nick Lenoir, who was diagnosed with multiple myeloma in 2016 at the young age of 31.

    • 22 min

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