17 episodes

myFace’s Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community.

myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a community.

Sharing these stories will enable those within the community to feel empowered by letting them know they are not alone and that their voices are heard.

myFace, myStory Dina Zuckerberg, myFace

    • Education
    • 5.0 • 7 Ratings

myFace’s Dina Zuckerberg hosts a monthly broadcast and podcast series with interviews and roundtable discussions from the craniofacial community.

myFace, myStory aims to help educate the public about craniofacial differences and what those with facial differences deal with as individuals and as a community.

Sharing these stories will enable those within the community to feel empowered by letting them know they are not alone and that their voices are heard.

    Meet Grace: Teenage Disability Advocate & TikTok Sensation

    Meet Grace: Teenage Disability Advocate & TikTok Sensation

    myFace’s Dina Zuckerberg spoke with teenage disability advocate and TikTok sensation, Grace Nova. This episode shed light on Grace’s journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and the craniofacial communities by providing an inside look on the challenges that those with differences face every day from a first-hand perspective.

    • 36 min
    My Imperfect Beauty - A Conversation with Bella Lucia

    My Imperfect Beauty - A Conversation with Bella Lucia

    myFace’s Dina Zuckerberg spoke to author, poet, retired nurse practitioner, and advocate for the cleft community, Luci Capo Rome about her memoir, Lucia's Story: My Imperfect Beauty, written in honor of facial differences. We will follow her journey of being born with a severe and complete bilateral cleft lip and palate and how she rose above all the challenges that went with it. 

    • 39 min
    Advocating for Your Child: A Parent's Perspective

    Advocating for Your Child: A Parent's Perspective

    Advocating for your child with a cleft lip/palate or craniofacial condition can be challenging, but it has a critical impact on your child’s outcomes. In this episode, we heard from parents who have helped their children navigate and overcome bullying, supported their children through medical procedures and surgeries, and who have fought - and succeeded - to get their children the services they need,  including speech therapy, in-school nursing care, and more. 

    • 45 min
    A Q&A With Rasheera Dopson

    A Q&A With Rasheera Dopson

    myFace’s Dina Zuckerberg sat down with author and disability justice activist, Rasheera Dopson, to discuss her memoir: Beauty With a Twist, and how her lived experiences led her to launch a brand that focuses on empowering young women living with various disabilities.  

    • 45 min
    Finding Joy in Your Journey Growing Up with a Cleft or Facial Difference

    Finding Joy in Your Journey Growing Up with a Cleft or Facial Difference

    The journey to find confidence and self-acceptance can be a long one for those in the craniofacial community, but rewarding nonetheless. myFace’s Dina Zuckerberg sat down with guest speaker Cleft Confidence Coach & Transformational Speaker, Iva Ballou, as they discussed how Ms. Ballou helps empower those growing up with craniofacial differences by providing tips and strategies on how to find inner joy, power, and self-acceptance.

    • 44 min
    Life with a Facial Difference: A Conversation with Author Shelley Hull

    Life with a Facial Difference: A Conversation with Author Shelley Hull

    myFace’s Dina Zuckerberg sat down with guest speaker Author Shelley Hull as they discussed Ms. Hull’s memoir, Shelley: The uplifting story of a battle to overcome disfigurement. This episode was autobiographical in nature as Ms. Hull spoke about the challenges and triumphs she dealt with while growing up living with Goldenhar Syndrome, the lessons she has learned, and how her journey has inspired her to become an advocate for others living with facial differences.

    • 49 min

Customer Reviews

5.0 out of 5
7 Ratings

7 Ratings

coopsnori ,

Norah’s mom

Loved this. I didn’t get to hear the new episode today. But I listened to the first two episodes . I am happy that you posted in the cleft mommy group. Please continue to inspire those in the cleft community. Thank you to all three of your guest.