Narcolepsy’s Hidden Toll: Tamby’s Journey

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short.

This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy.

Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy.

Chapter Timestamps

(00:10) Life With Narcolepsy
(09:17) Struggles With Sleep and School
(21:24) Navigating School and Misdiagnoses
(27:36) Navigating Narcolepsy and Misunderstanding
(40:38) Challenges of Living With Narcolepsy
(51:28) Living With Narcolepsy and Advocacy

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***If you find these symptoms relatable, please seek medical advice.***