7 episodes

No Longer Silent: Patient Access Stories amplifies the voices of real patients navigating the murky waters of the American healthcare system. These harrowing stories expose the dire consequences of delayed care and suboptimal treatment, calling for reform to allow patients and physicians to choose the best treatment plans.

No Longer Silent: Patient Access Stories Carrie’s TOUCH

    • Health & Fitness
    • 5.0 • 1 Rating

No Longer Silent: Patient Access Stories amplifies the voices of real patients navigating the murky waters of the American healthcare system. These harrowing stories expose the dire consequences of delayed care and suboptimal treatment, calling for reform to allow patients and physicians to choose the best treatment plans.

    Getting Loud With Dr. Le Ondra Clark Harvey

    Getting Loud With Dr. Le Ondra Clark Harvey

    In this vulnerable episode, Dr. Le Ondra Clark Harvey shares her deeply personal journey with breast cancer, from the initial shock and sadness to finding strength and purpose in spreading awareness. She recounts how she used humor and social media to cope, wearing funny t-shirts post-surgery to spark conversations. Dr. Clark Harvey also delves into the emotional challenges, including her struggles with her scars and feelings of guilt for not undergoing chemotherapy or radiation like her mother and aunt. Through raw photography and public sharing, she found healing and aimed to break the stigma around breast cancer, especially within the African-American community. 
     
    Editors Note: Dr. Clark Harvey is a psychologist, not a psychiatrist as stated in the intro. 

    • 14 min
    Getting Loud With Jess Isomoto

    Getting Loud With Jess Isomoto

    In this inspiring episode, Jess Isomoto, a stage 3 breast cancer survivor, shares her journey from diagnosis to advocacy. Diagnosed with invasive ductal carcinoma in February 2020, Jess discusses the challenges she faced accessing care, especially as an Asian American woman during the COVID-19 pandemic. She highlights the importance of patient advocacy, the need for better representation and support for communities of color, and the systemic issues in healthcare that often leave patients feeling unseen and unheard. Jess's story is a powerful reminder of the resilience and strength required to navigate cancer and the critical need for equity in healthcare.

    • 37 min
    Getting Loud With Rev. Tammie Denyse, PhD.

    Getting Loud With Rev. Tammie Denyse, PhD.

    In this illuminating episode, Reverend Tammie Denyse, a breast cancer survivor, ordained minister, tireless advocate for Black women's health, and co-founder of Carrie's TOUCH, shares her story of dedicating nearly two decades to addressing the alarming 41% higher mortality rate for Black women with breast cancer compared to white women.
    We explore Reverend Tammie's inspiring journey from diagnosis to advocacy and learn about groundbreaking initiatives like Project SOAR (Speaking Our African American Realities). She also discusses the unique challenges Black women face in healthcare, the importance of culturally sensitive support, and how Carrie's TOUCH is working to empower patients through education, advocacy, and research.

    • 49 min
    Getting Loud With Tonya Benefield

    Getting Loud With Tonya Benefield

    In this eye-opening episode, Tonya Benefield shares her challenging journey to diagnosis and treatment. Tonya faced numerous obstacles, including being initially told she was too young for a mammogram, experiencing multiple appointment cancellations and referral issues, and dealing with insensitive medical staff. She highlights the critical support she received from Carrie's TOUCH, which helped her navigate the complex healthcare system.
    Tonya also speaks on the emotional and physical toll of her experience, including unexpected surgical outcomes and the lasting impact on her self-image. Finally, Tonya emphasizes the need for more patient advocates, culturally competent care, and ongoing support for cancer patients beyond their initial treatment.

    • 38 min
    Getting Loud With Dr. Kasandra

    Getting Loud With Dr. Kasandra

    In this insightful episode, Dr. Kasandra White, an obstetrician-gynecologist, discusses the critical issues surrounding healthcare access and the patient experience, particularly for Black women. She shares her personal and professional perspectives on the systemic challenges within the healthcare system, emphasizing the importance of trauma-informed care and the need for empathy and individualized attention in patient interactions.
    Dr. White also highlights the legislative efforts to protect healthcare workers from discrimination and retaliation, and the broader implications for patient care. This episode is a must-listen for anyone interested in understanding and improving the healthcare experience for marginalized communities.
     

    • 40 min
    Getting Loud With Rev. Tawana Angela Davis, PhD

    Getting Loud With Rev. Tawana Angela Davis, PhD

    Reverend Tawana Angela Davis, PhD shares her eight-year journey battling metastatic HER2-positive breast cancer. Diagnosed in 2016, she underwent extensive treatments, including chemotherapy, surgery, and a clinical trial for immunotherapy, which significantly reduced her cancer. Throughout her journey, she emphasized the importance of community support, self-advocacy, and maintaining faith. She also highlighted the systemic challenges Black women face in healthcare and urged politicians to prioritize equitable access to care. Her story is one of resilience, self-love, and the power of collective support.

    • 44 min

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