On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:   Jonathan's Experience with Aphasia  1. Initial Incident:  In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.  2. Medical Emergency:  He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.   3. Impact on Daily Life:     - Jonathan struggled with basic tasks such as speaking, reading, and writing.    - He had memory issues, recalling only his postcode but not his full address or other personal information.    - He faced challenges in understanding spoken language but could still sign his name.  4. Support from Family:  His wife, Ann, played a crucial role in his recovery:    - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.    - This early intervention was vital for his rehabilitation.   5. Progress Through Therapy:  With the help of speech therapy, Jonathan made significant improvements:    - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.   6. Advocacy and Awareness:     - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.    - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.   Understanding Aphasia  Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently.   Key Takeaways  - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected.  Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.  Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.  For permissions or inquiries, please contact hello@buffalolounge.co.uk

  1. International Aphasia Awareness Campaign with Claire Bennington

    3D AGO

    International Aphasia Awareness Campaign with Claire Bennington

    Send us a text International Aphasia Awareness Campaign with Claire Bennington In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide. 00:00 Introduction to the Podcast and Guest 01:24 Understanding Aphasia 02:01 Claire Bennington's Background and Role 03:47 Challenges and Activities of the Australian Aphasia Association 06:19 Fundraising Efforts and Campaigns 09:03 Global Aphasia Awareness Campaign 17:29 Conclusion and How to Get Involved To donate to Claire's Just Giving page, click here: https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign Claire Bennington - c.bennington@student.uq.edu.au> Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    25 min
  2. Robert Baldock's Voice of Recovery, Music and Aphasia

    AUG 3

    Robert Baldock's Voice of Recovery, Music and Aphasia

    Send us a text Overcoming Aphasia: Robert Baldock’s Journey and Advocacy This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources. 00:00 Introduction to Robert Baldock 00:50 Understanding Aphasia 01:33 Robert's Stroke Experience 03:26 Life After Stroke 07:09 Communication Challenges and Solutions 08:43 Advocacy and Campaigning 09:33 Conclusion and Resources For more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website  https://www.projectmoonbase.com Robert's original music can be found on his Band Camp website https://aleatorymusicsystems.bandcamp.com/music Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    12 min
  3. Life in the key of Aphasia - Graham Hall

    JUN 24

    Life in the key of Aphasia - Graham Hall

    Send us a text Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast Living with Aphasia: A Journey Through Music and Recovery Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia. 00:00 A Life-Changing Stroke 01:03 Introduction to the Podcast 01:22 Understanding Aphasia 01:59 Personal Journey with Aphasia 03:20 Musical Career and Aphasia 05:02 Creating Music with Aphasia 07:48 Future Aspirations and Reflections 11:49 Conclusion and Resources Graham's website:  https://grahamhall.bandcamp.com/music Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    13 min
  4. The Aphasia Awareness Month Special

    JUN 15

    The Aphasia Awareness Month Special

    Send us a text Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially during June, the designated Aphasia Awareness Month. They share insights about various types of Aphasia, mention notable individuals like Maurice Ravel and Bruce Willis who have faced the condition, and the impact and advances in therapy. The conversation also touches on diverse topics including a musician friend, Graham Hall, and a nostalgic reflection on Rob's appearance in 'Doctor Who.' The episode underscores the significance of awareness and community support in understanding and managing Aphasia. 00:00 Introduction to the Podcast and Hosts 00:45 Understanding Aphasia 02:05 Aphasia in Popular Culture 04:51 Interview with Graham Hall 07:27 Famous People with Aphasia 14:37 Rob's Doctor Who Experience 19:58 Podcast Growth and Listener Demographics 21:23 Conclusion and Resources Life in the key of Aphasia - https://grahamhall.bandcamp.com Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    23 min
  5. Navigating Conversations with Aphasia: Insights from Iain Stansfield

    MAY 19

    Navigating Conversations with Aphasia: Insights from Iain Stansfield

    Send us a text Navigating Conversations with Aphasia: Insights from Iain Stansfield In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page. 00:00 Understanding Aphasia: A Shift in Conversations 00:34 Welcome to 'On the Tip of My Tongue' 02:33 Introducing Iain Stansfield 03:06 The Therapy Group Experience 04:42 Reflections on Communication Challenges 06:40 Impact of Video Reflections 07:37 Changes and Insights Post-Therapy 10:49 Future Directions and Final Thoughts 12:33 Conclusion and Resources Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    13 min
  6. Dan's Journey: Triumph Over Aphasia

    MAY 9

    Dan's Journey: Triumph Over Aphasia

    Send us a text Dan's Journey: Triumph Over Aphasia In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK. 00:00 Understanding Brain Injury and Aphasia 00:23 Introduction to the Podcast 00:41 What is Aphasia? 01:19 Dan Sutton's Inspiring Journey 02:07 Daily Life and Challenges 02:44 Social Activities and Hobbies 04:10 Struggles with Reading and Audio Books 05:54 The Power of Community and Support 09:10 Singing and Aphasia 10:14 Conclusion and Resources Visit the to Minds over Matter instagram account https://www.instagram.com/mindsovermatter.osm/ Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    11 min
  7. Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge

    APR 8

    Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge

    Send us a text Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps. 00:00 Introduction to the Podcast 00:36 Understanding Aphasia 01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker 02:19 Sarah's Journey and Business 03:02 Challenges and Changes in Disability Inclusion 06:17 Employment Gaps and Workplace Adjustments 19:39 The Role of Technology in Disability Inclusion 20:30 Social Perceptions and Personal Experiences 31:29 Future Outlook and Final Thoughts 32:51 Conclusion and Resources https://www.sarahpetherbridge.co.uk Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    34 min
  8. MAR 19

    Resilience and Recovery: Talia Lazarus' Inspiring Journey

    Send us a text In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief. 00:00 Introduction to Talia Lazarus' Journey 00:48 Understanding Aphasia 01:49 The Accident and Immediate Aftermath 03:59 The Road to Recovery 05:58 Running a Half Marathon 09:29 Starting the Podcast 13:56 Career as a Presenter and Broadcaster 21:44 Embracing Positivity and Overcoming Challenges 31:43 Reflections and Future Plans 36:56 Closing Remarks and Farewell Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com http://x.com/buffaloloungeuk https://www.linkedin.com/in/jonathanhirons/ https://www.instagram.com/buffalolounge The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    39 min

About

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:   Jonathan's Experience with Aphasia  1. Initial Incident:  In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.  2. Medical Emergency:  He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.   3. Impact on Daily Life:     - Jonathan struggled with basic tasks such as speaking, reading, and writing.    - He had memory issues, recalling only his postcode but not his full address or other personal information.    - He faced challenges in understanding spoken language but could still sign his name.  4. Support from Family:  His wife, Ann, played a crucial role in his recovery:    - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.    - This early intervention was vital for his rehabilitation.   5. Progress Through Therapy:  With the help of speech therapy, Jonathan made significant improvements:    - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.   6. Advocacy and Awareness:     - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.    - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.   Understanding Aphasia  Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently.   Key Takeaways  - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected.  Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.  Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.  For permissions or inquiries, please contact hello@buffalolounge.co.uk