Developing a Community-Led Rare Disease ELSI Research Agenda

In this episode, Dr. Jeremy Garrett is joined by Courtney Berrios and Kimberly Freeman. They will be discussing the topic of pediatric rare diseases and the development of a community-led research agenda for better understanding the needs and priorities of patients and families living with rare diseases.


Click here to read Dr. Garrett's article focusing on Developing a community-led rare disease ELSI research agenda