PSPA Podcast

PSPA
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PSPA Podcast

The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pavers Foundation in memory of Mary Youll.

  1. AUG 7

    Episode 6: Research update with Dr Ed Jabbari

    In this episode, PSPA Research Coordinator, Megan Hodgson talks to Dr Ed Jabbari. Dr Jabbari has been working in the field of PSP & CBD research since 2016, when he became the Sara Koe Research Follow. Ed talks about his different research projects, study outcomes and hopes for the future.

    21 min

  2. JUN 17

    Episode 5: PSP & CBD Awareness Week with Rebecca Packwood and Mark Jackson

    In this episode, CEO Rebecca Packwood talks to PSPA's new Director of Policy and Influencing, Mark Jackson. Mark shares what his role is and the launch of the #WeCare campaign and how people can help amplify our voice in PSP & CBD Awareness week, and beyond.

    21 min

  3. JUN 14

    Episode 4: Becoming a PSPA volunteer with Lavonne McCormack and Sally Reynolds

    PSPA Volunteer Coordinator Lavonne McCormack speaks to volunteer Sally Reynolds. Sally shares details of how she become a Support Group volunteer ten years ago. And also how she increased her volunteering support to include being a Link Volunteer.

    16 min
  4. Episode 3: PSPA's 30th Anniversary with CEO Rebecca Packwood

    JAN 2

    Episode 3: PSPA's 30th Anniversary with CEO Rebecca Packwood

    2024 is a milestone year for PSPA - it marks 30 years since the charity was registered. In this episode of the PSPA Podcast, CEO Rebecca Packwood shares an insight into what we have planned for this important year. Highlights of the year include: Telling 30 stories for 30 years of PSPA in our interactive timeline – new stories will be released each month. Circulating four themed editions of our magazine, PSPA Matters Enabling you to share special moments and dates via our Celebration Wall Opening the PSPA 30th Anniversary Awards nomination period Launching our 30 for 30 challenge with PSPA supporter Kelly Hooper Holding a 30th Anniversary Party in London Building the biggest Walk of Hope to date And much, much more.

    15 min
  5. Episode 2: Diagnosing PSP & CBD with Dr Boyd Ghosh

    11/30/2023

    Episode 2: Diagnosing PSP & CBD with Dr Boyd Ghosh

    As rare diseases, we know diagnosing PSP & CBD can be difficult. In the second episode of series two of the PSPA Podcast, we talk to Dr Boyd Ghosh about how PSP & CBD are diagnosed, what the challenges can be and what he hopes are for the future to improve diagnosis of the conditions.

    22 min
  6. Episode 1: Living with CBD

    11/07/2023

    Episode 1: Living with CBD

    In the first episode of our second series of the PSPA Podcast, we talk to Gilda who has been diagnosed with CBD. Gilda talks about her symptoms, her diagnosis and how she has adapted her home and hobbies to ensure she remains active and independent, for as long as possible. Tune into Gilda's personal experience and planning tips today!

    19 min

  7. 09/30/2022

    Episode 14 - How the Helpline can help

    Today we’re joined by Jules Brown, PSPA Helpline Manager to talk about the support we can offer to your and your family.

    39 min

  8. 08/11/2022

    PSPA Podcast Episode 13 - Support for Young People

    In our 13th episode we speak to Kathryn Embree, the PSPA volunteer who runs our Youth Support Group. Here Kathryn talks about the importance of peer support and the benefits of the group.

    28 min
See All (20)

About

The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP or CBD. This podcast is brought to you thanks to the kind support of the Pavers Foundation in memory of Mary Youll.

Information

  • Creator
    PSPA
  • Years Active
    2021 - 2024
  • Episodes
    20
  • Rating
    Clean
  • Copyright
    © PSPA
  • Show Website
    PSPA Podcast

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