4 episodes

Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.

Rare Matters Podcast Michael Stone

    • Society & Culture
    • 5.0 • 8 Ratings

Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.

    Finding Comfort within the Unknown: Hope, Boundaries, and Beyond

    Finding Comfort within the Unknown: Hope, Boundaries, and Beyond

    Welcome back to the Rare Matters Podcast! I'm your host, Mikey Stone, and in this episode, we embark on a journey through the intricate landscape of life as a disabled individual. Join me as I candidly share my personal experiences, insights, and hard-won wisdom, offering a glimpse into the challenges and triumphs that shape my everyday existence.From navigating societal perceptions to embracing resilience and hope, I delve into the complexities of living with a disability, shedding light on ...

    • 1 hr 12 min
    Courageously Candid: Living with Addison's Disease and Functional Neurological Disorder - Savannah's Story

    Courageously Candid: Living with Addison's Disease and Functional Neurological Disorder - Savannah's Story

    In the latest installment of the Rare Matters Podcast, we have the honor of sitting down with Savannah, a remarkable individual navigating life with Addison's Disease, Functional Neurological Disorder, and a cluster of yet-to-be-diagnosed conditions. In a candid and courageous conversation, Savannah sheds light on the daily realities of living with multiple chronic illnesses. Join us as we delve into her journey, exploring the triumphs, challenges, and the resilience that defines her experien...

    • 55 min
    Exploring Medical Gaslighting and Self Advocacy

    Exploring Medical Gaslighting and Self Advocacy

    Join us for the second episode of Rare Matters, where we delve into the crucial yet often overlooked topic of medical gaslighting. In this episode, we uncover what medical gaslighting entails, shed light on its subtle manifestations, and equip you with the tools to identify and combat it. Through insightful discussion and a compelling personal narrative, we explore the journey of self-advocacy, empowering listeners to navigate the healthcare system with confidence and resilience. Tune in to d...

    • 46 min
    My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery

    My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery

    Introducing the inaugural episode of Rare Matters Podcast, where host Mikey Stone courageously delves into his personal odyssey living with an undiagnosed rare disease. In this groundbreaking debut, Mikey offers an intimate glimpse into his profound medical journey, unraveling the complexities of his diagnosis quest like never before. Through candid storytelling and heartfelt introspection, Mikey lays the foundation for what promises to be a compelling exploration of the rare disease landscap...

    • 1 hr 28 min

Customer Reviews

5.0 out of 5
8 Ratings

8 Ratings

bridget dunn ,

So good!

Love this new podcast!

Top Podcasts In Society & Culture

This American Life
This American Life
Stuff You Should Know
iHeartPodcasts
Shawn Ryan Show
Shawn Ryan | Cumulus Podcast Network
Call It What It Is
iHeartPodcasts
Animal
The New York Times
The Viall Files
Nick Viall