Rare Matters Podcast Michael Stone
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- Society & Culture
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Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.
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Finding Comfort within the Unknown: Hope, Boundaries, and Beyond
Welcome back to the Rare Matters Podcast! I'm your host, Mikey Stone, and in this episode, we embark on a journey through the intricate landscape of life as a disabled individual. Join me as I candidly share my personal experiences, insights, and hard-won wisdom, offering a glimpse into the challenges and triumphs that shape my everyday existence.From navigating societal perceptions to embracing resilience and hope, I delve into the complexities of living with a disability, shedding light on ...
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Courageously Candid: Living with Addison's Disease and Functional Neurological Disorder - Savannah's Story
In the latest installment of the Rare Matters Podcast, we have the honor of sitting down with Savannah, a remarkable individual navigating life with Addison's Disease, Functional Neurological Disorder, and a cluster of yet-to-be-diagnosed conditions. In a candid and courageous conversation, Savannah sheds light on the daily realities of living with multiple chronic illnesses. Join us as we delve into her journey, exploring the triumphs, challenges, and the resilience that defines her experien...
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Exploring Medical Gaslighting and Self Advocacy
Join us for the second episode of Rare Matters, where we delve into the crucial yet often overlooked topic of medical gaslighting. In this episode, we uncover what medical gaslighting entails, shed light on its subtle manifestations, and equip you with the tools to identify and combat it. Through insightful discussion and a compelling personal narrative, we explore the journey of self-advocacy, empowering listeners to navigate the healthcare system with confidence and resilience. Tune in to d...
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My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery
Introducing the inaugural episode of Rare Matters Podcast, where host Mikey Stone courageously delves into his personal odyssey living with an undiagnosed rare disease. In this groundbreaking debut, Mikey offers an intimate glimpse into his profound medical journey, unraveling the complexities of his diagnosis quest like never before. Through candid storytelling and heartfelt introspection, Mikey lays the foundation for what promises to be a compelling exploration of the rare disease landscap...
Customer Reviews
So good!
Love this new podcast!