Diaries of a Heart Warrior

Amy
Diaries of a Heart Warrior

I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS).  I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect.  Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now.  Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.  

  1. 20 ENE

    Remy Mink's Story- HRHS

    Today Remy walks us through her heart journey, recounting her early years and the stuggles after her fontan surgery. As she struggled with issues from her fontan, her provider turns her to social media platforms to engage with the community. Which is how she came upon being on the Podcast. If you would like to be on the show please reach out! Facebook: Amy Erhart CunninghamInstagram: amyerhart_hlhs

    47 min

  2. 6 ENE

    Thank you! Here's to 2025!

    I want to thank everyone who volunteered to be on the podcast in 2024, those who are spending time with me in 2025 and those who are taking the time to listen!!A huge thank you to you all!Much Love Amy!

    5 min

  3. 02/12/2024

    Andrew's Story- HLHS

    Today, Andrew tells his story of being born with HLHS. His parents did not know about his heart defect prior to being born and his diagnosis came days after being home. Given his experience in middle school Andrew had to find a balance between being defined by his heart defect and being proud of it. I think Andrew does a fantastic job telling his story and how he has found the balance over come the shame he used to feel and how the CHD community has helped him. If...

    59 min

  4. 18/11/2024

    Let's Talk about St. Louis! Single Ventricle Day!

    Today I am talking with 3 fellow CHDers who went to St. Louis in October 2024. The conference is hosted by Fontan Outcome Network and NPC-QIC; CHD physicians, patients and their families come to learn about heart and liver health and how to extend the life of single ventricle patients. For patients it is a time to grow friendships and talk about our past present and future and to hear others heart stories! Ollie's Branch- Mental Health https://theohhf.org/ollies-branch...

    1 h y 1 min

  5. 04/11/2024

    Anna Jaworski- Heart mom, advocate, author, podcaster and so much more

    This is such an amazing story! Anna's journey started when she became a heart mom. She through devoting her time to learning about her child's heart condition of hypolastic left heart syndrome, her purpose became so much more! Sit back and listen to hear journey as she take you from her first step of research and questioning her child's care all they way to where she is today with 400+ episodes on her own podcast Heart to Heart with Anna.Click the link below to see all the w...

    1 h y 51 min

  6. 21/10/2024

    Meagan's Story- HLHS / Adoption Journey

    Meagan shares the process her and her husband went through to gain a precious gift. When it comes to children, we so often we don't realize how hard it is for CHD patients. Going through testing to make sure our hearts are strong enough, to making a final decision of how we want to bring a child into our lives. So many emotions are placed on overdrive in what should be one of the most joyous times of our lives and those emotions just don't fade away. We are always carr...

    1 h y 3 min

  7. 07/10/2024

    Boston's Story- HRHS

    Imagine moving to another part of the state for our child. That is what Tiffany did, with the help of her husband, family and friends. Tiffany, so beautifully tells the story of her son Boston, having a missed diagnosis on an ultrasound and working through the struggles when her child was born. I think this is as much a story of how much a mother/caregiver will sacrifice for their child and the inner strength it takes as well as having a solid foundation behind you as well ...

    1 h y 4 min

  8. 23/09/2024

    Hannah's Story- Tricuspid Atrisia- ASD/VSD

    Today Hannah shares her CHD story. Not only does she have a heart defect, but she has had to deal with other health issues along the way, that seemingly pose a greater risk to her currently. Aside from this, Hannah has found her purpose in raising her daughter Hazel and raising awareness for CHD.If you or someone you know would like to be part of the podcast you can hit me up at:Instragram: amyerhart_hlhsFacebook: Amy Erhart Cunningham

    1 h y 14 min
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I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS).  I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect.  Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now.  Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.  

Información

  • Creador
    Amy
  • Años de actividad
    2023 - 2025
  • Episodios
    28
  • Clasificación
    Explícito
  • Copyright
    © 2025 Diaries of a Heart Warrior
  • Mostrar sitio web
    Diaries of a Heart Warrior

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