Speaking of the Spectrum - An Autism Podcast

Shahrukh Sultan & Joe Templin - Autism Society Greater Hudson Region
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Speaking of the Spectrum - An Autism Podcast

A vibrant podcast hosted by Shahrukh Sultan and Joe Templin of the Autism Society Greater Hudson Region, who bring humor and heart to the forefront while exploring the diverse world of autism. Shahrukh, a Project Manager and dad to a non-verbal boy on the spectrum, and Joe, the Human Kaizen expert & swiss-army knife of skills navigating parenting with spectrum challenges, share personal stories & insights with a stellar roster of guests. Whether you're a seasoned autism advocate, a curious listener, or someone eavesdropping for a conversational gem, this podcast is for you!

  1. S02E10: Trending the Spectrum (Season Finale)

    01/11/2024

    S02E10: Trending the Spectrum (Season Finale)

    In our Season 2 finale, fueled by coffee, donuts, and a big dose of gratitude, we take a look back at the amazing journey of this season. We start with a heartfelt thank you to our listeners and a reminder of how you can support our work by donating to the Autism Society Greater Hudson Region. One of our biggest highlights? A viral Instagram reel, now at over 1 million views, sharing Islam’s beautiful message that autistic children are a “badge of honor.” We reflect on the global impact of this message and the joy of bringing positive attention to autism. This is why our show is called Speaking of the Spectrum—because putting a positive spin on the autism conversation can inspire families and individuals alike. We revisit some of our favorite moments this season, from guest Angelo Santabarbara’s tip on the free NY State Disability Identification Card for easier travel, to launching the "ADAM Project" (Autism Dads and Moms), a playful nod to Ryan Reynolds’ movie, in hopes of catching his attention! We also address an important topic for the autism community: high rates of depression, and share tips for combatting it—from getting outdoors in summer to finding fulfilling winter activities. Our “Hero of the Day” is Dr. Jason Eichenholz, a personal hero of Joe’s and a member of the Florida Inventors Hall of Fame. Inspired by his non-verbal autistic son, Jonathan, Dr. Eichenholz developed transport technology and started his charity organization, Jonathan’s Landing. As we wrap up, we recap the incredible contributions our guests have made, the essential services we discussed, and encourage our listeners to keep Speaking of the Spectrum. Join us to celebrate the highs, tackle the challenges, and continue the conversation into the future! Episode Chapters 00:00 Running on Fumes 02:27 Looking Back, and Ahead! 04:31 Autistic Kids are a Badge of Honor - Our Viral Reel 06:54 Impact of Keeping Speaking of the Spectrum 08:12 Favorite Moments 10:38 The ADAM Project - Free NYS ID Card 13:48 Fact of the Day - Mitigating Depression Rates on the Spectrum 15:36 Countering Depression with Exercise in All Seasons 18:34 Hero of the Day - Jonathan's Landing 21:03 Journey to Greater Causes

    25 phút
  2. S02E09: Directing the Spectrum

    25/10/2024

    S02E09: Directing the Spectrum

    In the penultimate episode of this Season, titled "Directing the Spectrum", we're joined by Nathan Briggs, the Executive Director of Autism Society Greater Hudson Region (ASGHR). Nathan shares his inspiring origin story, which, despite not having a direct connection to autism, is deeply rooted by an individual in his early life. We dive into Nathan's vision for the organization by the end of the decade, aligning with the Autism Society's five core values, and discuss exciting opportunities for supporting autistic individuals in college and their transition into adulthood. Continuing our exploration of how autism is understood across cultures, we touch on the Gaelic and Scotch/Irish interpretations of the word "Autism." In our ADAM Project segment, we discuss the therapeutic impact of animals on autistic children and highlight organizations that provide therapy dogs. Finally, we embrace some chaotic neutral energy and showcase our limited edition podcast mugs—find out how you can get one of your own! Episode Chapters: 00:00 Intro - A Regal Man's North Star 07:21 The 6 Year Vision 11:08 Low Hanging Fruit 13:15 Autism in Gaelic 17:13 The ADAM Project - Effect of Pets 22:00 Hero of the Day - Thinking about Tony 23:24 The Wrap Up - Nathan Got Mugged!

    25 phút
  3. S02E08: Championing the Spectrum

    18/10/2024

    S02E08: Championing the Spectrum

    In this powerful episode, we are joined by NY State Assemblyman Angelo Santabarbara, a dedicated autism dad and lifelong advocate for the cause. Angelo shares his personal journey as a second-generation immigrant, detailing how his background in civil engineering and service in the Army Reserves laid the foundation for his transition into politics—all inspired by his son, Michael, who is on the spectrum. We dive into Angelo’s deep connection with the Autism Society Greater Hudson Region, where he served as a board member for many years. His passion for advocacy has driven his fight for essential supports and services for the autism community. He highlights his groundbreaking initiative, Autism Action NY, a comprehensive 5-Step Plan designed to streamline services and provide the right support for individuals and families affected by autism. Angelo also introduces the free NY Disability ID Card, a critical tool to assist individuals in communicating essential information, particularly in high-stress situations like traffic stops or TSA checkpoints. We discuss the importance of early diagnosis, the challenges many parents face when their child is first diagnosed, and how our organization is there to guide them through the process. The conversation touches on the significant financial challenges associated with raising a child with autism, including annual care costs and the importance of self-direction budgets from the state. Angelo shares his work on the NY State Autism Advisory Board, which is breaking new ground in healthcare by driving solutions like sensory-friendly emergency rooms and addressing the employment crisis for individuals with special needs. Finally, we explore the ongoing fight to combat stigma, promote social acceptance, and create more inclusive employment opportunities for the autism community. This episode is a must-listen for anyone passionate about advocacy, public policy, and supporting individuals with autism. Episode Chapters 00:00 Intro - A Friendly Rivalry 02:31 From Engineer to Politician - An Autism Dad's Origin Story 05:50 Finding Help in Challenging Times 07:05 What Will Change Your Life - Supports, Services & Advocacy 09:02 Chasing your Passion for the Cause 09:54 The Autism Action NY 5 Step Plan 12:10 Win-Win for Everybody - The free Disability ID Card 17:07 A Helping Hand - the Autism Society Greater Hudson Region 18:07 Fact of the Day - Annual Cost of an Autistic Child 19:32 Erase the Lines - NY State Autism Advisory Board 23:03 Fighting the Stigma - Advocating for Special Needs 26:53 Getting Better by Speaking of the Spectrum!

    28 phút
  4. S02E07: "Splashing" the Spectrum

    11/10/2024

    S02E07: "Splashing" the Spectrum

    In this episode, we welcome our guest Mary Kavaney, affectionately known as "Wonder Woman" for her dedication as a board member and director of our swim program, ASAP. Mary shares insights into how ASAP is empowering autistic children to learn swimming—a crucial skill to address drowning, the leading cause of death among autistic children. We dive into the misconceptions around teaching these kids to swim and encourage parents to believe in their children's capabilities. We also talk about the silent stress levels autism parents face and provide tips for reducing stress at home. Together, we explore the economic impact of autism, highlighting the importance of supporting organizations like the Autism Society of the Greater Hudson Region. Mary opens up about her personal journey, including the challenges and emotional decisions surrounding her son Jack’s stay at the Center for Disability in NY. Lastly, we discuss back-to-school strategies as part of the ADAM Project, focusing on how parents can collaborate with school staff and boards to ensure smooth transitions. Episode Chapters 00:00 Intro - A Tie & Lasso of Truth 02:37 Hero of the Day - Paralympic Swimmer 04:18 ASAP - Power of the Swim Program 11:06 Fact of the Day - Drowning Rates 14:42 Stress Levels of Autism Parents 17:07 Economic Impact of Autism Individuals 18:33 You Before I - Parent's Decision for a Distant School 21:59 The ADAM Project - The Invitation Back 26:11 Icelandic Word for Autism 28:33 The One Great Way - Wrap Up

    29 phút
  5. S02E06: Leading the Spectrum

    06/10/2024

    S02E06: Leading the Spectrum

    In this episode of Speaking of the Spectrum, we sit down with Chris Banks, the President and CEO of the national Autism Society of America. We met Chris at our Autism Society Soiree for Autism, where he shared his love for the Saratoga racetrack. Now, he's joining us to discuss his leadership at the helm of the Autism Society, especially during the disruptive COVID pandemic. Chris shares his vision for the Autism Society, the impact of the Autism Cares Act, and his number one goal to support the autism community both nationally and globally. In our ADAM (Autism Dads and Moms) Project segment, we discuss practical tips and resources, we dive into simple, yet transformative ways families can enhance their support for individuals with autism—like securing a free handicap pass or upgrading to a more accessible stroller or wheelchair. We explore why Universal Design should be at the forefront of autism support initiatives. Chris also offers advice on how local affiliates of the Autism Society, like ours, can maximize their impact. Plus, we dive into the importance of training first responders and key personnel to better support individuals with autism through programs like the Justice Center for Autism. And, we reveal our brand-new Speaking of the Spectrum coffee mugs—available now to our amazing listeners and supporters. Tune in for an insightful conversation about leadership, advocacy, and the future of autism support with one of the most influential voices in the field. Episode Chapters: 00:00 Intro - A Fanboy Moment 03:21 The Number One Goal 05:47 The Autism Cares Act 07:48 Universal Design - No Brainers for Autism Support 13:50 Low Cost Opportunities for Autism Society Affiliates 18:44 Speaking of the Spectrum Mugs! 19:52 Fact of the Day - Origins of Autism Society 20:30 The Justice Center & Training First Responders 28:22 ...Through Speaking of the Spectrum!

    34 phút
  6. S02E05: Steering the Spectrum

    27/09/2024

    S02E05: Steering the Spectrum

    In this episode, we’re joined by Andrew Arboe, an autistic motivational speaker and driving advocate dedicated to improving the lives of those on the autism spectrum. Andrew shares his journey, offering valuable insights from his work with various organizations across the country. We open the conversation by addressing the importance of self-care for parents raising autistic children—reminding caregivers not to lose themselves in the process. We also explore how music therapy can help autistic individuals pick up on social cues, offering an unexpected tool for development. Andrew delves into his personal story, reflecting on how becoming self-aware helped him navigate life after aging out of the system. We discuss his draw to driving as a means to meet the vital need for transportation among the autistic community. Throughout the episode, we explore services and support systems in different states, focusing on Massachusetts, New York, and Connecticut, shedding light on the regional resources available to those on the spectrum. Episode Chapters 00:00 Intro - (Don't) Forget Yourself! 03:24 Today's Guest - Andrew Arboe 06:58 Changing Outcomes 09:01 Services in Nearby States 10:46 Driving & Transport 12:00 Andrew's Travels and Play Theory 15:28 Music Therapy 18:30 Hero(es) of the Day - Autistic Musicians 20:30 Autism in Hindi 23:33 ADAM Project - Investment in Backup 25:00 Wrap Up

    28 phút
  7. S02E04: Mastering the Spectrum

    20/09/2024

    S02E04: Mastering the Spectrum

    In this inspiring episode of Speaking of the Spectrum, we dive deep into the heart of neurodiversity with our incredible guest, Priya Winston. Priya, a licensed master social worker, Director of Curriculum and Clinical Support at Transitions USA, and passionate advocate for neurodivergent individuals, shares her personal journey of self-discovery and success as a neurodiverse individual. From her early experiences growing up in a small town, to learning about her diagnosis of Turner syndrome at a young age, Priya reflects on how understanding her own strengths and seeking support shaped her academic and professional journey. We discuss the importance of advocacy, both for oneself and for others, and how small adjustments can make monumental impacts on the lives of those with autism and other learning differences. Priya’s story is a powerful reminder that mastering the spectrum starts with understanding, support, and the courage to ask for help. Whether you're a parent, educator, or neurodivergent individual, this episode offers practical insights into building a world where everyone can thrive. Don't miss this episode as we talk about building inclusive environments, the role of advocacy, and how every small change can lead to a huge difference. Tune in and discover how we can all work together to Master the Spectrum. Learn more about Transitions here: https://www.transitionsusa.org/ Episode Chapters: 00:00 A Kickin' Start! 02:50 Transitions USA 06:15 OPWDD & Funding 07:26 Priya's Origin Story - Turner's Syndrome 13:36 Power of Advocacy & (Self) Acceptance 17:00 Environment for Success 18:46 Strong & Fierce Advocates 20:15 The Current Setup is Not Set Up 23:48 "Autism" in Japanese - Self-closed 25:36 Hero of the Day - Ann Kagarise

    28 phút
  8. S02-E03: Broadening the Spectrum

    13/09/2024

    S02-E03: Broadening the Spectrum

    In this episode titled "Broadening the Spectrum", hosts Shahrukh Sultan and Joe Templin delve into the complex world of mental health, particularly how society—and individuals—cope with challenges such as autism, anxiety, and more. They explore the pressing need for better mental health education and training at home and in schools. Shahrukh, sharing insights from his experiences, raises the question: Are we truly equipping ourselves to handle mental health issues, not just in the autistic community but across the board? Joe passionately discusses the role of physical activity and play in children's development and how society's failure to prioritize these has contributed to a mental health crisis. They also introduce the inspiring efforts of the Somali community in Minnesota, who are redefining the language around autism to focus on strengths rather than deficits. This leads to a broader conversation on how early exposure to diverse experiences and individuals can foster empathy and inclusivity in future generations. Tune in for a thoughtful and enlightening discussion that challenges conventional approaches to mental health and offers fresh perspectives on creating a more inclusive and understanding society. Episode Chapters 00:00 A Wired Intro 01:50 Question for Society 03:30 Challenge School Curriculums 06:05 The Anxious Generation 08:38 Mandatory Mental Health Education 10:56 Exposure Therapy 13:12 Fact of the Day - Autism in Somali Communities 16:25 Herro of the Day - Angelo Santabarbara 18:18 The ADAM Project - A Preferred Indifference 24:49 The Wrap Up - A Different Lens

    27 phút
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A vibrant podcast hosted by Shahrukh Sultan and Joe Templin of the Autism Society Greater Hudson Region, who bring humor and heart to the forefront while exploring the diverse world of autism. Shahrukh, a Project Manager and dad to a non-verbal boy on the spectrum, and Joe, the Human Kaizen expert & swiss-army knife of skills navigating parenting with spectrum challenges, share personal stories & insights with a stellar roster of guests. Whether you're a seasoned autism advocate, a curious listener, or someone eavesdropping for a conversational gem, this podcast is for you!

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    Shahrukh Sultan & Joe Templin - Autism Society Greater Hudson Region
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    © Shahrukh Sultan & Joe Templin - Autism Society Greater Hudson Region
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    Speaking of the Spectrum - An Autism Podcast

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